Results 161 to 170 of about 6,310,447 (337)

Remaining Burden of Spinal Muscular Atrophy Among Treated Patients: A Survey of Patients and Caregivers

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinal muscular atrophy (SMA) significantly impacts motor function. This study aimed to assess the persistent burden and unmet needs among currently treated patients with SMA and their caregivers. Methods Two complementary web‐based surveys were distributed in August 2024 among patients with SMA and their caregivers.
Julie A. Parsons   +8 more
wiley   +1 more source

The CIARD RING, an infrastructure for interoperability of agricultural research information services [PDF]

open access: yes, 2010
Creating integrated information services in agriculture giving access and adding value to information residing in distributed sources remains a major challenge.
Keizer, Johannes   +2 more
core  

Digital Activity Markers in Chronic Inflammatory Demyelinating Polyneuropathy

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To evaluate the utility of smartwatch and smartphone‐based activity metrics for assessing disease severity and quality of life in patients with chronic inflammatory demyelinating polyneuropathy (CIDP). Methods In the electronic monitoring of disease activity in patients with CIDP (EMDA‐CIDP) trial, we performed a prospective ...
Lars Masanneck   +15 more
wiley   +1 more source

(No. 05) -- GOP Elephants and Misdirected Humane Efforts [PDF]

open access: yes, 1968
GOP elephants and misdirected humane effort The world\u27s greatest humane problem Latest developments in our continuing action programs Our Officers\u27 ...
Humane Information Services, Inc.
core   +1 more source

The Critical Need to Build a European Governance Model for Online Access to Medical Information Services: A Position Paper. [PDF]

open access: yesPharmaceut Med, 2021
Pienaar S   +6 more
europepmc   +1 more source

Cognitive Resilience in Apolipoprotein ε4 Carrier Women Predicted by Neuron‐Derived Extracellular Vesicles

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective The Apolipoprotein (APOE) ε4 allele is the strongest genetic risk factor for late‐onset Alzheimer's disease (AD); however, many ε4 carriers remain cognitively intact into old age. Leveraging plasma neuron‐derived extracellular vesicles (NDEVs), we sought to identify biomarkers of cognitive resilience and their interplay with APOE ...
Apostolos Manolopoulos   +17 more
wiley   +1 more source

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