Results 31 to 40 of about 3,168,034 (334)

Co-development and Adoption of Transparency in Data Access Standards: Process, Implementation, and Impact

International Journal of Population Data Science
Objectives This initiative aimed to enhance transparency in health data access processes by co-developing and implementing clear standards. The goal was to improve public trust and understanding, streamline governance, and promote meaningful public ...
Ester Bellavia, Alan Holcroft, Yemi Macaulay, Doreen Tembo, Cassie Smith, Andy Boyd   +5 more
doaj   +1 more source

Functional single index models for longitudinal data

, 2011
A new single-index model that reflects the time-dynamic effects of the single index is proposed for longitudinal and functional response data, possibly measured with errors, for both longitudinal and time-invariant covariates.
Jiang, Ci-Ren, Wang, Jane-Ling
core   +1 more source

Embedding Public Voices in Data Governance: Insights from the GUARDS Principles Consultation

International Journal of Population Data Science
Objectives This project explored public perspectives on the GUARDS Principles, an overarching governance framework for the population data research community, which builds on existing good practice guidance.
Ester Bellavia, Rachel Brophy, Sonia Patton, Doreen Tembo, Cassie Smith, Andy Boyd   +5 more
doaj   +1 more source

An approach for jointly modeling multivariate longitudinal measurements and discrete time-to-event data

, 2010
In many medical studies, patients are followed longitudinally and interest is on assessing the relationship between longitudinal measurements and time to an event.
Albert, Paul S., Shih, Joanna H.
core   +1 more source

A Novel Joint Brain Network Analysis Using Longitudinal Alzheimer's Disease Data. [PDF]

, 2019
There is well-documented evidence of brain network differences between individuals with Alzheimer's disease (AD) and healthy controls (HC). To date, imaging studies investigating brain networks in these populations have typically been cross-sectional ...
Alzheimer’s Disease Neuroimaging Initiative, Galvin, James, Guo, Ying, Kundu, Suprateek, Lukemire, Joshua, Wang, Yikai   +5 more
core   +2 more sources

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source

Co-developing resources for better public understanding of Longitudinal Population Study Data and the Law

International Journal of Population Data Science
Introduction The legal basis for using participants' data in Longitudinal Population Studies (LPS) is complex. Laws of particular relevance are (1) UK data protection legislation, including Data Protection Act 2018 and UK General Data Protection ...
Kirsteen Campbell, Sarah Chave, Rosie Hill, Mhairi Docherty, Michael Gregg, Emma Turner, Katharine Evans, Jacqui Oakley, Stela McLachlan, Alex Bailey, Cassie Smith, Rebecca Whitehorn, Lidis Garbovan, Robin Flaig, Andy Boyd   +14 more
doaj   +1 more source

Learning loss and learning inequality during the Covid-19 pandemic

Ensaio, 2023
This paper evaluates the effects of school closure during the Covid-19 pandemic on learning loss and learning inequalities in Rio de Janeiro. It presents longitudinal data for 671 children (5/6 years old) enrolled in the second year of preschool ...
Tiago Lisboa Bartholo, Peter Tymms, Daniel Lopes Castro   +2 more
doaj   +1 more source

Identifying progressive imaging genetic patterns via multi-task sparse canonical correlation analysis: a longitudinal study of the ADNI cohort [PDF]

, 2019
Motivation Identifying the genetic basis of the brain structure, function and disorder by using the imaging quantitative traits (QTs) as endophenotypes is an important task in brain science.
Du, Lei, Guo, Lei, Liu, Kefei, Risacher, Shannon L., Saykin, Andrew J., Shen, Li, Yao, Xiaohui, Zhu, Lei   +7 more
core   +1 more source

Clinical Correlates of Anxiety and Depression After Diagnosis of a Pediatric Brain Tumor

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The prevalence and clinical correlates of symptoms of anxiety and depression in pediatric patients with brain tumors are not well described. We aimed to identify clinical characteristics that are correlated with elevated symptoms of anxiety and depression following initial diagnosis.
Bryony J. Lucas, Se‐Kang Kim, Joan Yu, Ana Sofia C. Ibarrola, Heather H. Stancel, Kavyaa Choudry, Mary Elizabeth Moody, Krystal K. Christopher, David R. Grosshans, Arnold C. Paulino, Guillermo Aldave, M. Fatih Okcu, Murali M. Chintagumpala, Austin L. Brown, Michael E. Scheurer, Kimberly P. Raghubar, Lisa S. Kahalley   +16 more
wiley   +1 more source