Results 11 to 20 of about 975,488 (355)

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

open access: yesFrontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan   +10 more
doaj   +1 more source

Patient and public involvement [PDF]

open access: yesAnnals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart   +3 more
openaire   +2 more sources

Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review

open access: yesSystematic Reviews, 2022
Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle   +2 more
doaj   +1 more source

GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

open access: yesBritish medical journal, 2017
GRIPP2 (short form and long form) is the first international guidance for reporting of patient and public involvement in health and social care research.
S. Staniszewska   +15 more
semanticscholar   +2 more sources

Patient and public involvement in research: a review of practical resources for young investigators

open access: yesBMC Rheumatology, 2023
Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients’ experiences, help to explore barriers and facilitators to their compliance/adherence to assessment and treatment methods, bring meaningful outcomes
Ashokan Arumugam   +9 more
semanticscholar   +1 more source

Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews

open access: yesHealth Research Policy and Systems, 2021
Background The emergence of patient and public involvement (PPI) in healthcare in the UK can be traced as far back as the 1970s. More recently, campaigns by harmed patients have led to a renewed focus on strengthening PPI. There is a growing awareness of
J. Ocloo   +3 more
semanticscholar   +1 more source

Maternal mental health: a key area for future research among women with congenital heart disease

open access: yesOpen Heart, 2023
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift   +12 more
doaj   +1 more source

Personal assistants in England and the factors associated with absenteeism

open access: yesFrontiers in Public Health, 2022
Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland   +6 more
doaj   +1 more source

Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review

open access: yesHealth Expectations, 2022
The importance of meaningfully involving patients and the public in digital health innovation is widely acknowledged, but often poorly understood. This review, therefore, sought to explore how patients and the public are involved in digital health ...
Rebecca Baines   +7 more
semanticscholar   +1 more source

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

open access: yesResearch Involvement and Engagement, 2021
Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small   +7 more
doaj   +1 more source

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