Results 21 to 30 of about 374,272 (265)

Characteristics and general practice resource use of people with comorbid cancer and dementia in England: a retrospective cross-sectional study

BMC Primary Care, 2022
Background Cancer and dementia are common in older people and management of the conditions as comorbidities can be challenging, yet little is known about the size or characteristics of this group.
Michelle Collinson, Ellen Mason, Rachael Kelley, Alys Griffiths, Laura Ashley, Ann Henry, Hayley Inman, Fiona Cowdell, June Hennell, Liz Jones, Maria Walsh, Margaret Ogden, Amanda Farrin, Claire Surr   +13 more
doaj   +1 more source

A Scoping Review of Older LGBTI People's Experiences of Homecare

Social Inclusion
Amidst the global growth of the ageing demographic in the world, an inclusive assessment of the care needs of the older lesbian, gay, bisexual, transgender, and intersex (LGBTI) population is receiving increasing attention, especially in view of reported
Mel Duffy, Giovanni Frazzetto, Anthony Staines, Anne Matthews, James Geoghegan, Collette Gleeson, Claire Mooney, James O'Hagan, Sean Vail   +8 more
doaj   +1 more source

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Acute Neurological Events in Children With Hemoglobin SC Disease: A Multicenter Retrospective Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurological manifestations in children with hemoglobin SC (HbSC) disease remain insufficiently characterized, particularly regarding acute events. The aim of this study was to describe the spectrum and frequency of acute neurological events in a multicenter cohort of children with HbSC disease.
Célia Paulmin, Bérengère Koehl, Audrey Maudoux, Hanine Mansour, Marie‐Hélène Odievre, Nathalie Garrec, Emilie Georget, Cécile Arnaud, Slimane Allali, Lydia Doumdo, Marie Belloy, Corinne Guitton   +11 more
wiley   +1 more source

Patients as qualitative data analysts: Developing a method for a process evaluation of the ‘Improving the Safety and Continuity of Medicines management at care Transitions’ (ISCOMAT) cluster randomised control trial

Health Expectations, 2021
Background How to meaningfully partner with patients as data analysts remains obscure. A process evaluation of the ‘Improving the Safety and Continuity Of Medicines management at care Transitions’ (ISCOMAT) cluster randomised control trial of an ...
Catherine Powell, Hanif Ismail, Richard Cleverley, Andrew Taylor, Liz Breen, Beth Fylan, Sarah L Alderson, David P Alldred, the ISCOMAT Programme Team   +8 more
doaj   +1 more source

Patient and public involvement: models and muddles

Journal of Clinical Nursing, 2009
Aims and objectives.  This paper explores the range of models of involvement which are drawn upon in an empirical study and which are invoked in the literature and policy. The results and discussion of the study help to excavate and explore the muddle of conceptualisations of involvement and how this leads to difficulties for practitioners, patients ...
Forbat, Liz, Hubbard, Gill, Kearney, Nora   +2 more
openaire   +4 more sources

Infant Embryonal CNS Tumors: Molecular Insights and Treatment Considerations for Contemporary Pediatric Neuro‐Oncology

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Embryonal tumors comprise the majority of malignant central nervous system (CNS) neoplasms diagnosed in children under 3 years of age. Compared with their counterparts in older children, these tumors exhibit distinct molecular biology and a more aggressive clinical phenotype, while their management is complicated by the heightened ...
Sudarshawn Damodharan, Mariah Wright‐Nadkarni, Mohamed S. Abdelbaki, Girish Dhall   +3 more
wiley   +1 more source

Multiple versus single risk behaviour interventions for people with severe mental illness: a network meta-analysis and qualitative synthesis

Health and Social Care Delivery Research, 2022
Background: People with severe mental illness die 15–20 years earlier than the general population. Reasons why include that people with severe mental illness are more likely to smoke and be physically inactive as a result of social inequalities ...
Nick Meader, Hollie Melton, Connor Evans, Kath Wright, David Shiers, Elena Ratschen, Sofia Dias, Ceri Dare, Gordon Johnston, Harminder Kaur, Michel Syrett, Christopher J Armitage, Rachel Churchill, Simon Gilbody, Peter Coventry   +14 more
doaj   +1 more source

Involving Patients and the Public–is it Worth the Effort? [PDF]

Journal of the Royal Society of Medicine, 2001
Should patients and the public be involved in planning and delivery of healthcare and services; is it worth the effort? Faced with this question, most professionals feel frustrated that they cannot meet current demands and wary of asking patients what else they want. They do not appreciate the potential advantages of responsible involvement.
openaire   +2 more sources

Neuropsychological and Educational Outcomes in Shwachman–Diamond Syndrome—A Report From the North American Shwachman–Diamond Syndrome Registry

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Shwachman–Diamond syndrome (SDS) is a rare autosomal recessive ribosomopathy characterized by bone marrow failure and multisystem involvement, with emerging evidence of associated neurocognitive impairment. Methods We conducted a retrospective study of 240 individuals with biallelic Shwachman–Bodian–Diamond syndrome (SBDS) mutations
Jane Koo, Melissa Gerstle, Leah Cheng, Richard Cooper, Katherine Coyne, Claire Dusa, Naomi E. Joffe, Diana Schwarz, Sarah Steltz, Akiko Shimamura, Kasiani C. Myers, Thea Quinton   +11 more
wiley   +1 more source