Results 31 to 40 of about 65,623 (263)

Designing with and for People with Intellectual Disabilities

Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility, 2022
People with intellectual disabilities often experience inequalities that affect the standard of their everyday lives. Assistive technologies can help alleviate some of these inequalities, yet abandonment rates remain high. This is in part due to a lack of involvement of all stakeholders in their design and evaluation, thus resulting in outputs that do ...
Leandro Soares Guedes, Ryan Colin Gibson, Kirsten Ellis, Laurianne Sitbon, Monica Landoni   +4 more
openaire   +4 more sources

Anesthesia for intellectually disabled

Journal of Anaesthesiology Clinical Pharmacology, 2017
Anesthetizing an intellectually disabled patient is a challenge due to lack of cognition and communication which makes perioperative evaluation difficult. The presence of associated medical problems and lack of cooperation further complicates the anesthetic technique.
Kapil Chaudhary, Preranna Bagharwal, Sonia Wadhawan   +2 more
openaire   +3 more sources

Psychosocial Functioning After Pediatric Bone Sarcoma: Generic and Survivor‐Specific Outcomes in Adolescent and Young Adult Patients

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric bone sarcoma patients and survivors may experience psychosocial challenges related to childhood cancer after their intensive, body‐altering treatment. This cross‐sectional study aimed to evaluate generic and survivor‐specific psychosocial outcomes in a national cohort of pediatric bone sarcoma patients and survivors, and ...
Hinke van der Hoek, Heleen Maurice‐Stam, Laura R. Beek, Jennifer van Dijk, Marjolein E. M. Langemeijer, Relinde W. Slooff‐Lentink, Alied M. van der Aa‐van Delden, Anne Westerweel, Marloes van Gorp, Hendrik W. B. Schreuder, Lianne M. Haveman, W. Peter Bekkering, Leonie G. Tigelaar, Johannes H. M. Merks, Martha A. Grootenhuis   +14 more
wiley   +1 more source

Validation of the safety, empathy and utility of a large language model conversation agent for parents of autistic and neurodivergent children

Scientific Reports
This paper presents three descriptive validation studies of a large language model (LLM) conversation agent designed to support families and carers with autistic children.
Freddy Jackson Brown, Isabelle Stewart Muscat, Louise Quinn, Lara Best, Paul Cooper   +4 more
doaj   +1 more source

Facilitators and barriers to the implementation of the picture exchange communication system (PECS): a systematic review

Frontiers in Education
Background and aimsAlthough there are several published systematic reviews and meta-analyses of the effectiveness of the Picture Exchange Communication System (PECS) protocol, no previous review has focused on factors affecting its implementation.
Andreas Paris, Louise D. Denne, Corinna F. Grindle, Richard May, Magdalena M. Apanasionok, Richard P. Hastings   +5 more
doaj   +1 more source

Intellectual and Developmental Disabilities: Eugenics [PDF]

Frontiers in Public Health, 2014
Those working today with individuals with intellectual and developmental disabilities (IDD) are often not aware of the dark side of our history concerning the treatment of this population and why we, some 150 years ago, made institutions or state schools for them (1).
Grenon, Ingrid, Merrick, Joav
openaire   +3 more sources

Consensus Standards and Recommendations for Developmental and Cognitive Surveillance, Screening, and Evaluation in Sickle Cell Disease: Executive Summary From the National Alliance of Sickle Cell Centers Neurocognitive Workgroup

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neurodevelopmental and neurocognitive difficulties are prevalent among individuals with sickle cell disease and warrant prompt identification and support. This Special Report provides an executive summary of standards and recommendations for surveillance, screening, and evaluation for development and cognition across the lifespan developed by ...
Alyssa M. Schlenz, Donna Murdaugh, Andrew M. Heitzer, Jennifer N. Longoria, Wendy Santos‐Modesitt, Arianna Martin, Judy Cavazos, Jeff Schatz, Catherine R. Hoyt, Alison King, Eboni I. Lance, Steven Hardy, Marsha Treadwell   +12 more
wiley   +1 more source

Using team-based precision medicine to advance understanding of rare genetic brain disorders

Journal of Neurodevelopmental Disorders
We describe a multidisciplinary teamwork approach known as “Operation IDD Gene Team” developed by the Rose F. Kennedy Intellectual and Developmental Disabilities Research Center (RFK IDDRC) at the Albert Einstein College of Medicine.
Steven U. Walkley, Sophie Molholm, Bryen Jordan, Robert W. Marion, Melissa Wasserstein   +4 more
doaj   +1 more source

Effectiveness of Resistance Intradialytic Exercise Compared to Aerobic Intradialytic Exercise for Patients With Chronic Kidney Disease: A Randomized Controlled Clinical Trial

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Patients with chronic kidney disease undergoing hemodialysis commonly experience reduced physical function, fatigue, poor sleep quality, and impaired health‐related quality of life. Intradialytic exercise has been proposed as a non‐pharmacological strategy to improve these outcomes.
Klebson da Silva Almeida, Gisela Cristiane Miyamoto, Daniel da Costa Torres, Ian Setubal Reis Chaves, Jonas do Carmo Paschoalin, Braúlio Lima Nascimento, Luciana Dias Chiavegato   +6 more
wiley   +1 more source

Splicing Interruption by Intron Variants in CSNK2B Causes Poirier–Bienvenu Neurodevelopmental Syndrome: A Focus on Genotype–Phenotype Correlations

Frontiers in Neuroscience, 2022
CSNK2B has recently been identified as the causative gene for Poirier–Bienvenu neurodevelopmental syndrome (POBINDS). POBINDS is a rare neurodevelopmental disorder characterized by early-onset epilepsy, developmental delay, hypotonia, and dysmorphism ...
Wen Zhang, Wen Zhang, Wen Zhang, Fanghua Ye, Shimeng Chen, Shimeng Chen, Shimeng Chen, Jing Peng, Jing Peng, Jing Peng, Nan Pang, Nan Pang, Nan Pang, Fei Yin, Fei Yin, Fei Yin   +15 more
doaj   +1 more source