Results 141 to 150 of about 2,582,753 (309)

Quality of Life and Patient Reported Outcomes in Paediatric Cardiac Surgery Patients [PDF]

Patient reported outcome measures (PROMS) are tools used to record outcomes that reflect patients’ or caregivers’ perspectives of the impact of the condition on their lives, including how illness is experienced.
Harky, A, Lotto, R, Lotto, AA
core   +1 more source

Mapping Childhood Cancer Care Services in Oceania: Methodological Lessons From the SIOP Global Mapping Programme

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The International Paediatric Oncology Society Global Mapping Programme aims to collect data on global paediatric oncology services by continent, with Africa and Latin America completed. This study reports on the methodology and lessons learned for Oceania, a unique continent with resource disparity across countries, multiple small island ...
Trisha Soosay Raj, Christy Noble, Amy Gray, Daniel C. Moreira, Jennifer Lowe, Maite Gorostegui, Gwenda Anga, Andrew Soma, Milena Lay Dos Santos, Siobhan Cross, Erin Luttrell, Michael Sullivan, Julie Cayrol, Julia Challinor, Neil Ranasinghe, Jordana McLoone, Claire E. Wakefield   +16 more
wiley   +1 more source

Patient-reported outcomes of ocriplasmin for the treatment of vitreomacular traction: a systematic review and synthesis of the literature [PDF]

, 2019
Benedicte Lescrauwaet,1 Koenraad Blot,2 Timothy L Jackson3 1Xintera, Outcomes Research, Ghent, Belgium; 2Xintera, Ghent, Belgium; 3Life Sciences and Medicine, King’s College London, Department of Ophthalmology, King’s College Hospital, London,
Lescrauwaet B, Jackson TL, Blot K
core  

Directrices para los protocolos de ensayos clínicos de intervenciones con inteligencia artificial: la extensión SPIRIT-AI*

Revista Panamericana de Salud Pública
La declaración SPIRIT 2013 tiene como objetivo mejorar la exhaustividad de los informes de los protocolos de los ensayos clínicos proporcionando recomendaciones basadas en la evidencia para el conjunto mínimo de elementos que deben abordarse.
Samantha Cruz Rivera, Xiaoxuan Liu, An-Wen Chan, Alastair K. Denniston, Melanie J. Calvert, Grupo de Trabajo SPIRIT-AI y CONSORT-AI, Grupo Directivo SPIRIT-AI y CONSORT-AI, Grupo de Consenso SPIRIT-AI y CONSORT-AI   +7 more
doaj   +1 more source

Development and Implementation of a Disease‐Targeted Storybook as a Clinical Tool for Children With Acute Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Although significant progress has been made in childhood leukemia survival, healthcare providers, and caregivers often face challenges in explaining this disease to patients. Disease‐targeted storybooks have been proposed as a tool to facilitate the understanding of diagnoses and treatment.
Nutvipha Ummartyotin, Usanarat Anurathapan, Rawiwan Roongpraiwan, Potchanee Dandamrongrak, Siriporn Nakhonchai, Pawin Numthavaj, Vilawan Chirdkiatgumchai   +6 more
wiley   +1 more source

Patient-reported outcomes in pancreatic islet transplantation : a systematic review [PDF]

, 2009
Patient-reported outcomes in pancreatic islet transplantation : a systematic ...
J Shaw (7798793), R Smith (7738349), A Woodcock (13712029), J Speight (7755977), M Reaney (13605682)   +4 more
core  

Switching treatment to cipaglucosidase alfa plus miglustat positively affects patient-reported outcome measures in patients with late-onset Pompe disease [PDF]

Background: Late-onset Pompe disease (LOPD), a rare autosomal recessive multisystemic disorder, substantially impacts patients' day-to-day activities, outcomes, and health-related quality of life (HRQoL).
Diaz-Manera, Jordi, Butler, Ernest, Hummel, Noemi, Hiwot, Tarekegn, Attarian, Shahram, Akihiro, Hashiguchi, Laszlo, Vescei, Kim, Gee, Roxburgh, Richard, Tchan, Michel, on behalf of the PROPEL Study Group, Papadimas, George Konstantinos, Henderson, Robert, Stefanescu, Ela, Lau, Heather, Amartino, Hernán, Hughes, Derralynn, Lindberg, Christopher, Bodkin, Cynthia, Tard, Celine, Byrne, Barry J., Shohet, Simon, Freimer, Miriam, Löscher, Wolfgang, Hopkin, Robert, Reyes-Leiva, David, Pedro, Helio, Avelar, Jennifer, Musumeci, Olimpia, Vidal-Fernandez, Nuria, Parenti, Giancarlo, Cauci, Jonathan, Molnar, Maria Judit, Sebok, Agnes, Khan, Aneal, Tarnopolsky, Mark, Shiraishi, Hideaki, Andersen, Henning, Toscano, Antonio, Wencel, Marie, Shin, Jin-Hong, Dearmey, Stephanie, Kobayashi, Hiroshi, Kornblum, Cornelia, Bartosik-Psujek, Halina, Wenninger, Stephan, Janszky, Jozsef, Schoser, Benedikt, Dominovic-Kovacevic, Aleksandra, Kushlaf, Hani, Fecarotta, Simona, Alonso-Pérez, Jorge, Quinn, Colin, Ruck, Tobias, Burrow, Thomas, Kishnani, Priya S., Vengoechea, Jaime, Mozaffar, Tahseen, Claeys, Kristl, Clemens, Paula R, Roberts, Mark, Deegan, Patrick, Bouhour, Francoise, Koritnik, Blaž, Pestronk, Alan, Gutschmidt, Kristina, Kopiec, Agnieszka, Sawada, Tomo, Salort-Campana, Emmanuelle, Eldridge, Crystal, Claeys, Kristl G., Chien, Yin-Hsiu, Holdbrook, Fred, Longo, Nicola, Goker-Alpan, Ozlem, Sacconi, Sabrina, Universitat Autònoma de Barcelona, Dimachkie, Mazen M., Tarnev, Ivaylo, Berthy, Julie, Clemens, Paula R.   +80 more
core   +1 more source

Animal‐Assisted Activities With Therapy Dogs in Pediatric Oncology: A Multicenter Survey of the Current Status, Implementation, and Challenges in Germany, Austria, and Switzerland

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Animal‐assisted activities (AAAs) with therapy dogs have shown positive effects on patient well‐being and quality of life in various areas of medicine, including pediatric oncology. However, research on this topic is limited. The aim of this study is to present the current status of AAA in pediatric oncology in Germany, Austria, and
Jan‐Marius Wedig, Birgit Burkhardt, Christof M. Kramm, Kira Ostermann, Sarah C. Goretzki, Uta Dirksen, Nico Kurpiers, Michael M. Schündeln   +7 more
wiley   +1 more source

Optimising patient centred drug development to realise impact

Communications Medicine
Patient-reported outcomes can provide valuable evidence on the efficacy and tolerability of treatments throughout the drug development pipeline supporting regulatory decision-making, reimbursement and patient-centred care. Use of international guidelines
Melanie Calvert, Paul Kamudoni, Christina Yap, Claire Snyder, Roger Wilson, Olalekan Lee Aiyegbusi   +5 more
doaj   +1 more source

On Hierarchical Composite Endpoints in Pediatric Cancer Supportive Care: Illustrative Examples From Two Multi‐Center Phase‐III Randomized Clinical Trials

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric supportive care clinical trials often involve multiple clinically important outcomes, complicating trial interpretation. Hierarchical composite endpoints (HCEs) provide a framework to integrate key outcomes according to clinical importance.
Willem H. Collier, Mark Zobeck, Adam J. Esbenshade, Christopher C. Dvorak, Lillian Sung, David Freyer, Sarah Alexander, Etan Orgel, Nicole J. Ullrich, Zach Prudowsky, Brian Fisher, Caitlin W. Elgarten   +11 more
wiley   +1 more source