Results 11 to 20 of about 3,128,729 (335)

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Nature Communications, 2022
The collection of patient-reported outcomes (PROs) may capture patients’ assessments of their health status. Here authors highlight PRO-specific issues that should be considered to minimise respondent burden in clinical trials and routine care.
Olalekan Lee Aiyegbusi, Jessica Roydhouse, Samantha Cruz Rivera, Paul Kamudoni, Peter Schache, Roger Wilson, Richard Stephens, Melanie Calvert   +7 more
doaj   +1 more source

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

BMJ Open, 2021
Objectives (a) To adapt the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT)-patient-reported outcome (PRO) Extension guidance to a user-friendly format for patient partners and (b) to codesign a web-based tool to support the ...
Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden   +13 more
doaj   +1 more source

Co-production of a feasibility trial of pacing interventions for Long COVID

Research Involvement and Engagement, 2023
Plain English summary The World Health Organisation defines Long COVID as a condition which impacts people 3 months after they first had COVID-19. Some of the symptoms that characterise Long COVID symptoms include fatigue, breathlessness and brain fog ...
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert   +12 more
doaj   +1 more source

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment

Journal of Patient-Reported Outcomes, 2020
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for
Leanne Shearsmith, Fiona Kennedy, Oana C. Lindner, Galina Velikova   +3 more
doaj   +1 more source

Integrating Patient-Reported Outcomes

Value in Health, 2004
This paper discusses the relations between different types of patient-reported outcomes that may be collected in clinical studies. Two models are presented that argue that there is a linear relation between the different outcomes. When needs-based quality of life (QoL) is incorporated into the model it is proposed that a two-dimensional relation is ...
McKenna, Stephen P., Doward, Lynda C.
openaire   +2 more sources

Defining Patient-Reported Outcomes

Value in Health, 2004
This paper considers and defines the different types of patient-reported outcomes that can be collected in clinical studies. In particular, it argues that quality of life (QoL) is a distinctly different type of outcome from Health-Related Quality of Life (HRQL).
Doward, Lynda C., McKenna, Stephen P.
openaire   +2 more sources

Patient-reported outcome measurement [PDF]

Journal of the Royal Society of Medicine, 2010
Alan Maynard and Karen Bloor1 raise interesting questions, particularly in relation to breast cancer. One issue is that treatment-related toxicities may not become problematic for several years, particularly when radiotherapy is administered. Research so far seems to indicate that hypofractionation causes more long-term problems than hyperfractionation,
openaire   +2 more sources

Patient-reported outcomes of periacetabular osteotomy from the prospective ANCHOR cohort study [PDF]

, 2017
BACKGROUND: Current literature describing the periacetabular osteotomy (PAO) is mostly limited to retrospective case series. Larger, prospective cohort studies are needed to provide better clinical evidence regarding this procedure.
Amstutz, Beck, Bellamy, Biedermann, Clavien, Clohisy, Clohisy, Clohisy, Clohisy, Clohisy, Daniel J. Sucato, David A. Podeszwa, Dindo, Duncan, Ernest L. Sink, Ganz, Geneva Baca, Harris, Hartig-Andreasen, Ira Zaltz, Jack Baty, Jeffrey Ackerman, John C. Clohisy, Lequesne, Matheney, Matta, McKinley, Michael B. Millis, Murphy, Nepple, Nilsdotter, Ninomiya, Paul E. Beaulé, Perry L. Schoenecker, Peters, Rafael J. Sierra, Robert T. Trousdale, Robertson, Salter, Siebenrock, Sink, Sink, Steel, Steppacher, Steppacher, Sugano, Troelsen, Tönnis, Tönnis, Wiberg, Yasunaga, Young-Jo Kim, Zaltz, Ziebarth   +53 more
core   +2 more sources

Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease

Journal of Patient-Reported Outcomes, 2020
Background Effective management of patients with chronic kidney disease (CKD) relies on timely detection of clinical deterioration towards end stage kidney failure.
Derek Kyte, Nicola Anderson, Ram Auti, Olalekan Lee Aiyegbusi, Jon Bishop, Andrew Bissell, Elizabeth Brettell, Melanie Calvert, Marie Chadburn, Paul Cockwell, Mary Dutton, Helen Eddington, Elliot Forster, Gabby Hadley, Natalie J. Ives, Louise Jackson, Sonja O’Brien, Gary Price, Keeley Sharpe, Stephanie Stringer, Gael Stephenson, Rav Verdi, Judi Waters, Adrian Wilcockson, Jim Williams   +24 more
doaj   +1 more source

Outcomes of Physicians' Communication Goals During Patient Interactions. [PDF]

, 2021
During healthcare visits, physicians may set communication goals such as providing their patient with information about treatment; however, no recommendations exist regarding which goals physicians should prioritize during their often-brief interactions ...
Andrews, Sara E, Howell, Jennifer L, Hua, Jacqueline, Sweeny, Kate   +3 more
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