Results 11 to 20 of about 273,377 (304)

Patient advocacy: barriers and facilitators [PDF]

BMC Nursing, 2006
Abstract Background During the two recent decades, advocacy has been a topic of much debate in the nursing profession. Although advocacy has embraced a crucial role for nurses, its extent is often limited in practice.
Nikravesh Mansoure, Ahmadi Fazlollah, Oskouie Fatemeh, Negarandeh Reza, Hallberg Ingalill   +4 more
openaire   +4 more sources

Local patient-centered headache advocacy with regional and global impact: lessons from the Japanese Patient Advocacy Coalition (JPAC). [PDF]

J Headache Pain
Migraine is a leading cause of disability worldwide, particularly among working-age individuals. In Japan, its prevalence is 8.4%; however, migraine remains underdiagnosed and undertreated.
Danno D, Yamanaka E, Tabata K, Kikui S, Chu MK, Begasse de Dhaem O, Hirata K, Sakai F, Takeshima T.   +8 more
europepmc   +2 more sources

Unlocking sociocultural and community factors for the global adoption of genomic medicine

Orphanet Journal of Rare Diseases, 2022
Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak, Nicola Bedlington, Ayesha Gadson, Alastair Kent, Aiedah Abdul Khalek, Luke Rosen, Malisa Rust, Mohd. Farooq Shaikh, Meng Yoe Tan, Samuel Agyei Wiafe, Gareth Baynam, Charles A. Steward   +11 more
doaj   +1 more source

SPAN@DEM (SingHealth Patient Advocacy Network @ Department of Emergency Medicine)-A Pioneer in Emergency Department-Specific Patient Advocacy: Development Study. [PDF]

J Particip Med
BackgroundLaunched in January 2022, the SingHealth Patient Advocacy Network at the Department of Emergency Medicine (SPAN@DEM) represents the first emergency department-specific advocacy group in Singapore. This initiative marks a significant advancement
Ng M, Liu Z, Pillay M, Chang SM, Tan BKK.   +4 more
europepmc   +2 more sources

Setting the international research agenda for sarcomas with patients and carers: results of phase II of the Sarcoma Patient Advocacy Global Network (SPAGN) priority setting partnership. [PDF]

BMC Cancer
Background Typically, researchers and clinicians determine the agenda in sarcoma research. However, patient involvement can have a meaningful impact on research.
Roets E, Schuster K, Bickley S, Wartenberg M, Gonzato O, Fernandez N, Kasper B, Pilgermann K, Wilson R, Steeghs N, van der Graaf WTA, van Oortmerssen G, Husson O.   +12 more
europepmc   +2 more sources

Baseline Survey of knowledge, attitude and practice of healthcare ethics, in healthcare practitioners of a tertiary healthcare institution in Ghana, a Sub-Saharan Country

Bangladesh Journal of Bioethics, 2023
Knowledge, attitude and practice (KAP) on healthcare professional's (HCP) ethical practice have been studied extensively in countries with developed economies.
Albert M. E. Coleman
doaj   +1 more source

EGFR Mutations Are Not All the Same: the Importance of Biomarker Testing in Non-small Cell Lung Cancer (NSCLC)—A Podcast Discussion Between Patients and Oncologists

Oncology and Therapy, 2023
This podcast, for healthcare professionals (HCPs), patients, and patient advocates, is a discussion among a panel of two patients (and co-founders of the patient advocacy group EGFR Resisters, https://egfrcancer.org/ ) and two oncologists.
Stephen V. Liu, Ivy B. Elkins, Jill Feldman, Sarah B. Goldberg   +3 more
doaj   +1 more source

Preliminary evaluation of the online course “I Care” targeting eating disorder knowledge and attitudes among sports coaches and fitness instructors

Journal of Eating Disorders, 2022
Plain English summary Fitness instructors, coaches and trainers are often looked up to within their sporting community. They are also likely to meet individuals at risk for developing eating disorders, since excessive or compulsive exercise is a common ...
Sofia Selenius, Andreas Birgegård, Emma Forsén Mantilla   +2 more
doaj   +1 more source

The Impact of COVID Vaccination on Symptoms of Long COVID: An International Survey of People with Lived Experience of Long COVID

Vaccines, 2022
Long COVID is a multi-system syndrome following SARS-CoV-2 infection with persistent symptoms of at least 4 weeks, and frequently for several months. It has been suggested that there may be an autoimmune component.
William David Strain, Ondine Sherwood, Amitava Banerjee, Vicky Van der Togt, Lyth Hishmeh, Jeremy Rossman   +5 more
doaj   +1 more source

Patient Advocacy in Vascularized Composite Allotransplantation. [PDF]

Front Psychol, 2022
Benedict J.
europepmc   +2 more sources