Results 21 to 30 of about 411,635 (248)

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

BMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin, Edward Meinert, Camille B Carroll, John Whipps, Sue Whipps, Rebecca Chapman, Marie-Louise Zeissler, Kate Hockey, Philip Hockey   +8 more
doaj   +1 more source

Becoming part of behind the scenes: patients' experiences of co-learning with primary health care teams. [PDF]

, 2013
Current debates about the involvement of health service users in service delivery, research and education focus on the purpose of their involvement, the methods of their involvement, barriers to their involvement and the impact of their involvement ...
Worswick, Louise
core   +6 more sources

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

Research Involvement and Engagement, 2018
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland, Julia Jones   +11 more
doaj   +1 more source

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

Journal of Patient Experience, 2023
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes, Timothy J. Coats MD, Simon P. Conroy PhD, Jagruti Lalseta, Vivien Richardson, Peter Riley, Jose M. Valderas PhD, Nicola Mackintosh PhD   +7 more
doaj   +1 more source

Co-creation of a complex, multicomponent rehabilitation intervention and feasibility trial protocol for the PostUraL tachycardia Syndrome Exercise (PULSE) study

Pilot and Feasibility Studies, 2023
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce, Nikki Holliday, Harbinder Sandhu, Helen Eftekhari, Julie Bruce, Emma Timms, Laura Ablett, Lesley Kavi, Jane Simmonds, Rebecca Evans, Paul Magee, Richard Powell, Shane Keogh, Gordon McGregor   +13 more
doaj   +1 more source

PANDA: A case-study examining a successful Audiology and Otology Patient and Public Involvement and Engagement research group [PDF]

, 2020
There has been increasing involvement of patients and members of the public in research; however, case studies describing patient research groups with hearing loss are non-existent. Such case studies will be valuable, enabling evidence-based dialogue and
Richard Allen, Allen, Richard, O\u27Hara, Margaret E, Boddy, Laura, Laura Boddy, Amy V Gosling, Margaret O'Hara, Margaret E O'Hara, Parker, Rosalyn, Rosalyn Parker, Gosling, Amy V, Amy Gosling   +11 more
core   +1 more source

A systematic review and recommendations for prom instruments for older people with frailty in emergency care

Journal of Patient-Reported Outcomes, 2022
Introduction The current service metrics used to evaluate quality in emergency care do not account for specific healthcare outcome goals for older people living with frailty.
James David van Oppen, Abdullah Alshibani, Timothy John Coats, Blair Graham, Patricia Holch, Jagruti Lalseta, Nicola Mackintosh, Vivien Richardson, Peter Riley, Jose M. Valderas, Simon Paul Conroy   +10 more
doaj   +1 more source

Exploring the Multidimensionality of Trust in Participatory Health Partnerships - A Network Approach

Frontiers in Public Health, 2022
IntroductionPrevious studies have identified “trust” as a key mechanism to achieve sustainable partnerships in participatory health research, which themselves can represent social networks.
Meghan Gilfoyle, Meghan Gilfoyle, Jon Salsberg, Jon Salsberg, Miriam McCarthy, Anne MacFarlane, Anne MacFarlane, Pádraig MacCarron   +7 more
doaj   +1 more source

ReseArch with Patient and Public invOlvement: a RealisT evaluation - the RAPPORT study [PDF]

, 2015
Background Patient and public involvement (PPI) is a prerequisite for many funding bodies and NHS research ethics approval. PPI in research is defined as research carried out with or by the public rather than to, about or for them.
Poland, F., Diane Munday, Kendall, S., Munday, D., Howe, Amanda, Goodman, C., Staniszweska, Sophie, Peckham, S., Peckham, Stephen, Stephen Peckham, McNeilly, Elaine, Wilson, P., Sally Kendall, Elspeth Mathie, Elaine McNeilly, Julia Keenan, Keenan, J., Mathie, Elspeth, Keenan, Julia, Sophie Staniszewska, Staniszewska, S., Mathie, E., Fiona Poland, Howe, A., Staniszewska, Sophie, Munday, Diane, Marion Cowe, Cowe, Marion, Goodman, Claire, Kendall, Sally, Patricia Wilson, Wilson, Patricia, Cowe, M., Claire Goodman, McNeilly, E., Poland, Fiona, Amanda Howe   +36 more
core   +2 more sources

Clinical service delivery implications of the COVID-19 pandemic on people with Inflammatory bowel disease: a qualitative study

BMC Health Services Research, 2023
Background During the COVID-19 pandemic, clinical services were severely disrupted, restricted, or withdrawn across the country. People living with Inflammatory Bowel Disease (IBD) – an auto-immune disorder for which medical treatment often results in ...
Karen Kemp, Pearl Avery, Ruby Bryant, Amanda Cross, Kayleigh Danter, Andrew Kneebone, Deborah Morris, Amy Walker, Lisa Whitley, Lesley Dibley   +9 more
doaj   +1 more source