Results 101 to 110 of about 1,888,131 (358)

Barriers to healthcare access and experiences of stigma: Findings from a coproduced Long Covid case‐finding study

Health Expectations
Background and Aim Long Covid is often stigmatised, particularly in people who are disadvantaged within society. This may prevent them from seeking help and could lead to widening health inequalities. This coproduced study with a Community Advisory Board
Donna Clutterbuck, Mel Ramasawmy, Marija Pantelic, Jasmine Hayer, Fauzia Begum, Mark Faghy, Nayab Nasir, Barry Causer, Melissa Heightman, Gail Allsopp, Dan Wootton, M. Asad Khan, Claire Hastie, Monique Jackson, Clare Rayner, Darren Brown, Emily Parrett, Geraint Jones, Rowan Clarke, Sammie Mcfarland, Mark Gabbay, Amitava Banerjee, Nisreen A. Alwan, The STIMULATE‐ICP Consortium   +23 more
doaj   +1 more source

8 Who Benefits? Structural Change and Lived Experience in the Late Prehispanic Andes [PDF]

, 2016
Cathy Lynne Costin
openalex   +1 more source

PCR216 Insights from Social Media Posts on the Lived Experience of Alzheimer's Disease [PDF]

, 2023
Kristian Steen Frederiksen, Rebecca Crawford, Julie Hviid Hahn‐Pedersen, Ross Morrison, Rose Jeppesen, Lynda Doward, Wendy Weidner   +6 more
openalex   +1 more source

Frailty Exacerbates Disability in Progressive Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background To evaluate frailty in severe progressive multiple sclerosis (PMS) and to investigate the underlying mechanisms. Methods This prospective, cross‐sectional, multicenter study enrolled a late severe PMS group requiring skilled nursing (n = 53) and an age, sex, and disease duration‐matched control PMS group (n = 53).
Taylor R. Wicks, Anna Wolska, Diala Ghazal, Dejan Jakimovski, Bianca Weinstock‐Guttman, Alexander Burnham, Niels Bergsland, Michael G. Dwyer, Alan T. Remaley, Robert Zivadinov, Murali Ramanathan   +10 more
wiley   +1 more source

Our stories matter: a mixed methods survey of lived and living experience perspectives of media and public communication of suicide in Australia

BMJ Public Health
Background Suicide is a major global public health issue, yet the voices of people who have a lived and living experience of suicide are often left out of public discussion about suicide.
Elizabeth Paton, Jaelea Skehan, José Cuenca, Emma Pryse Jones, Megan Barrow, Jon Eddy, Jennifer Peprah   +6 more
doaj   +1 more source

Inhibition of Classical and Alternative Complement Pathway by Ravulizumab and Eculizumab

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To explore the feasibility of classical (CH50) and alternative (AH50) complement pathway activity as potential biomarkers for treatment guidance and monitoring during therapy with ravulizumab in patients with generalized myasthenia gravis (gMG) and compare these to therapeutic drug monitoring under eculizumab.
Lea Gerischer, Frauke Stascheit, Maximilian Mönch, Paolo Doksani, Carla Dusemund, Meret Herdick, Philipp Mergenthaler, Maike Stein, Amani Suboh, Jutta Schröder‐Braunstein, Guido Wabnitz, Jan D. Lünemann, Sophie Lehnerer, Sarah Hoffmann, Andreas Meisel   +14 more
wiley   +1 more source

Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change: Reflections on Research and Collective Change Strategies

Health Expectations
Introduction The Activating Lived Experience Leadership (ALEL) project was a South Australian participatory action research project that aimed to improve the ways lived experience is recognised, valued and integrated across mental health and social ...
Mark Loughhead, Ellie Hodges, Heather McIntyre, Nicholas Procter, Anne Barbara, Brooke Bickley, Lee Martinez, Leticia Albrecht, Lisa Huber   +8 more
doaj   +1 more source

Lived Experience of Frontline Nurses Supporting Two Hospitals in Wuhan During the COVID-19 Pandemic: An Interpretative Phenomenological Analysis

, 2020
Xiaoyun Zhou, Sisira Edirippuige, Centaine L. Snoswell, Matthew Bambling, Dongying Liu, Anthony C Smith, Xuejun Bai   +6 more
openalex   +1 more source

Prediction of Myasthenia Gravis Worsening: A Machine Learning Algorithm Using Wearables and Patient‐Reported Measures

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare disorder characterized by fluctuating muscle weakness with potential life‐threatening crises. Timely interventions may be delayed by limited access to care and fragmented documentation. Our objective was to develop predictive algorithms for MG deterioration using multimodal telemedicine data ...
Maike Stein, Haoqi Sun, Sophie Lehnerer, Lea Gerischer, Maximilian Mönch, Christian Meisel, Andreas Meisel, Pushpa Narayanaswami   +7 more
wiley   +1 more source

Co-production in the Lost Mothers Project: transforming criminal justice narratives through Lived experience engagement

Research Involvement and Engagement
The Lost Mothers Project researches the repercussions of mandatory separation between newborns and women in the Criminal Justice System (CJS), aiming to address gaps in evidence and decision-making for pregnant women within the CJS.
Laura Abbott, Kate Chivers, Tuesdae Moncrieffe   +2 more
doaj   +1 more source