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Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement [PDF]

Research Involvement and Engagement
Background Patient and public involvement (PPI) in mental health research is essential but presents unique challenges, particularly when engaging adults with severe mental illness (SMI).
Emily Shoesmith, Petal Petersen Williams, Jennifer Sweetman, Lisa Huddlestone, Jodi Pervin, Simon Hough, Susan Croft, Steven Dexter, Coleen Scothorne, Elena Ratschen   +9 more
doaj   +2 more sources

Consortium‐Based Patient and Public Involvement and Engagement for Long COVID Research: A Pirit‐Focused Impact Evaluation of the PHOSP‐COVID Study [PDF]

Health Expectations
Background At the start of the coronavirus disease‐2019 (COVID‐19) pandemic in early 2020, the long‐term outcomes for survivors of COVID‐19 were unknown.
Linzy Houchen‐Wolloff, Joanna Bell, Rebecca Pritchard, Krisnah Poinasamy, Kate Holmes, Samantha Walker, Nikki Smith, Claire Hastie, Natalie Rogers, Dawn Adams, Rashmita Nathu, Rhyan Gill, Jenny Bunker, Lily Staunton, James Chalmers, Ling‐Pei Ho, Victoria Harris, Alexander Horsley, Michael Marks, Betty Raman, Louise V. Wain, Christopher Brightling, Rachael Evans   +22 more
doaj   +2 more sources

Patient and Public Involvement (PPI) in lab-based research. What is the added value? Reflections from a researcher and public contributor perspective [PDF]

Research Involvement and Engagement
Patient and Public Involvement (PPI) in research is a requirement for most health and care funding applications. Whilst there is a plethora of resources about how to actively involve patients and the public in applied and clinical research, resources ...
Sarah Hatch, Naledi Formosa
doaj   +2 more sources

How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

BMC Palliative Care, 2023
Background Advance care planning (ACP) is the process supporting individuals with life-limiting illness to make informed decisions about their future healthcare.
Jodie Crooks, Sophie Trotter, Patient Public Involvement Consortium, Gemma Clarke   +3 more
doaj   +1 more source

Patient and public involvement [PDF]

Annals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart, R, Wilson, P, Selby, J, Darbyshire   +3 more
openaire   +2 more sources

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

Frontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan, Kevin Foley, Jessica Gough, Sarah Harrington, Éabha Wall, Fiona Weldon, Jennifer M. Ryan, Jennifer M. Ryan, Claire Kerr, Aisling Walsh, Jennifer Fortune   +10 more
doaj   +1 more source

Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review

Systematic Reviews, 2022
Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle, Anne MacFarlane, Jon Salsberg   +2 more
doaj   +1 more source

Personal assistants in England and the factors associated with absenteeism

Frontiers in Public Health, 2022
Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland, Stephen Allan, Eleni Chambers, Eleni Chambers, Debs Smith, Debs Smith, Katerina Gousia   +6 more
doaj   +1 more source

Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

Research Involvement and Engagement, 2021
Plain English Summary Involving patients, family carers and members of the public in research is known as patient and public involvement, or PPI. In health and social care research, PPI is considered important by many, including patients and research ...
Julia Jones, Marion Cowe, Sue Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe, Elspeth Mathie   +7 more
doaj   +1 more source

Public involvement policies in health: exploring their conceptual basis. [PDF]

, 2006
Despite its obvious appeal, the concept of public involvement is poorly defined and its rationale and objectives are rarely specified when applied to current health policy contexts.
Suzanne Wait, Nolte, Ellen, Wait, Suzanne, Ellen Nolte   +3 more
core   +1 more source