Local patient-centered headache advocacy with regional and global impact: lessons from the Japanese Patient Advocacy Coalition (JPAC) [PDF]
The Journal of Headache and PainMigraine is a leading cause of disability worldwide, particularly among working-age individuals. In Japan, its prevalence is 8.4%; however, migraine remains underdiagnosed and undertreated.
Daisuke Danno +8 more
doaj +2 more sources
SPAN@DEM (SingHealth Patient Advocacy Network @ Department of Emergency Medicine)—A Pioneer in Emergency Department-Specific Patient Advocacy: Development Study [PDF]
Journal of Participatory MedicineBackgroundLaunched in January 2022, the SingHealth Patient Advocacy Network at the Department of Emergency Medicine (SPAN@DEM) represents the first emergency department-specific advocacy group in Singapore. This initiative marks a significant advancement
Mingwei Ng +4 more
doaj +2 more sources
Setting the international research agenda for sarcomas with patients and carers: results of phase II of the Sarcoma Patient Advocacy Global Network (SPAGN) priority setting partnership [PDF]
BMC CancerBackground Typically, researchers and clinicians determine the agenda in sarcoma research. However, patient involvement can have a meaningful impact on research.
E. Roets +12 more
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Patient advocacy: barriers and facilitators [PDF]
BMC Nursing, 2006 Background During the two recent decades, advocacy has been a topic of much debate in the nursing profession. Although advocacy has embraced a crucial role for nurses, its extent is often limited in practice.
Nikravesh Mansoure +4 more
doaj +3 more sources
Two decades of patient advocacy. [PDF]
Eur J NeurolAbstractThe European Federation of Neurological Associations (EFNA) brings together European umbrella organizations of pan‐European neurological patient advocacy groups (www.efna.net) and strives to improve the quality of life of people living with neurological conditions and to work towards relieving the immense social and economic burden on patients,
Baker M +7 more
europepmc +3 more sources
Registered Nurses' description of patient advocacy in the clinical setting
Nursing Open, 2019 Aim To provide Registered Nurses description of patient advocacy in the clinical setting. Design A qualitative approach with descriptive study design was used to meet the set objective. Methods Purposive sampling was used to select the study participants.
Comfort Nsiah +2 more
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Nurses’ attitude towards patient advocacy in a single tertiary care hospital
Nursing Open, 2022 Aim To determine nurses’ attitude towards patient advocacy in a single tertiary care hospital. Design Descriptive/analytical cross‐sectional studies. Methods A comprehensive two‐part questionnaire about nurses’ views on nursing advocacy was administered ...
Fahad Zeed Alanezi
doaj +2 more sources
Unlocking sociocultural and community factors for the global adoption of genomic medicine
Orphanet Journal of Rare Diseases, 2022 Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak +11 more
doaj +1 more source
Patient Advocacy in Vascularized Composite Allotransplantation [PDF]
Frontiers in Psychology, 2022 James Benedict
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Oncology and Therapy, 2023 This podcast, for healthcare professionals (HCPs), patients, and patient advocates, is a discussion among a panel of two patients (and co-founders of the patient advocacy group EGFR Resisters, https://egfrcancer.org/ ) and two oncologists.
Stephen V. Liu +3 more
doaj +1 more source