Results 41 to 50 of about 88,411 (306)

SC DMH patient advocacy report December 2020 [PDF]

, 2021
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health. Office of Patient Advocacy, South Carolina State Department of Mental Health, Client Advocacy Office, South Carolina State Department of Mental Health. Client Advocacy Office   +2 more
core  

Patients' advocacy: the development of a service at the State Hospital, Carstairs, Scotland [PDF]

, 2001
Advocacy is part of the process of empowering patients and involving them in the development of services. This paper describes the development of an advocacy service in the State Hospital at Carstairs and explores the issues involved in advocacy in a ...
Atkinson, J.M., MacPherson, K.
core   +1 more source

From observation to action: a qualitative interview study of factors that influence the reporting of observations of unprofessional conduct in healthcare settings

BMJ Open Quality
Background Unprofessional behaviour in healthcare settings can undermine patient safety, erode team morale, and if not addressed, negatively impact organisational culture.
William Martinez, Gerald B Hickson, William O Cooper, Lynn E Webb, Michelle Troyer, Nicolette M Kostiw   +5 more
doaj   +1 more source

A survey of caregiver burden in those providing informal care for patients with schizophrenia or bipolar disorder with agitation: results from a European study

Annals of General Psychiatry, 2018
Background Agitation is a common feature of bipolar disorder and schizophrenia. Previous research indicates that specific symptoms impact caregiver burden in these conditions, but the impact of agitation on caregiver experience is poorly understood.
Sophee Blanthorn-Hazell, Alfredo Gracia, Jenna Roberts, Anca Boldeanu, Davneet Judge   +4 more
doaj   +1 more source

Characterizing the experience of agitation in patients with bipolar disorder and schizophrenia

BMC Psychiatry, 2018
Background Agitation is a common manifestation of bipolar disorder and schizophrenia which includes symptoms ranging from inner tension and unease to violence and aggression.
Jenna Roberts, Alfredo Gracia Canales, Sophee Blanthorn-Hazell, Anca Craciun Boldeanu, Davneet Judge   +4 more
doaj   +1 more source

US, EU, and Japanese Regulatory Guidelines for Development of Drugs for Treatment of Alzheimer’s Disease: Implications for Global Drug Development

Clinical and Translational Science, 2020
Drug development guidelines from regulatory authorities provide important information to sponsors on requirements for clinical evidence needed to support approval of new drugs.
Anne Vinther Morant, Henrik Tang Vestergaard, Anders Blædel Lassen, Vaidrius Navikas   +3 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Results of a patient engagement training for health advisors: a study of self-perceived competency enhancements

Research Involvement and Engagement
Background In recent years, there has been increasing recognition of the importance of patient engagement (PE) in the healthcare industry, especially throughout the product development lifecycle.
Eduardo Perez-Guagnelli, Nicole Jardine, Amye Leong, Chris Rao, Michael Cohen, Annabel De Maria   +5 more
doaj   +1 more source

Methodological study protocol for The European Atlas of clinical trials in cancer and haematology

Frontiers in Pharmacology
IntroductionInequalities in access to clinical trials in cancer, haematology and rare diseases, along with the inconsistent incorporation and reporting of patient reported outcome measures (PROMs) are a long-addressed issue by patient communities.
Mercè Cases, Rachel Giles, Tamás Ágh, Maria Piggin, Jan Geissler, Jan Geissler, Monica Racovita, Judit Hagymásy, Lora Ruth Wogu, Ákos Józwiak, Albina Hyseni-Bocolli, Dalma Hosszú, Dalma Hosszú, Ananda Plate, Ananda Plate, EuroACT Working Group   +15 more
doaj   +1 more source

Patient Advocacy in Research [PDF]

The Patient: Patient-Centered Outcomes Research, 2011
In 20 years of breast cancer advocacy, I’ve witnessed major changes in attitude toward advocates on the part of basic researchers, clinical investigators, and others involved with the science of the disease. Not so long ago, even a seat at the table — much less a vote — was hard to come by.
openaire   +2 more sources