Challenges and opportunities in NMIBC management across Latin America: insights from healthcare providers and a patient advocacy group. [PDF]
McCully M, Lipkis J, Heller A, Huñis A.
europepmc +1 more source
Abstract The addition of a lateral extra‐articular reinforcement to anterior cruciate ligament reconstruction has been shown to enhance rotational stability and protect the intra‐articular graft. Although several techniques using the iliotibial band have been described, most rely on fixation devices that increase surgical cost and complexity.
José Leonardo Rocha de Faria +10 more
wiley +1 more source
Perspectives of European Patient Advocacy Groups on Volunteer Registries and Vaccine Trials: VACCELERATE Survey Study. [PDF]
Themistocleous S +36 more
europepmc +1 more source
Abstract The purpose of this technical note is to describe a reproducible surgical technique for anterior cruciate ligament reconstruction combined with a lateral tenodesis using a continuous iliotibial band autograft that allows self‐augmentation of graft diameter without the need for additional tendon harvesting.
Gregoire Zerr +3 more
wiley +1 more source
Patient perspectives on BCMA-targeted therapies for multiple myeloma: a survey conducted in a patient advocacy group. [PDF]
Hydren JR +11 more
europepmc +1 more source
Cost–benefit analysis of screening programme for diabetic retinopathy in Bulgaria
Aims Late‐diagnosed diabetic retinopathy (DR) is difficult and expensive to treat. Screening programmes can identify the disease early and reduce the costs of its future treatment. This study aims to analyse the cost–benefit of screening programmes for DR.
Iva Nenkova +5 more
wiley +1 more source
Enhancing and leveraging principal investigator and patient advocacy group collaboration in rare disease clinical research-meeting report from the rare Diseases Clinical Research Network. [PDF]
Wheeden K +6 more
europepmc +1 more source
How the HTAR will contribute to a value‐based decision‐making for medicinal products across the EU
The European Union Health Technology Regulation 2021/2282 (HTAR) introduces joint assessment of health technologies (including medicinal products and medical devices) across EU Member States. It was signed into law in 2021 and came into full force in January 2025.
Roisin Adams, Michal Stanak
wiley +1 more source
Abstract Despite regulatory progress being made in the past two decades, off‐label drug use in paediatrics remains pervasive, with prevalence estimated between 3% and 97% of prescriptions across different clinical settings. Off‐label use—defined as prescribing outside the conditions described in the Summary of Product Characteristics (SmPC)—is often ...
Tjitske M. van der Zanden +3 more
wiley +1 more source

