Results 31 to 40 of about 426,395 (339)

Dry mouth in patients with a life-limiting condition or frailty: a study protocol for two intervention studies and a nested qualitative sub-study (the Dry mOuth Project, DROP)

BMC Palliative Care, 2023
Background Despite its prevalent and impactful nature, dry mouth remains an underexposed and undertreated symptom in patients with a life-limiting condition or frailty.
Annelot I. van der Meulen, Evelien P. J. G. Neis, Ellen J. M. de Nijs, Bénédicte J. E. G. Coenegracht, Arianne Stoppelenburg, Marieke H. J. van den Beuken-van Everdingen, Yvette M. van der Linden   +6 more
doaj   +1 more source

Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol

BMC Palliative Care, 2020
Background In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals.
Sofia C. Zambrano, Dagny Faksvåg Haugen, Agnes van der Heide, Vilma A. Tripodoro, John Ellershaw, Carl Johan Fürst, Raymond Voltz, Stephen Mason, María L. Daud, Gustavo De Simone, Kerstin Kremeike, Svandis Iris Halfdanardottir, Valgerdur Sigurdardottir, Jeremy Johnson, Simon Allan, Haroon Hafeez, Catarina Simões, Katrin Ruth Sigurdardottir, Birgit H. Rasmussen, Paula Williamson, Steffen Eychmüller, in collaboration with the iLIVE consortium   +21 more
doaj   +1 more source

A randomised trial of early palliative care for maternal stress in infants prenatally diagnosed with single-ventricle heart disease [PDF]

, 2018
Children with single-ventricle disease experience high mortality and complex care. In other life-limiting childhood illnesses, paediatric palliative care may mitigate maternal stress.
Aiyagari, Ranjit, Bhat, Priya, Donohue, Janet, Fifer, Carly, Hancock, Hayley S, Lowery, Ray, Pituch, Ken, Silveira, Maria, Uzark, Karen, Welch, Suzanne, Yu, Sunkyung   +10 more
core   +2 more sources

Palliative care for people with dementia living at home: a systematic review of interventions [PDF]

, 2019
Background: The European Association for Palliative Care White Paper defined optimal palliative care in dementia based on evidence and expert consensus. Yet, we know little on how to achieve this for people with dementia living and dying at home.
Bunn, Frances, Goodman, Claire, Lynch, Jennifer, Miranda, Rose, Van den Block, Lieve   +4 more
core   +3 more sources

Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)

Health and Quality of Life Outcomes, 2023
Background Patient-centred measures to capture symptoms and concerns have rarely been reported in severe COVID. We adapted and tested the measurement properties of the proxy version of the Integrated Palliative care Outcome Scale–IPOS-COV for severe ...
Mevhibe B. Hocaoglu, Fliss E. M. Murtagh, Catherine Walshe, Rachel L. Chambers, Matthew Maddocks, Katherine E. Sleeman, Adejoke O. Oluyase, Lesley Dunleavy, Andy Bradshaw, Sabrina Bajwah, Lorna K. Fraser, Nancy Preston, Irene J. Higginson, the CovPall study team   +13 more
doaj   +1 more source

“From good hearted community members we get volunteers” – an exploratory study of palliative care volunteers across Africa

BMC Palliative Care, 2020
Background Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery.
Carolin Clara Loth, Eve Namisango, Richard Antony Powell, Katharina Henny Pabst, Mhoira Leng, Mohamed Hamada, Lukas Radbruch   +6 more
doaj   +1 more source

Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review [PDF]

, 2015
© SAGE Publications. Background: Cancer patients in lower socioeconomic groups are significantly less likely to die at home and experience more barriers to access to palliative care.
Allgar, Victoria, Chen, Hong, Dalgliesh, Christopher, Johnson, Miriam, MacLeod, Una, Nicolson, Donald J.   +5 more
core   +1 more source

Prognosis, Communication, and Advance Care Planning in Heart Failure: A Module for Students, Residents, Fellows, and Practicing Clinicians

MedEdPORTAL, 2017
Introduction The increasing prevalence, high symptom burden, and medical advances that often prolong the advanced phase of heart failure mandate an organized and thoughtful approach to medical decision making.
April Zehm, Charlotta Lindvall, Kimberly Parks, Kristen Schaefer, Eva Chittenden   +4 more
doaj   +1 more source

Conceptualising effective symptom management in palliative care: a novel model derived from qualitative data

BMC Palliative Care, 2022
Background Pain, breathlessness and fatigue are some of the most challenging symptoms to manage in patients with advanced disease. Specialist palliative care leads to better symptom management, but factors contributing to successful symptom management in
Emma J. Chapman, Simon Pini, Zoe Edwards, Yousuf Elmokhallalati, Fliss E. M. Murtagh, Michael I. Bennett   +5 more
doaj   +1 more source

Evaluating educational initiatives to improve palliative care for people with dementia: A narrative review. [PDF]

, 2013
Dementia accounts for one in three deaths among people aged 65 and over, but end-of-life care for people with dementia is often sub-optimal. Palliative care for people with dementia poses particular challenges to those providing services, and current ...
Alex Warner, Elora Baishnab, Jill Manthorpe, Mareeni Raymond, Nathan Davies, null null, Steve Iliffe   +6 more
core   +1 more source