Results 61 to 70 of about 372,214 (296)

Opportunities for meaningful inclusion: experience of individuals with intellectual and developmental disabilities with research

Frontiers in Pediatrics
BackgroundIndividuals with intellectual and developmental disabilities (IDD) face numerous health disparities, particularly in rural communities. However, they are rarely included in the research process to address these challenges as co-researchers ...
Ally Dudley, Tai Baker, Canyon Hardesty, Eric J. Moody   +3 more
doaj   +1 more source

An Analysis of Journey Mapping to Create a Palliative Care Pathway in a Canadian First Nations Community: Implications for Service Integration and Policy Development

Palliative Care, 2017
Providing palliative care in Indigenous communities is of growing international interest. This study describes and analyzes a unique journey mapping process undertaken in a First Nations community in rural Canada.
Jessica Koski, Mary Lou Kelley, Shevaun Nadin, Maxine Crow, Holly Prince, Elaine C Wiersma, Christopher J Mushquash   +6 more
doaj   +1 more source

Optimising the integration of technology-enabled solutions to enhance primary mental health care: a service mapping study

BMC Health Services Research, 2021
Background Despite the widely acknowledged potential for health information technologies to improve the accessibility, quality and clinical safety of mental health care, implementation of such technologies in services is frequently unsuccessful due to ...
Haley M. LaMonica, Tracey A. Davenport, Antonia Ottavio, Shelley C. Rowe, Shane P. Cross, Frank Iorfino, Tanya A. Jackson, Michael A. Easton, Jennifer Melsness, Ian B. Hickie   +9 more
doaj   +1 more source

Metaphor and Apophatic Discourse: Putting Sells in Dialogue with Lakoff and Johnson [PDF]

, 2012
In the book, Mystical Languages of Unsaying, Michael A. Sells presents a performative theory of apophatic discourse. His idea is that apophatic discourse functions as a semantic analogue to mystical experience through \"meaning events.\" Although he ...
Carroll, Thomas D.
core   +1 more source

'Join us on our journey': Exploring the experiences of children and young people with type 1 diabetes and their parents [PDF]

, 2014
This paper focuses on children and young people with type 1 diabetes and on their parents, and their experiences of diabetes care provision. Nine acute hospitals in the Yorkshire and the Humber region, UK, were recruited to participate in a qualitative ...
Department of Health, Department of Health, Diabetes Control and Complications Trial Research Group, Diabetes UK, Diamond Project Group, Epidemiology of Diabetes Interventions and Complications Research Group., Gunn, Kanavos, Kennedy, Kime, Miles, NHS Confederation, Patterson, Peyrot, Randell, The, Wood   +16 more
core   +1 more source

Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein, Maximilian Mönch, Meret Herdick, Frauke Stascheit, Sarah Hoffmann, Hannah Preßler, Philipp Mergenthaler, Carla Dusemund, Paolo Doksani, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Lea Gerischer, Sophie Lehnerer   +13 more
wiley   +1 more source

Journey mapping paediatric oncology care in Saudi Arabia: A mixed-methods study

Health SA Gesondheid: Journal of Interdisciplinary Health Sciences
Background: Because of the global increase in childhood cancer, patient journey mapping was utilised to improve the treatment experiences and outcomes for paediatric oncology patients and their families.
Febe V. Lacson, Dorien Wentzel
doaj   +1 more source

Young people with type 1 diabetes and their transition to adult services. [PDF]

, 2013
More than 85% of children and young people with type 1 diabetes are not achieving the recommended target of
Kime, N
core   +1 more source

Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller, Lauren N. Coffey, Shelley R. H. Mockler, Katie M. Laubscher, Carrie M. Stephan, M. Bridget Zimmerman, Katherine D. Mathews   +6 more
wiley   +1 more source

Making meaningful comparisons between road and rail – substituting average energy consumption data for rail with empirical analysis

, 2014
Within the transport sector, modal shift towards more efficient and less polluting modes could be a key policy goal to help meet targets to reduce energy consumption and carbon emissions.
Armstrong, John, Preston, Jonathan, Pritchard, James   +2 more
core   +1 more source