Results 41 to 50 of about 4,635,505 (316)

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source

Barriers in maintaining oral health among the children with cerebral palsy – Parent/caregiver's perspective

Journal of Indian Society of Pedodontics and Preventive Dentistry, 2023
Background: Cerebral palsy (CP) is primarily a neuromotor disorder that affects the development of movement, muscle tone, and posture. Objective: This qualitative study explores the underlying barriers in maintaining oral health from the perspective of ...
Diana Constance, Rohini Subbiah, Aparna Sukumaran, Parangimalai Diwakar Madankumar   +3 more
doaj   +1 more source

Schools and parents [PDF]

, 2011
Between September 2009 and March 2010, Her Majesty’s Inspectors visited 47 schools to evaluate how effectively the partnership between parents and schools had developed.

core  

Parents' beliefs and knowledge about the management of acute otitis media: A qualitative study [PDF]

, 2015
BACKGROUND: Acute otitis media is a common reason for antibiotic prescribing, despite strong evidence that antibiotics provide minimal benefit. Studies have demonstrated that patients’ (or parents’) expectations of antibiotics often influence general ...
Del Mar, Chris, Hansen, Malene Plejdrup, Hoffmann, Tammy C., Howlett, Janine   +3 more
core   +2 more sources

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters, Ji Yun Tark, Tiffany M. Chambers, Tania A. Desrosiers, Michael E. Scheurer, Charles Shumate, Wendy N. Nembhard, Mahsa M. Yazdy, Eirini Nestoridi, Amanda E. Janitz, Jean Paul Tanner, Russell S. Kirby, Jason L. Salemi, Yao Yu, Chad D. Huff, Sharon E. Plon, Philip J. Lupo, Jeremy M. Schraw   +17 more
wiley   +1 more source

Teachers' opinions on the inclusion of children with Down syndrome in regular schools [PDF]

Specijalna Edukacija i Rehabilitacija
Introduction. Inclusive practices largely depend on teachers and their opinions about the educational inclusion of children with developmental disabilities.
Nikolić Milena M., Lozić Matea M.
doaj   +1 more source

Child's and parent's catastrophizing about pain is associated with procedural fear in children: a study in children with diabetes and their mothers [PDF]

, 2011
The contribution of the child's and parents' catastrophizing about pain was explored in explaining procedural pain and fear in children. Procedural fear and pain were investigated in 44 children with Type I diabetes undergoing a finger prick.
Crombez, Geert, Goubert, Liesbet, Matthys, Dirk, Van Aken, Sara, Vandenbossche, Heidi, Vervoort, Tine   +5 more
core   +2 more sources

Supporting Survivor‐Centered Care Through Digital Health Integration

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak, Rebecca Williamson‐Lewis, Michael O'Connor, Michael Palgon, Yu‐Ra Kim, Michael Schuckenbrock, Paula Edwards, Abraham Mendoza, Anthony Adams, Brian Arriaga‐Solis, Justin Parker, Harry Tinoco‐Giraldo, Jason King, C. Michael Fordis, Karen E. Effinger, Maria Monica Gramatges   +15 more
wiley   +1 more source

Patients’ and Caregivers’ Experiences Navigating the Burden of Atopic Dermatitis in Argentina

Medicina
Background and Objectives: Little is known about patients’ and caregivers’ experiences with atopic dermatitis (AD) in Argentina, so a survey was administered to learn more.
Korey Capozza, Michelle Tu, Alan Schwartz, Jodi L. Johnson, Mónica Ladner   +4 more
doaj   +1 more source

Parents' experiences of sharing neonatal information and decisions: Consent, cost and risk [PDF]

, 2005
This paper is about the care of babies with confirmed or potential neurological problems in neonatal intensive care units. Drawing on recent ethnographic research, the paper considers parents' experiences of sharing information and decisions with ...
Alderson, Priscilla, Hawthorne, Joanna, Killen, Margaret   +2 more
core   +2 more sources