Results 1 to 10 of about 349,440 (263)

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned [PDF]

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +2 more sources

Integration of patient and public involvement in a doctoral research study using the research cycle [PDF]

Research Involvement and Engagement
Background Patient and public involvement (PPI) in research is widely acknowledged as essential to achieving successful and impactful research. Despite this acknowledgement, there are limited reports on how to approach and apply meaningful PPI throughout
Helen Pearson, Carol Bell, Karl Cox, Catherine Kayum, Leona Knox, Faith Gibson, Michelle Myall, Anne-Sophie Darlington, Emma Potter, Nicholas Bird   +9 more
doaj   +2 more sources

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

Frontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan, Kevin Foley, Jessica Gough, Sarah Harrington, Éabha Wall, Fiona Weldon, Jennifer M. Ryan, Jennifer M. Ryan, Claire Kerr, Aisling Walsh, Jennifer Fortune   +10 more
doaj   +2 more sources

How to become partners. Ways to enhance the quality of patient and public involvement in healthcare research. [PDF]

Qual Res Med Healthc
Pedersen EL, Agerskov H, Ellingsen T, Timmermann C.   +3 more
europepmc   +2 more sources

Targeting everyday decision makers in research: early career researcher and patient and public involvement and engagement collaboration in an AI-in-healthcare project [PDF]

Research Involvement and Engagement
Patient and Public Involvement and Engagement (PPIE) is critical in the development and application of Artificial Intelligence (AI) in healthcare research to ensure that outcomes align with patients’ and the public’s needs.
Duncan J. Reynolds, Susan Mountain, Victoria Bartle, Elizabeth Remfry, Michael R. Barnes, Nick J. Reynolds, Alexandra Thompson, AI MULTIPLY   +7 more
doaj   +2 more sources

Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review

Systematic Reviews, 2022
Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle, Anne MacFarlane, Jon Salsberg   +2 more
doaj   +1 more source

Maternal mental health: a key area for future research among women with congenital heart disease

Open Heart, 2023
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift, Nigel E Drury, Karin Eli, Caroline E Fox, Lucy E Hudsmith, Anna Lavis, James S Castleman, Donna Giles, Laura Grocott, Kirsty Harrison, Katharina Kaplan, Heather McDougall, Charlene Powell   +12 more
doaj   +1 more source

Personal assistants in England and the factors associated with absenteeism

Frontiers in Public Health, 2022
Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland, Stephen Allan, Eleni Chambers, Eleni Chambers, Debs Smith, Debs Smith, Katerina Gousia   +6 more
doaj   +1 more source

The public and patient involvement imperative in Ireland: Building on policy drivers

Frontiers in Public Health, 2022
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle, Meghan Gilfoyle, Anne MacFarlane, Anne MacFarlane, Ailish Hannigan, Ailish Hannigan, Vikram Niranjan, Zoe Hughes, Jon Salsberg, Jon Salsberg   +9 more
doaj   +1 more source

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Research Involvement and Engagement, 2021
Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small, Bie Nio Ong, Annmarie Lewis, Dawn Allen, Nigel Bagshaw, Papreen Nahar, Caroline Sanders, the DEPEND team   +7 more
doaj   +1 more source