Results 31 to 40 of about 445,655 (303)

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee   +9 more
wiley   +1 more source

Political participation and active citizenship in Spain: An analysis of youth, participatory culture and their social network​

open access: yesJournal of Social Work Education and Practice, 2023
The new socio-political and economic context sponsored by globalization, the revaluation of particular political interests, linked more with specific problems than with the great left and right ideologies of traditional political organizations and the ...
Patricia Castro
doaj  

Education Unleashed: Participatory Culture, Education, and Innovation in Second Life [PDF]

open access: yes, 2008
Part of the Volume on the Ecology of Games: Connecting Youth, Games, and LearningWhile virtual worlds share common technologies and audiences with games, they possess many unique characteristics. Particularly when compared to massively multiplayer online
Cory Ondrejka
core  

The challenges of participatory research with 'tech-savvy' youth [PDF]

open access: yes, 2010
This paper focuses on participatory research and how it can be understood and employed when researching children and youth. The aim of this paper is to provide a theoretically and empirically grounded discussion of participatory research methodologies ...
Giardina, Natasha   +2 more
core   +2 more sources

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek   +13 more
wiley   +1 more source

The phenomenon of fan creativity: the main directions of studies

open access: yesRUDN Journal of Studies in Literature and Journalism, 2020
The article considers the main directions of foreign and domestic studies of fan communities and fan creative production. The article synthesizes theoretical knowledge collected abroad.
Leila O. Algavi, Alina V. Kharchenko
doaj   +1 more source

Playing outside the box:transformative works and computer games as participatory culture [PDF]

open access: yes, 2013
The main purpose of this study is to examine the creative fan community as a paradigm of participatory culture, from a computer games perspective. A review of relevant literature is used to examine transformative works and the related subculture in its ...
Mavridou, Orion, Sloan, Robin J. S.
core   +2 more sources

Blinatumomab Utilization in Pediatric B‐Cell Acute Lymphoblastic Leukemia: Experience From the Mountain West

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Blinatumomab is a bispecific T‐cell engager approved for the treatment of pediatric B‐cell acute lymphoblastic leukemia (B‐ALL). Outpatient home infusion reduces hospitalization burden and optimizes resource utilization, but is logistically challenging.
Angela Parra del Riego   +10 more
wiley   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker   +11 more
wiley   +1 more source

Religious Culture in Mental Health Issues: An Advocacy for Participatory Partnership [PDF]

open access: yes, 2016
Religion constitutes an important element in every society as regards coping with the demands as well as vicissitudes of life. Mental health issues are becoming a recurrent decimal in societies overwhelmed by stress and other social factors.
Duke, Emmanuel Orok
core  

Home - About - Disclaimer - Privacy