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Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

Research Involvement and Engagement, 2021
Plain English Summary Involving patients, family carers and members of the public in research is known as patient and public involvement, or PPI. In health and social care research, PPI is considered important by many, including patients and research ...
Julia Jones, Marion Cowe, Sue Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe, Elspeth Mathie   +7 more
doaj   +2 more sources

Diversity in patient and public involvement in healthcare research and education—Realising the potential

Health Expectations, 2023
Background Patient and public involvement (PPI) is an increasing priority in health‐related research and education. Attracting and supporting people from different demographic groups to give up their time and get involved is important to help ensure that
Sarah Hatch, Jim Fitzgibbon, Amanda Jayne Tonks, Liz Forty   +3 more
doaj   +2 more sources

The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

Research Involvement and Engagement, 2020
As public involvement in the design, conduct and dissemination of health research has become an expected norm and firmly enshrined in policy, interest in measuring its impact has also grown. Despite a drive to assess the impact of public involvement, and
Jill Russell, Nina Fudge, Trish Greenhalgh   +2 more
doaj   +2 more sources

Patient and public involvement in research: a review of practical resources for young investigators

BMC Rheumatology, 2023
Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients’ experiences, help to explore barriers and facilitators to their compliance/adherence to assessment and treatment methods, bring meaningful outcomes
Ashokan Arumugam, Lawrence Rick Phillips, A. Moore, Senthil D. Kumaran, K. Sampath, F. Migliorini, N. Maffulli, Bathri Narayanan Ranganadhababu, F. Hegazy, Angie Botto-van Bemden   +9 more
semanticscholar   +1 more source

Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews

Health Research Policy and Systems, 2021
Background The emergence of patient and public involvement (PPI) in healthcare in the UK can be traced as far back as the 1970s. More recently, campaigns by harmed patients have led to a renewed focus on strengthening PPI. There is a growing awareness of
J. Ocloo, S. Garfield, B. Franklin, S. Dawson   +3 more
semanticscholar   +1 more source

How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

BMC Palliative Care, 2023
Background Advance care planning (ACP) is the process supporting individuals with life-limiting illness to make informed decisions about their future healthcare.
Jodie Crooks, Sophie Trotter, Patient Public Involvement Consortium, Gemma Clarke   +3 more
doaj   +1 more source

Patient and public involvement [PDF]

Annals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart, R, Wilson, P, Selby, J, Darbyshire   +3 more
openaire   +2 more sources

The benefits, challenges, and best practice for patient and public involvement in evidence synthesis: A systematic review and thematic synthesis

Health Expectations, 2023
Despite the growing evidence on patient and public involvement (PPI) in health research, little emphasis has been placed on understanding its quality and appropriateness to evidence synthesis (ES) and systematic reviews (SR).
Eldad Agyei-Manu, Nadege Atkins, Bo-Yong Lee, Jasmin Rostron, M. Dozier, Maureen Smith, R. McQuillan   +6 more
semanticscholar   +1 more source

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

Frontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan, Kevin Foley, Jessica Gough, Sarah Harrington, Éabha Wall, Fiona Weldon, Jennifer M. Ryan, Jennifer M. Ryan, Claire Kerr, Aisling Walsh, Jennifer Fortune   +10 more
doaj   +1 more source

Patient and public involvement in cancer research: A scoping review

Cancer Medicine, 2023
Patient and public involvement (PPI) in research emphasizes the importance of doing research with, rather than for people with lived health/illness experience(s).
S. Colomer-Lahiguera, Matthieu Steimer, U. Ellis, M. Eicher, M. Tompson, Tourane Corbière, K. Haase   +6 more
semanticscholar   +1 more source