Results 31 to 40 of about 3,096,886 (286)

Reducing parental anxiety using a family based intervention for youth mental health : a randomized controlled trial [PDF]

, 2013
This paper presents findings on parent anxiety and attachment relationship style from the Deakin Family Options (DFO) pilot study, a randomized controlled pilot study comparing a family-based treatment (BEST Plus), versus a youth only treatment (CBT ...
Bertino, Melanie D., Knight, Tess, Lewis, Andrew J., Ricciardelli, Lina, Richens, Karen, Toumbourou, John W.   +5 more
core   +1 more source

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source

Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome

Journal of Patient-Reported Outcomes, 2022
Objectives Sanfilippo syndrome is a rare multisystem disease with no approved treatments. This study explores caregiver perspectives on the most impactful symptoms and patient-relevant clinical outcomes assessments.
Katherine Ackerman Porter, Cara O’Neill, Elise Drake, Sara M. Andrews, Kathleen Delaney, Samantha Parker, Maria L. Escolar, Stacey Montgomery, William Moon, Carolyn Worrall, Holly L. Peay   +10 more
doaj   +1 more source

New Technologies for Sustainable Urban Transport in Europe [PDF]

, 2006
In the past few years, the European Commission has financed several projects to examine how new technologies could improve the sustainability of European cities. These technologies concern new public transportation modes such as guided buses to form high
Parent, Michel
core   +3 more sources

Nutritional and Behavioral Intervention for Long‐Term Childhood Acute Leukemia Survivors With Metabolic Syndrome

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Metabolic syndrome (MetS) is a common complication in survivors of childhood acute lymphoblastic and myeloid leukemia (AL), and a major risk factor for premature cardiovascular disease, type‐2‐diabetes, and metabolic dysfunction‐associated steatotic liver disease (MASLD).
Visentin Sandrine, Béliard Sophie, Renard Cécile, Caussy Cyrielle, Hamidou Zeinab, Romano David, Gacem Mélanie, Petit Arnaud, Saultier Paul, Borentain Patrick, Michel Gérard   +10 more
wiley   +1 more source

Parenting paradox: Parenting after infant loss

Midwifery, 2011
to gain an in-depth understanding of the parenting experiences of bereaved parents in the years following an infant death.an exploratory qualitative study.semi-structured interview in the participants' homes. Data were collected over a five-month period in 2008 and analysed using thematic analysis.a purposive sample of 13 bereaved parents (10 mothers ...
Warland, J., O'Leary, J., McCutcheon, Helen, Williamson, V.   +3 more
openaire   +5 more sources

The MedSupport Multilevel Intervention to Enhance Support for Pediatric Medication Adherence: Development and Feasibility Testing

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction We developed MedSupport, a multilevel medication adherence intervention designed to address root barriers to medication adherence. This study sought to explore the feasibility and acceptability of the MedSupport intervention strategies to support a future full‐scale randomized controlled trial.
Elizabeth G. Bouchard, Hital Patel, Paula C. Vincent, Justine Kahn, Kira Bona, Thai Hoa Tran, Elisa M. Rodriguez, Kristopher Attwood, Kara M. Kelly   +8 more
wiley   +1 more source

Positive or Negative and General or Differentiated Effect? Correlation between Parental Involvement and Student Achievement

Education Sciences
Parents can have a significant impact on student progress, but it is unclear whether generally influential forms of parental involvement can be identified or if they have a differential impact.
Katinka Bacskai, Emese Alter, Beáta Andrea Dan, Krisztina Vályogos, Gabriella Pusztai   +4 more
doaj   +1 more source

Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best–worst scaling experiment in caregivers and adult patients

Orphanet Journal of Rare Diseases, 2019
Purpose Several gene therapy trials for Duchenne muscular dystrophy initiated in 2018. Trial decision making is complicated by non-curative, time-limited benefits; the progressive, fatal course; and high unmet needs.
Ryan S. Paquin, Ryan Fischer, Carol Mansfield, Brennan Mange, Katherine Beaverson, Annie Ganot, Amy Strong Martin, Carl Morris, Colin Rensch, Valeria Ricotti, Leo J. Russo, Alesia Sadosky, Edward C. Smith, Holly L. Peay   +13 more
doaj   +1 more source

Genetic and environmental links between self-reports and parent-reports of child personality [PDF]

, 2018
Personality ratings have been consistently found to be reliable and moderately heritable, but interrater agreement between self- and other-report of personality are low-to-moderate, particularly in childhood samples. The current study aims to examine the
Savicki, Stephanie Louise
core   +1 more source