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Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement [PDF]
Research Involvement and EngagementBackground Patient and public involvement (PPI) in mental health research is essential but presents unique challenges, particularly when engaging adults with severe mental illness (SMI).
Emily Shoesmith +9 more
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Frontiers in Rehabilitation Sciences, 2022 IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan +10 more
doaj +1 more source
Patient and public involvement [PDF]
Annals of Oncology, 2011 The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart +3 more
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Systematic Reviews, 2022 Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle +2 more
doaj +1 more source
Maternal mental health: a key area for future research among women with congenital heart disease
Open Heart, 2023 In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift +12 more
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Personal assistants in England and the factors associated with absenteeism
Frontiers in Public Health, 2022 Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland +6 more
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The public and patient involvement imperative in Ireland: Building on policy drivers
Frontiers in Public Health, 2022 What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle +9 more
doaj +1 more source
Research Involvement and Engagement, 2021 Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small +7 more
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BMJ Open, 2023 Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin +8 more
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Journal of Patient Experience, 2023 Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes +7 more
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