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Lived Experience and Patient Advocacy Module: Curriculum and Faculty Guide
Introduction Medical teachers frequently tell learners how some of the greatest challenges in clinical care are not associated with the scientific details of biomedicine but are instead related to patient interactions and the human dimensions of illness ...
Laurie Gerber +2 more
doaj +1 more source
Tumor B‐cell infiltration in platinum‐treated advanced muscle‐invasive urothelial carcinoma
Bladder tumors with higher pretreatment memory B‐cell infiltration were linked to longer survival after cisplatin chemotherapy, but not carboplatin. These tumors also showed more organized immune structures (tertiary lymphoid structures) and a shared pro‐inflammatory B‐cell‐rich community, suggesting that memory B cells may help identify patients most ...
Konrad Stawiski +10 more
wiley +1 more source
SC DMH patient advocacy report October 2022 [PDF]
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health, Client Advocacy Office
core
Why human connection is the true metric of research success
Human‐centred mentorship can be shaped by mentor attributes, actions, intrinsic drive and career ambition. Drawing on reflections across Singapore and France, as well as workshop insights from FEBS‐IUBMB ENABLE 2024, this article shows that human‐centred mentorship creates the conditions for sustainable growth, well‐being and retention in research ...
Timothy Lin Yun Tan +3 more
wiley +1 more source
Resource utilization and multidisciplinary care needs for patients with Ehlers–Danlos syndrome
Background Ehlers–Danlos syndrome (EDS) represents a family of heritable connective tissue disorders with overlapping phenotypic features, frequently including joint hypermobility, tissue fragility, and skin hyperextensibility.
Jordan T. Jones +3 more
doaj +1 more source
SC DMH patient advocacy report November 2020 [PDF]
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health. Client Advocacy Office
core
SC DMH patient advocacy report November 2022 [PDF]
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health, Client Advocacy Office
core
Vestibular Patient Journey: Insights From Vestibular Disorders Association (VeDA) Registry
ABSTRACT Objective Vestibular symptoms impose a high burden of disability. Understanding real‐world diagnostic and treatment pathways can identify care gaps and guide interventions. We aimed to characterize symptom profiles, diagnostic trends, provider involvement, and treatment patterns in vestibular disorders.
Ali Rafati +10 more
wiley +1 more source
Background Rare diseases are a global public health concern, affecting an estimated 350 million individuals. Only 5% of approximately 7000 known rare diseases have a treatment, and only about half have a patient advocacy organization.
Susan Stein +8 more
doaj +1 more source
SC DMH patient advocacy report March 2023 [PDF]
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health, Client Advocacy Office
core

