Results 31 to 40 of about 3,361,739 (291)

SC DMH patient advocacy report December 2018 [PDF]

, 2018
The Office of Patient Advocacy at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Office of Patient ...
South Carolina State Department of Mental Health, Office of Patient Advocacy
core   +1 more source

Impact of progressive familial intrahepatic cholestasis on caregivers: caregiver-reported outcomes from the multinational PICTURE study

Orphanet Journal of Rare Diseases, 2022
Background Progressive familial intrahepatic cholestasis (PFIC) is a spectrum of rare genetic diseases characterized by inadequate bile secretion that requires substantial ongoing care, though little research is published in this area.
Claudia Mighiu, Sonia O’Hara, Enrico Ferri Grazzi, Karen F. Murray, Jörn M. Schattenberg, Emily Ventura, Melanie Karakaidos, Alison Taylor, Harpreet Brrang, Anil Dhawan, Jose Willemse, Alan Finnegan   +11 more
doaj   +1 more source

Patients' advocacy: the development of a service at the State Hospital, Carstairs, Scotland [PDF]

, 2001
Advocacy is part of the process of empowering patients and involving them in the development of services. This paper describes the development of an advocacy service in the State Hospital at Carstairs and explores the issues involved in advocacy in a ...
Atkinson, J.M., MacPherson, K.
core   +1 more source

SC DMH patient advocacy report December 2020 [PDF]

, 2021
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health. Office of Patient Advocacy, South Carolina State Department of Mental Health, Client Advocacy Office, South Carolina State Department of Mental Health. Client Advocacy Office   +2 more
core  

Patient Experience Journal Awards: Celebrating our 2019 Recipients [PDF]

, 2020
In association with The Beryl Institute, Patient Experience Journal introduced the inaugural Patient Experience Journal (PXJ) Awards. The annual awards celebrate important contributions to the literature and articles of impact in research and practice ...
Journal, Patient Experience, Patient Experience Journal   +1 more
core   +1 more source

From observation to action: a qualitative interview study of factors that influence the reporting of observations of unprofessional conduct in healthcare settings

BMJ Open Quality
Background Unprofessional behaviour in healthcare settings can undermine patient safety, erode team morale, and if not addressed, negatively impact organisational culture.
William Martinez, Gerald B Hickson, William O Cooper, Lynn E Webb, Michelle Troyer, Nicolette M Kostiw   +5 more
doaj   +1 more source

A survey of caregiver burden in those providing informal care for patients with schizophrenia or bipolar disorder with agitation: results from a European study

Annals of General Psychiatry, 2018
Background Agitation is a common feature of bipolar disorder and schizophrenia. Previous research indicates that specific symptoms impact caregiver burden in these conditions, but the impact of agitation on caregiver experience is poorly understood.
Sophee Blanthorn-Hazell, Alfredo Gracia, Jenna Roberts, Anca Boldeanu, Davneet Judge   +4 more
doaj   +1 more source

Evidence‐Based Clinical Practice Guidelines for the Management of Pediatric Febrile Neutropenia: Resource‐Sensitive Recommendations for the Asian Continent

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Febrile neutropenia (FN) is a frequent and serious complication in children receiving cancer therapy. Standardizing FN management across Asia is challenging due to variable healthcare infrastructure, diagnostic capacity, and infection patterns; however, it could improve resource use and patient outcomes.
Joliza Patricia Cañeba, Shweta Bansal, Tea Reljic, Allyne Montecillo‐Aguelo, Hamidah Alias, Farrah Amaranto, Maria Stella Aquino‐Calingasan, Bambang Ardianto, Eggi Arguni, Sally Blair, Thi Tam Dang, Maria Beatriz Gepte, Samanmalee Gunasekara, Andini Handayani, Miriam Kimpo, Catherine G. Lam, Nawachai Lertvivatpong, Sergio Licona, Ana Loseo, Ratha Mlis, Vivian Moreno Berrio, Nguyen Hoai Anh, Anna Lisa Ong‐Lim, Ha Thu Pham, Krishna Sagar Sharma, Bun Sereyleak, Sally Jane G. Velasco‐Aro, Su Yadana, Ambuj Kumar, Sheena Mukkada   +29 more
wiley   +1 more source

Results of a patient engagement training for health advisors: a study of self-perceived competency enhancements

Research Involvement and Engagement
Background In recent years, there has been increasing recognition of the importance of patient engagement (PE) in the healthcare industry, especially throughout the product development lifecycle.
Eduardo Perez-Guagnelli, Nicole Jardine, Amye Leong, Chris Rao, Michael Cohen, Annabel De Maria   +5 more
doaj   +1 more source

Methodological study protocol for The European Atlas of clinical trials in cancer and haematology

Frontiers in Pharmacology
IntroductionInequalities in access to clinical trials in cancer, haematology and rare diseases, along with the inconsistent incorporation and reporting of patient reported outcome measures (PROMs) are a long-addressed issue by patient communities.
Mercè Cases, Rachel Giles, Tamás Ágh, Maria Piggin, Jan Geissler, Jan Geissler, Monica Racovita, Judit Hagymásy, Lora Ruth Wogu, Ákos Józwiak, Albina Hyseni-Bocolli, Dalma Hosszú, Dalma Hosszú, Ananda Plate, Ananda Plate, EuroACT Working Group   +15 more
doaj   +1 more source