Results 71 to 80 of about 1,465,622 (305)

Uptake of pediatric patient-reported outcome and experience measures and challenges associated with their implementation in Alberta: a mixed-methods study

BMC Pediatrics, 2023
Background Implementing Patient-reported Outcome Measures (PROMs) and Patient-reported Experience Measures (PREMs) is an effective way to deliver patient- and family-centered care (PFCC).
Sumedh Bele, Sarah Rabi, Muning Zhang, Sadia Ahmed, Elizabeth Oddone Paolucci, David W. Johnson, Hude Quan, Maria J. Santana   +7 more
doaj   +1 more source

Pragmatic characteristics of patient-reported outcome measures are important for use in clinical practice [PDF]

, 2015
OBJECTIVES: Measures for assessing patient-reported outcomes (PROs) that may have initially been developed for research are increasingly being recommended for use in clinical practice as well.
Kean, Jacob, Kroenke, Kurt, Monahan, Patrick O.   +2 more
core   +2 more sources

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

Patient-reported outcome measures for asthma: a systematic review [PDF]

npj Primary Care Respiratory Medicine, 2014
Patient-reported outcome measures (PROMs) are measures of the outcome of treatment(s) reported directly by the patient or carer. There is increasing international policy interest in using these to assess the impact of clinical care.To identify suitably validated PROMs for asthma and examine their potential for use in clinical settings.We systematically
Worth, Allison, Hammersley, Victoria, Knibb, Rebecca, Flokstra-de-Blok, Bertine, DunnGalvin, Audrey, Walker, Samantha, Dubois, Anthony E J, Sheikh, Aziz   +7 more
openaire   +6 more sources

1000 Norms Project: Protocol of a cross-sectional study cataloging human variation [PDF]

, 2015
Background Clinical decision-making regarding diagnosis and management largely depends on comparison with healthy or ‘normal’ values. Physiotherapists and researchers therefore need access to robust patient-centred outcome measures and appropriate ...
Baldwin, Jennifer N., Burns, Joshua, Chard, Angus, Ferreira, Paulo, Fong Yan, Alycia, Hiller, Claire E., Hübscher, Markus, Mackey, Martin G., McKay, Marnee J., Moloney, Niamh A., Mousavi, Seyed J., Nicholson, Leslie L., Nightingale, Elizabeth J., on behalf of the 1000 Norms Project Consortium, Pourkazemi, Fereshteh, Quinlan, Kate G., Raymond, Jacqueline, Refshauge, Kathryn M., Rose, Kristy, Simic, Milena, Sman, Amy D., Vanicek, Natalie, Wegener, Caleb   +22 more
core   +2 more sources

Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles, Greg Russell, Leila H. DeWitt, Kimberly Montez, Callie L. Brown   +4 more
wiley   +1 more source

Integration of patient-reported outcome measures with key clinical outcomes after immediate latissimus dorsi breast reconstruction and adjuvant treatment

, 2013
Background: linical evidence on patient-reported outcome measures (PROMS) in breast reconstruction is lacking. The aim of this study was to evaluate PROMs in implant-assisted latissimus dorsi (LDI) or tissue-only autologous latissimus dorsi (ALD) flap ...
Balta, V, Benson, J, Betambeau, N, Haviland, J, Prospective Trial Management, Grp, Reece-Smith, A, Winters, Z. E   +6 more
core   +1 more source

Quality of life, symptoms and treatment satisfaction in patients with aortic aneurysm using new abdominal aortic aneurysm-specific patient-reported outcome measures. [PDF]

, 2016
BACKGROUND: The aim of this study was to present preliminary data on quality of life (QoL), symptoms and treatment satisfaction gathered using three new abdominal aortic aneurysm (AAA)-specific patient-reported outcome measures (PROMs). METHODS: Patients
Department of Health, Peach, Prinssen, Romaine, Simpson, Tu, Wanhainen, Ware   +7 more
core   +3 more sources

Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan, Lydie Da Costa, Ludivine David Nguyen, Heloise Chosseler, Audrey Riquet, Benedicte Bruno, Melissa Barbati   +6 more
wiley   +1 more source

Prioritising patient involvement in patient reported outcome measures– a PROMising way to improve headache care

The Journal of Headache and Pain
Background The optimal management of migraine involves care strategies that reflect what matters most to patients. This usually involves an assessment of treatment efficacy with respect to headache reduction, safety of prescribed medications and overall ...
Lakshini Gunasekera, Jason C. Ray, Neha Kaul, Helmut Butzkueven, Elspeth Hutton, Terence J. O’Brien   +5 more
doaj   +1 more source