Results 11 to 20 of about 6,836,441 (345)

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Nature Communications, 2022
The collection of patient-reported outcomes (PROs) may capture patients’ assessments of their health status. Here authors highlight PRO-specific issues that should be considered to minimise respondent burden in clinical trials and routine care.
Olalekan Lee Aiyegbusi, Jessica Roydhouse, Samantha Cruz Rivera, Paul Kamudoni, Peter Schache, Roger Wilson, Richard Stephens, Melanie Calvert   +7 more
doaj   +1 more source

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

BMJ Open, 2021
Objectives (a) To adapt the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT)-patient-reported outcome (PRO) Extension guidance to a user-friendly format for patient partners and (b) to codesign a web-based tool to support the ...
Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden   +13 more
doaj   +1 more source

Patient-Reported Outcomes of Treatment of Opioid Dependence With Weekly and Monthly Subcutaneous Depot vs Daily Sublingual Buprenorphine

JAMA Network Open, 2021
Key Points Question Are patient-reported outcomes, such as treatment satisfaction with medication, higher among patients treated with weekly and monthly subcutaneous buprenorphine depot formulations vs daily sublingual buprenorphine?
N. Lintzeris, A. Dunlop, P. Haber, D. Lubman, Robert Graham, Sarah Hutchinson, Shalini Arunogiri, Victoria Hayes, P. Hjelmström, A. Svedberg, S. Peterson, F. Tiberg   +11 more
semanticscholar   +1 more source

Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

Health and Quality of Life Outcomes, 2020
Background Rare diseases may be life-threatening or chronically debilitating conditions. Patient care needs are often complex and challenging to coordinate and deliver effectively.
Olalekan Lee Aiyegbusi, Fatima Isa, Derek Kyte, Tanya Pankhurst, Larissa Kerecuk, James Ferguson, Graham Lipkin, Melanie Calvert   +7 more
doaj   +1 more source

Co-production of a feasibility trial of pacing interventions for Long COVID

Research Involvement and Engagement, 2023
Plain English summary The World Health Organisation defines Long COVID as a condition which impacts people 3 months after they first had COVID-19. Some of the symptoms that characterise Long COVID symptoms include fatigue, breathlessness and brain fog ...
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert   +12 more
doaj   +1 more source

Patient-Reported Outcome Measures in Endometriosis [PDF]

Journal of Clinical Medicine, 2021
Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice can facilitate patient-provider communication and the ...
Nicolas-Boluda, Alba, Oppenheimer, Anne, Bouaziz, Jerome, Fauconnier, Arnaud   +3 more
openaire   +4 more sources

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment

Journal of Patient-Reported Outcomes, 2020
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for
Leanne Shearsmith, Fiona Kennedy, Oana C. Lindner, Galina Velikova   +3 more
doaj   +1 more source

Patient-Reported Outcomes in Orthopaedics [PDF]

Journal of Bone and Joint Surgery, 2018
➤ Patient-reported outcomes (PROs) assess a patient’s perspective of health, function, and quality of life associated with health conditions and medical interventions.➤ Health-care value is the ratio of health outcomes achieved relative to the total cost of care for a medical condition.➤ Common PRO designs assess general ...
Jonathan F. Dickens, Stephen A. Parada, Brett D. Owens, Jeanne C. Patzkowski, Scott M. Tintle, Kenneth L. Cameron, Lucas S. McDonald, Brett A. Freedman, Kevin Wilson, Matthew Posner, Patrick W. Joyner, Jaime L. Bellamy, Kevin Martin, Matthew R. Schmitz, Jeremy R. McCallum, Karon F. Cook, Tobin T. Eckel, Benjamin K. Potter, Mark Pallis, Dionisio Ortiz, Kelly G. Kilcoyne, Robert A. Waltz, Brian R. Waterman, Daniel J. Stinner, Melvin D. Helgeson, Daniel L. Christensen, Ivan J Antosh, Xinning Li, Timothy C. Mauntel, Daniel J. Song, Josef K. Eichinger, Matthew T. Provencher, Christopher J. Tucker, E’Stephan J. Garcia, Mark A. Slabaugh, Jessica C. Rivera, Nan E. Rothrock, R. Judd Robins, Chad A. Krueger, Daniel G. Kang, Lance E. LeClere, John M. Tokish   +41 more
openaire   +3 more sources

Patient-Reported Outcomes and Fibromyalgia [PDF]

Rheumatic Disease Clinics of North America, 2016
Fibromyalgia (FM) is classified as a chronic pain condition accompanied by symptoms of fatigue, sleep problems, problems with cognition, negative mood, limited functional status, and the presence of other chronic overlapping pain conditions. Comprehensive assessment of all of these components can be challenging.
David A. Williams, Anna L. Kratz
openaire   +3 more sources

Patient-reported outcomes in schizophrenia [PDF]

British Journal of Psychiatry, 2007
BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire   +4 more sources