Local patient-centered headache advocacy with regional and global impact: lessons from the Japanese Patient Advocacy Coalition (JPAC) [PDF]
The Journal of Headache and PainMigraine is a leading cause of disability worldwide, particularly among working-age individuals. In Japan, its prevalence is 8.4%; however, migraine remains underdiagnosed and undertreated.
Daisuke Danno +8 more
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Patient advocacy and DSM-5 [PDF]
BMC Medicine, 2013 The revision of the Diagnostic and Statistical Manual of Mental Disorders (DSM) provides a useful opportunity to revisit debates about the nature of psychiatric classification. An important debate concerns the involvement of mental health consumers in revisions of the classification.
Stein, Dan J, Phillips, Katharine A
openaire +4 more sources
SPAN@DEM (SingHealth Patient Advocacy Network @ Department of Emergency Medicine)—A Pioneer in Emergency Department-Specific Patient Advocacy: Development Study [PDF]
Journal of Participatory MedicineBackgroundLaunched in January 2022, the SingHealth Patient Advocacy Network at the Department of Emergency Medicine (SPAN@DEM) represents the first emergency department-specific advocacy group in Singapore. This initiative marks a significant advancement
Mingwei Ng +4 more
doaj +2 more sources
Setting the international research agenda for sarcomas with patients and carers: results of phase II of the Sarcoma Patient Advocacy Global Network (SPAGN) priority setting partnership [PDF]
BMC CancerBackground Typically, researchers and clinicians determine the agenda in sarcoma research. However, patient involvement can have a meaningful impact on research.
E. Roets +12 more
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Patient advocacy: barriers and facilitators [PDF]
BMC Nursing, 2006 Background During the two recent decades, advocacy has been a topic of much debate in the nursing profession. Although advocacy has embraced a crucial role for nurses, its extent is often limited in practice.
Nikravesh Mansoure +4 more
doaj +3 more sources
Two decades of patient advocacy. [PDF]
Eur J NeurolAbstractThe European Federation of Neurological Associations (EFNA) brings together European umbrella organizations of pan‐European neurological patient advocacy groups (www.efna.net) and strives to improve the quality of life of people living with neurological conditions and to work towards relieving the immense social and economic burden on patients,
Baker M +7 more
europepmc +3 more sources
Registered Nurses' description of patient advocacy in the clinical setting
Nursing Open, 2019 Aim To provide Registered Nurses description of patient advocacy in the clinical setting. Design A qualitative approach with descriptive study design was used to meet the set objective. Methods Purposive sampling was used to select the study participants.
Comfort Nsiah +2 more
doaj +2 more sources
Emerging roles and opportunities for rare disease patient advocacy groups [PDF]
Therapeutic Advances in Rare Disease, 2023 Grace E Vannoy, Kira A Dies
exaly +2 more sources
Patient Advocacy in Vascularized Composite Allotransplantation [PDF]
Frontiers in Psychology, 2022 James Benedict
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Unlocking sociocultural and community factors for the global adoption of genomic medicine
Orphanet Journal of Rare Diseases, 2022 Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak +11 more
doaj +1 more source