Results 21 to 30 of about 975,488 (355)

The public and patient involvement imperative in Ireland: Building on policy drivers

Frontiers in Public Health, 2022
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle, Meghan Gilfoyle, Anne MacFarlane, Anne MacFarlane, Ailish Hannigan, Ailish Hannigan, Vikram Niranjan, Zoe Hughes, Jon Salsberg, Jon Salsberg   +9 more
doaj   +1 more source

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

BMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin, Edward Meinert, Camille B Carroll, John Whipps, Sue Whipps, Rebecca Chapman, Marie-Louise Zeissler, Kate Hockey, Philip Hockey   +8 more
doaj   +1 more source

Patient and researcher perspectives on facilitating patient and public involvement in rheumatology research [PDF]

, 2016
No abstract ...
Buckley, Christopher D., Falahee, Marie, Filer, Andrew, Hanson, Helen, Isaacs, John D., McInnes, Iain B., Pollock, Judith, Pratt, Arthur G., Raza, Karim, Siebert, Stefan   +9 more
core   +3 more sources

Reflections and Experiences of a Co-Researcher involved in a Renal Research Study [PDF]

, 2018
Background Patient and Public Involvement (PPI) is seen as a prerequisite for health research. However, current Patient and public involvement literature has noted a paucity of recording of patient and public involvement within research studies.
A Simpson, C Bradbury-Jones, C Mockford, C. Gamble, D Rose, David Evans, DN Wright, DS Pushparajah, E Mathie, F Loud, GL The, H McLaughlin, INVOLVE, J Bindels, J Brett, K Bergström, Kristina Staley, Laura J.E. Brown, M Fredriksson, Nicola Thomas, NIHR, Patricia Wilson, PM Wilson, R Littlechild, RE Glasgow, S Staniszewska, SR Arnstein   +26 more
core   +3 more sources

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

Journal of Patient Experience, 2023
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes, Timothy J. Coats MD, Simon P. Conroy PhD, Jagruti Lalseta, Vivien Richardson, Peter Riley, Jose M. Valderas PhD, Nicola Mackintosh PhD   +7 more
doaj   +1 more source

Co-creation of a complex, multicomponent rehabilitation intervention and feasibility trial protocol for the PostUraL tachycardia Syndrome Exercise (PULSE) study

Pilot and Feasibility Studies, 2023
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce, Nikki Holliday, Harbinder Sandhu, Helen Eftekhari, Julie Bruce, Emma Timms, Laura Ablett, Lesley Kavi, Jane Simmonds, Rebecca Evans, Paul Magee, Richard Powell, Shane Keogh, Gordon McGregor   +13 more
doaj   +1 more source

Involving patients and the public in the NHS [PDF]

Clinical Medicine, 2003
Involving patients and the public in the NHS is a new strategic initiative by the Deparment of Health. Over time it will make a significant change to how services are designed and delivered. Doctors need to be aware of this new legislation and the change in the patient/clinician dynamic it embraces.
openaire   +2 more sources

Patient and public involvement in the design of clinical trials: An overview of systematic reviews [PDF]

, 2017
BACKGROUNDFunders encourage lay-volunteer inclusion in research. There are controversy and resistance, given concerns of role confusion, exploratory methods, and limited evidence about what value lay-volunteers bring to research.
Albarqouni, Loai, Burls, Amanda, Clarke, Mike, Kirkpatrick, Jo, Liew, Su May, Price, Amy, Roberts, Nia W   +6 more
core   +3 more sources

ReseArch with Patient and Public invOlvement: a RealisT evaluation - the RAPPORT study [PDF]

, 2015
Background Patient and public involvement (PPI) is a prerequisite for many funding bodies and NHS research ethics approval. PPI in research is defined as research carried out with or by the public rather than to, about or for them.
Abbott, Abma, All-Party Parliamentary Group, Andejeski, Armes, Astbury, Badger, Baggott, Baggott, Barber, Barber, Barber, Barbour, Barnes, Barnes, Barnes, Barnes, Barnes, Barnes, Barnes, Barnes, Batsch, Baxter, Ben-Ari, Beresford, Bhaskar, Boivin, Boote, Boote, Boote, Boote, Brannen, Brett, Brett, Brett, British Paediatric Surveillance Unit, Broerse, Burrus, Cairncross, Caldon, Callard, Caron-Flinterman, Carter, Chalmers, Clark, Clavier, Collaboration for Leadership in Applied Health Research and Care, Collier, Connelly, Connelly, Consumers Health Forum of Australia, Cotterell, Cotterell, Cystic Fibrosis Trust, Davis, Davis, Delanty, Delbanco, Department of Health, Department of Health, Department of Health, Department of Health, Department of Health, Department of Health, Department of Health, Department of Health, Department of Health, Dewar, Edwards, Elberse, Entwistle, Entwistle, Evans, Expert Patients Programme, Exworthy, Fairbrother, Faulkner, Fiss, Forbat, Forbes, Fulop, Gibson, Goodman, Goodman, Gradinger, Great Britain, Greene, Guarino, Habermas, Habermas, Habermas, Hartley, Hawe, Hayes, Held, Hewitt, Hewlett, Higher Education Funding Council for England, HM Government, HM Government, Hofmann, Howe, Howe, Hunn, Hunt, Iliffe, INVOLVE, INVOLVE, Ives, Jagosh, Jagosh, Jordan, Kontos, Koops, Kreindler, Kreis, Krieger, Langston, Lasker, Lindenmeyer, Lupton, Macaulay, Marchal, Marinetto, Martin, Martin, Mathie, Matthews, May, May, May, May, McCormick, McDonnell, McGrath, McKevitt, McKevitt, McNichol, Medical Research Council, Merton, Meyer, Middleton, Miller, Milton, Minogue, Morrow, Nathan, National Cancer Research Institute, National Institute of Health Research, National Institutes of Health, National Voices, Ocloo, Oliver, Oliver, Oliver, Oliver, O’Cathain, O’Donnell, Palmer, Parkes, Paterson, Patient and Public Involvement Solutions, Pattengill-Semmens, Pawson, Pawson, Pawson, Peckham, Philpot, PiiAF Study Group, Pitt, Prior, Purttell, Renedo, Research Design Service London, Rhodes, Roderick, Royal College of Psychiatry, Royle, Rycroft-Malone, Rycroft-Malone, Savage, Schierhout, Schneider, Schwappach, Scott, Shippee, Shirk, Smith, Snape, Staley, Staley, Staley, Staley, Staniszewska, Staniszewska, Staniszewska, Staniszewska, Staniszewska, Stevens, Strauss, Sutton, Telford, Telford, Terry, Thompson, Thompson, Thompson, Titmuss, Tolson, Tritter, Truman, Vale, van Bekkum, Walker, Wand, Ward, Williams, Williams, Williamson, Wilson, Wilson, Wilson, Wilson, World Health Organization, Wright, Yin   +225 more
core   +4 more sources

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

Research Involvement and Engagement, 2018
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland, Julia Jones   +11 more
doaj   +1 more source