Results 81 to 90 of about 2,878,616 (306)

The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement

Journal of Patient-Reported Outcomes
Background Patient and Public Involvement and Engagement (PPIE) is advocated in Patient Reported Outcome (PRO) research, but implementation remains inconsistent and often suboptimal.
Karen L. Shaw, Sarah E. Hughes, Olalekan L. Aiyegbusi, John Ansell, Evelyn Chakera, Ronjon Chakraverty, Mark Chatterley, Paul Ferguson, Foram Khatsuria, Rebecca Lloyd, Christel McMullan, J. Devin Peipert, Lester Pyatt, Vladyslava Yarosh, Melanie J. Calvert   +14 more
doaj   +1 more source

Patient information role in integrated health care

International Journal of Integrated Care, 2019
Background: Integrated patient-centered care is a call for fundamental shift in how health care services are delivered as it is believed to improve patient outcomes and experience. Patient-Reported Outcome Measures (PROMs) and Patient Reported Experience
José M Quintana, Maria João Forjaz, Itziar Vergara, Juan Manuel Ramos-Goñi, Noemí Robles, Antonio Sarría-Santamera   +5 more
doaj   +1 more source

Patient reported outcome and experience measures of oral disease in oral medicine [PDF]

, 2017
A recent meeting of health ministers from over 40 countries worldwide deemed that time and money should be spent on outcome and experience measures that would allow us to determine whether our health systems deliver outcomes that truly matter to patients.
Ni Riordain, R, Wiriyakijja, P
core   +1 more source

Preferences of Pediatric Patients and Their Caregivers for Chemotherapy‐Induced Nausea and Vomiting Control Endpoints: A Mixed Methods Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Although not always achieved, complete chemotherapy‐induced nausea and vomiting (CINV) control is the conventional goal of CINV prophylaxis. In this two‐center, mixed‐methods study, we sought to understand the preferences of adolescent patients and family caregivers for CINV control endpoints.
Haley Newman, Tadi Hondonga, Alison Berry, Caitlin Elgarten, Jason Freedman, Katelyn Oranges, Sara McDonough, Caroline Diorio, L. Lee Dupuis   +8 more
wiley   +1 more source

Systematic review of patient-reported outcome measures in patients with varicose veins. [PDF]

, 2017
BACKGROUND: Varicose veins can affect quality of life. Patient-reported outcome measures (PROMs) provide a direct report from the patient about the impact of the disease without interpretation from clinicians or anyone else.
Beebe-Dimmer, Brazier, Chen, Department of Health, Deyo, Digital, Evans, Fayers, Fitzpatrick, Food and Drug Administration, Francis, Garratt, Garratt, Garratt, Garratt, Guyatt, Guyatt, Kline, Lamping, Lattimer, Lattimer, Liberati, Maurins, McKenna, Michaels, Michaels, Mokkink, Morris, National Clinical Guideline Centre, Nijsten, Nunnally, Patrick, Paty, Poku, Shepherd, Terwee, What quality of life? The WHOQOL Group, Wright, Zimmerman   +38 more
core   +2 more sources

Intravitreal GD2‐Specific Chimeric Antigen Receptor T‐Cell Therapy for Refractory Retinoblastoma

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Effective treatments for advanced, treatment‐resistant retinoblastoma (RB) remain limited. GD2‐specific chimeric antigen receptor (CAR) T cells show potent antitumor activity with minimal toxicity but have not previously been evaluated in RB.
Subongkoch Subhadhirasakul, Jatuporn Sujjitjoon, Pa‐thai Yenchitsomanus, Kridtin Jarutatsanangkoon, Ng Wei Loon, Kleebsabai Sanpakit, Jassada Buaboonnam, Chayamon Takpradit, Pornpimon Yuti, Nunghathai Sawasdee, Piriya Luangwattananun, Siripakorn Sangkitporn, Arnan Limmahachai, La‐ongsri Atchaneeyasakul   +13 more
wiley   +1 more source

A qualitative reflexive thematic analysis of innovation and regulation in hearing health care

BMC Medicine
Background The hearing health sector is an example of a health sector that is experiencing a period of rapid innovation driven by digital technologies.
Isabelle Boisvert, Samantha Cruz Rivera, Jennifer Smith-Merry, Barbara Molony-Oates, Emily Kecman, Sarah E. Hughes   +5 more
doaj   +1 more source

Quality of life, symptoms and treatment satisfaction in patients with aortic aneurysm using new abdominal aortic aneurysm-specific patient-reported outcome measures. [PDF]

, 2016
BACKGROUND: The aim of this study was to present preliminary data on quality of life (QoL), symptoms and treatment satisfaction gathered using three new abdominal aortic aneurysm (AAA)-specific patient-reported outcome measures (PROMs). METHODS: Patients
Department of Health, Peach, Prinssen, Romaine, Simpson, Tu, Wanhainen, Ware   +7 more
core   +3 more sources

Patient-Reported Outcomes in Orthopaedics [PDF]

Journal of Bone and Joint Surgery, 2018
➤ Patient-reported outcomes (PROs) assess a patient’s perspective of health, function, and quality of life associated with health conditions and medical interventions.➤ Health-care value is the ratio of health outcomes achieved relative to the total cost of care for a medical condition.➤ Common PRO designs assess general ...
openaire   +2 more sources

Outcomes of Live Virus Vaccination in Patients With Vascular Anomalies Being Treated With Sirolimus

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Live vaccination in patients with vascular anomalies (VA) receiving sirolimus remains controversial due to immunosuppressive effects and theoretical risks. Procedure This single‐center retrospective study included patients with VA less than 4 years old at the start of sirolimus therapy who were incompletely vaccinated.
Svatava Merkle, Kiersten Ricci, Kelly Blache, Rebecca A. Marsh, Adrienne M. Hammill, Elissa Engel   +5 more
wiley   +1 more source