Interactions Between Pharmaceutical Companies and Patient Advocacy Groups in Japan: A Qualitative and Quantitative Interview Study. [PDF]
Kikuchi A +6 more
europepmc +1 more source
Commentary on Patient Advocacy and Research Priorities in Olfactory and Gustatory Disorders. [PDF]
Garden EM +4 more
europepmc +1 more source
North American Delphi Consensus Study on Sinonasal Malignancy Survivorship Care
ABSTRACT Background Survival for patients with sinonasal cancers has improved over the past decades, but there are no dedicated survivorship guidelines for this cohort. Objective To understand experts’ priorities and perspectives on key survivorship tenets (surveillance, second tumor screening, toxicity, and symptom management).
Matheus Sewastjanow‐Silva +18 more
wiley +1 more source
"We are champions": an investigation on how cancer support group propels patient advocacy, voices, education, mentorship, and support. [PDF]
Chidebe RCW +12 more
europepmc +1 more source
Medical Product Industry Ties to Patient Advocacy Organizations' Executive Leadership.
Bhat S, Ross JS, Ramachandran R.
europepmc +1 more source
Patient advocacy: an antidote to loneliness and more. [PDF]
Walker S.
europepmc +1 more source
ABSTRACT Background Sinus and skull base surgery create areas of demucosalized bone and cartilage in the sinonasal cavity, yet no standardized system exists to describe the progressive healing of these wounds. The goal of this study was to develop the novel Sinonasal Assessment of Reepithelialization (SNARE) and perform parametric testing including ...
Rohan Bellary +20 more
wiley +1 more source
Factors Associated with Time to Sarcoma Diagnosis: Results from a Global Cross-Sectional Survey by the Sarcoma Patient Advocacy Global Network (SPAGN). [PDF]
Loidl V +9 more
europepmc +1 more source
Effects of an Inpatient Program on Medication Errors in Hospitalized People with Parkinson's Disease
Objective Hospitalized people with Parkinson's disease (PwP) face increased risks of medication errors and discharge to non‐home settings, both of which are associated with adverse outcomes. This study assessed differences in medication error rates and discharge outcomes before and after implementation of a dedicated inpatient program for hospitalized ...
Camila C. Piccinin +15 more
wiley +1 more source
Patient‐led research and Advocacy Efforts
Argerie Tsimicalis +4 more
doaj +1 more source

