Results 11 to 20 of about 3,725,551 (310)

Connective tissue disease related interstitial lung diseases and idiopathic pulmonary fibrosis: provisional core sets of domains and instruments for use in clinical trials [PDF]

open access: yes, 2013
Rationale Clinical trial design in interstitial lung diseases (ILDs) has been hampered by lack of consensus on appropriate outcome measures for reliably assessing treatment response.
Antoniou, K   +40 more
core   +1 more source

Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy

open access: yesPatient Related Outcome Measures, 2022
Jennifer Quinn,1 Kathleen A Delaney,2 Wing Yen Wong,2 Wolfgang Miesbach,3 Monika Bullinger4 1BioMarin Pharmaceuticals UK Ltd, London, UK; 2BioMarin Pharmaceutical Inc., Novato, CA, USA; 3Medical Clinic 2, Institute of Transfusion Medicine, University ...
Quinn J   +4 more
doaj  

Measures and outcomes [PDF]

open access: yesThe Lancet Neurology, 2014
The Lancet Neurology has great pleasure in commemorating 40 years since the development of the Glasgow Coma Scale (GCS). Not only has the scale become the standard for the measurement of consciousness level, its has subsequently expanded to provide applications in risk assessment, trend monitoring, classifi cation, and prognosis.
openaire   +2 more sources

Does repetitive task training improve functional activity after stroke? A Cochrane systematic review and meta-analysis. [PDF]

open access: yes, 2010
Repetitive task training resulted in modest improvement across a range of lower limb outcome measures, but not upper limb outcome measures. Training may be sufficient to have a small impact on activities of daily living.
Forster, Anne   +9 more
core   +2 more sources

The Use of Patient Engagement to Gather Perceptions on the Cost of Infant Feeding

open access: yesPatient Related Outcome Measures, 2022
Alicia Blackmore,1 Holly Etchegary,1,2 Leigh Anne Allwood-Newhook,3 Zhiwei Gao,1 Hai Van Nguyen,4 Kaylah Parsons-Mercer,5 Laurie Twells1 1Faculty of Medicine, Memorial University of Newfoundland, St. John’s, Newfoundland and Labrador, Canada; 2Scientific
Blackmore A   +6 more
doaj  

Measuring Anaesthetic Outcomes [PDF]

open access: yesAnaesthesia and Intensive Care, 1996
We have identified some of the most frequently measured anaesthetic outcomes and their independent risk factors, and discussed the limitations and advantages in using various risk adjustment strategies. Many studies suggest that preoperative assessments may contribute to preventing the occurrence of anaesthetic-related morbidity and mortality, and to ...
A, Lee, M E, Lum
openaire   +2 more sources

The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients

open access: yesPatient Related Outcome Measures, 2023
Lotte van der Kolk,1 Ellen Smit,2 Josée Bloemer,1 Lise Marit van Wijk2 1Institute for Management Research, Radboud University, Nijmegen, the Netherlands; 2Ferring B.V., Hoofddorp, the NetherlandsCorrespondence: Ellen Smit, Polarisavenue 130, Hoofddorp ...
van der Kolk L   +3 more
doaj  

Web-based physiotherapy for people affected by multiple sclerosis: a single blind, randomized controlled feasibility study [PDF]

open access: yes, 2018
Objective: To examine the feasibility of a trial to evaluate web-based physiotherapy compared to a standard home exercise programme in people with multiple sclerosis. Design: Multi-centre, randomized controlled, feasibility study.
Alex McConnachie   +16 more
core   +3 more sources

Exploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals

open access: yesPatient Related Outcome Measures, 2023
Alebel Guangul Gessesse,1 Jemal Mohammed Haile,2 Amanuel Gebru Woldearegay3 1Department of Journalism and Communication, Dilla University, Dilla, Ethiopia; 2Departments of Journalism and Communication, Bahir Dar University, Bahir Dar, Ethiopia; 3School ...
Gessesse AG, Haile JM, Woldearegay AG
doaj  

The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

open access: yesPatient Related Outcome Measures, 2023
Andrew Campbell,1 Avery A Rizio,2 Kristen L McCausland,2 Serban Iorga,3 Glorian P Yen,3 Jincy Paulose,3 Soyon Lee3 1Children’s National Hospital, Washington, DC, USA; 2QualityMetric Incorporated LLC, Johnston, RI, USA; 3Novartis Pharmaceuticals ...
Campbell A   +6 more
doaj  

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