Results 91 to 100 of about 12,465 (241)

A prospective natural history study protocol for clinical trial readiness in synaptic disorders

Epilepsia, EarlyView.
Abstract Objective STXBP1‐related disorder (STXBP1‐RD) and SYNGAP1‐related disorder (SYNGAP1‐RD) are two common genetic synaptopathies that are associated with epilepsy, developmental delay, intellectual developmental disorder, and behavioral problems.
Jillian L. McKee, Sarah M. Ruggiero, Kristin Cunningham, JoeyLynn Coyne, Ian McSalley, Michael C. Kaufman, Bintou Bane, Torrey Chisari, Jonathan Toib, Carlyn Glatts, Sarah Tefft, Julie M. Orlando, Viveknarayanan Padmanabhan, Alexander K. Gonzalez, Alicia Harrison, Charlene Woo, Stephanie A. Zbikowski, Rency Dhaduk, Johanna Mercurio, Macie McCarthy, Jan H. Magielski, Zachary Grinspan, Megan Abbott, Juliet Knowles, Hsiao‐Tuan Chao, Katherine Xiong, Elizabeth Berry‐Kravis, Sepideh Tabarestani, J. Michael Graglia, Kathryn Helde, Virginie McNamar, Charlene Son Rigby, James Goss, Scott Demarest, Andrea Miele, Benjamin Prosser, Michael J. Boland, Samuel R. Pierce, Ingo Helbig   +38 more
wiley   +1 more source

Evaluation of current practices and communication surrounding sudden unexpected death in epilepsy (SUDEP): A survey analysis of healthcare practitioners

Epilepsia Open, EarlyView.
This graphical abstract provides an overview of the results of this survey of health care practitioners on their SUDEP awareness, including SUDEP training, knowledge of guidelines and risk factors, and patient counseling practices. Abstract Objective To characterize healthcare providers' awareness and education regarding SUDEP and their approaches to ...
Katherine C. Nickels, Carly Katterman, Kelly Gwin, Carla Schad   +3 more
wiley   +1 more source

From Ad Hoc to Function: Vancouver Foundation's Journey to Learning Through Evaluation

New Directions for Evaluation, EarlyView.
ABSTRACT This case narrative details the Vancouver Foundation's (VF) journey from ad‐hoc reporting to a core internal learning and evaluation function. Catalyzed by the pandemic and motivated by the increasing need, VF established the Engagement Department to house evaluation independently.
Vincent Tom
wiley   +1 more source

Cutback management : facing the challenge for nonprofit agencies [PDF]

, 1998
How ironic that the king of corporate cutbacks himself, "Chainsaw'' Al Dunlap, got cut from the employee roster when Sunbeam stocks still sank after two years of cost cutting (Daily News, 1998). As chief executive of Sunbeam Corporation, Alfred J. Dunlop
Burke, Carmela Anne
core  

Spiritual Cannibalism in HRD: How Workplace Spirituality Devours Sacred Traditions

Human Resource Development Quarterly, EarlyView.
ABSTRACT This paper interrogates how the discourse of workplace spirituality in human resource development (HRD) operates as a tool of colonization. Through a systematic review of 48 articles published between 1997 and March 2025, the study uncovers recurring patterns of spiritual appropriation in which non‐Western traditions are detached from their ...
Shoaib Ul‐Haq
wiley   +1 more source

Effectively incorporating volunteers in a nonprofit human services agency

, 1999
Volunteers assist a variety of nonprofit organizations that target human service issues in providing needed services every day. Yet, as our reliance on nonprofit organization s continues, and society s problems grow more complex, we must find ways to ...
McCollom, Nancy A.
core  

Stretching Scarce Authorizing Legislation as Far as Possible: A Legislative History of the 340B Drug Pricing Program. [PDF]

Milbank Q
Policy Points The original purpose of the 340B program was to exempt Public Health Service Act funded clinics and state and local public hospitals from the inflationary best‐price component of the recently enacted Medicaid drug rebate program. The secondary purpose was to reduce drug prices for these clinics and hospitals in order to preserve and ...
Nikpay S, Reinke M, Quinones N.
europepmc   +2 more sources

How Does Vulnerability Framing by Microfinance Institutions Leverage Funding Success in Crowdfunding?

International Journal of Finance &Economics, EarlyView.
ABSTRACT This study draws on framing theory to investigate how microfinance institutions (MFIs) strategically construct a vulnerability‐oriented organisational identity and how this framing influences their funding decisions during the pre‐campaign phase of prosocial crowdfunding.
Ana Paula Matias Gama, Ricardo Emanuel‐Correia, Fábio Duarte, Mário Augusto   +3 more
wiley   +1 more source

Nonprofit Organizations: Theory, Management and Policy

, 2014
In this new edition of his popular textbook, Nonprofit Organizations: Theory, Management, Policy, Helmut K. Anheier has fully updated, revised and expanded his comprehensive introduction to this field.
Anheier, Helmut K. (Prof. Dr.)
core   +1 more source

Validity of International Classification of Diseases (ICD)-9 and ICD-10 Codes for Medication-Related Osteonecrosis of the Jaw (MRONJ) Among Individuals Prescribed Antiresorptives for Fracture Prevention Across Two Cohorts

Clinical Epidemiology
Laura D Carbone,1,2 Brian Le,3 Rachel E Elam,1,2 Emily Budde,1 Zhiping Huo,1 Dezon Finch,1 Thomas B Dodson,4 Peter J Gerngross,5 Howard A Fink,6 Robert A Adler,7 Frances Weaver,1 Joan C Lo,8 Joshua Barzilay,9,10 Laura Grangaard Johnson,11 John T ...
Carbone LD, Le B, Elam RE, Budde E, Huo Z, Finch D, Dodson TB, Gerngross PJ, Fink HA, Adler RA, Weaver F, Lo JC, Barzilay J, Grangaard Johnson L, Schousboe JT   +14 more
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