Introduction: Creating new worlds out of old texts [PDF]
, 2015 Despite initial expectations that globalization would eradicate the need for geographical space and distance, "maps matter" today in ways that were unimaginable a mere two decades ago.
Barker, Elton +2 more
core +2 more sources
Five‐Year Disease Progression in Synuclein Seeding Positive Sporadic Parkinson's Disease
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective To provide a comprehensive description of disease progression in synuclein seeding assay (SAA) positive sporadic Parkinson Disease participants, using Neuronal Synuclein Disease integrated biological and functional impairment staging framework.
Paulina Gonzalez‐Latapi +19 more
wiley +1 more source
Complementarity of Long‐Reads and Optical Mapping in Parkinson's Disease for Structural Variants
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Long‐read sequencing and optical genome mapping technologies have the ability to detect large and complex structural variants. This has led to the discovery of novel pathogenic variants in neurodegenerative movement disorders. Thus, we aimed to systematically compare the SV detection capabilities of OGM and ONT in Parkinson's disease.
André Fienemann +17 more
wiley +1 more source
Research progress on chronic disease patient journey mapping
Huli yanjiuThis paper summarized the relevant concepts of patient journey and patient journey mapping.It expounded the key elements of drawing patient journey mapping,and analyzed the current situation of journey mapping for chronic disease patients.Finally,the ...
YUAN Peiyao +4 more
doaj
PERANCANGAN UI/UX SISTEM MONITORING DAN EVALUASI MUSRENBANG MENGGUNAKAN METODE DESIGN THINKING (Studi Kasus Bappeda Kabupaten Malang) [PDF]
This study focuses on the design of a UI/UX monitoring and evaluation system for the Musrenbang using the Design Thinking method, specifically for the Bappeda of Malang Regency.
Khuluq, Mohamad Farid Wafi Husnul
core
Exploring the value of a design for service approach to develop public services in the Community Voluntary Sector: a comparative analysis [PDF]
, 2014 This paper presents the findings from two action research case studies that explore the value of using a ‘design for service’ approach to develop public services in the community voluntary sector (CVS).
Lievesley, Matthew +2 more
core +2 more sources
Vestibular Patient Journey: Insights From Vestibular Disorders Association (VeDA) Registry
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Vestibular symptoms impose a high burden of disability. Understanding real‐world diagnostic and treatment pathways can identify care gaps and guide interventions. We aimed to characterize symptom profiles, diagnostic trends, provider involvement, and treatment patterns in vestibular disorders.
Ali Rafati +10 more
wiley +1 more source
A degree of employability: a research agenda towards curricula design [PDF]
, 2014 The challenge of providing commercial science and technology skills in an academic environment stimulates considerable debate, with industry suggesting it cannot be done. In investigating enhancing employability skills of STEM graduates many institutions
Morrell, Carole, Morrell, Mandy
core
Ketogenic Diet as an Epigenetic Therapy in SETD1B‐Related Epilepsy
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Histone lysine methyltransferases such as SETD1B regulate chromatin structure and gene transcription. Ketone bodies, including butyrate, act as histone deacetylase inhibitors. We report a 4‐year‐old boy with SETD1B‐related absence epilepsy, refractory to conventional medications, who achieved sustained > 90% seizure reduction on the Modified ...
Erica Tsang +10 more
wiley +1 more source
Application status of patient journey mapping in the nursing field
Huli yanjiuThis article introduced the basic concepts,components,and drawing of patient journey mapping,reviewed the application of patient journey mapping in the nursing field,and summarized their advantages and limitations.The aim was to provide reference for the
HUANG Yubing, ZHU Li
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