Results 41 to 50 of about 725,840 (314)

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source

A research handbook for patient and public involvement researchers [PDF]

, 2018
This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers.

core   +1 more source

Increased Risk of Sarcomas in Children With Congenital Anomalies: Findings From the Genetic Overlap Between Anomalies and Cancer in Kids (GOBACK) Registry Linkage Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric sarcomas are a heterogeneous group of tumors that contribute disproportionately to cancer mortality in children. Although congenital anomalies are among the strongest known risk factors for childhood cancer, the risk of specific sarcoma subtypes among affected individuals has not yet been thoroughly evaluated. Procedure We
Russ Wolters, Ji Yun Tark, Tiffany M. Chambers, Tania A. Desrosiers, Michael E. Scheurer, Charles Shumate, Wendy N. Nembhard, Mahsa M. Yazdy, Eirini Nestoridi, Amanda E. Janitz, Jean Paul Tanner, Russell S. Kirby, Jason L. Salemi, Yao Yu, Chad D. Huff, Sharon E. Plon, Philip J. Lupo, Jeremy M. Schraw   +17 more
wiley   +1 more source

Strategy for personal and public involvement in Health and Social Care research

, 2010
This report outlines the strategic need for, and benefits of, personal and public involvement to all levels of Health and Social Care Research and Development Division ...
Public Health Agency
core   +1 more source

Therapeutic Apheresis for Intravenous Methylprednisolone‐Refractory Neuromyelitis Optica Spectrum Disorder: Clinical and Radiological Outcomes in a Single‐Center Case Series

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Neuromyelitis optica spectrum disorder (NMOSD) is a relapsing autoimmune disease of the central nervous system. High‐dose intravenous methylprednisolone (IVMP) is the standard first‐line therapy for acute attacks, although some patients remain refractory.
Wataru Horiguchi, Daisuke Katagiri, Takeyuki Watadani, Shunichi Matsuda, Hiroshi Kaneko, Noritoshi Arai   +5 more
wiley   +1 more source

Valuing People, Valuing Their Participation - A Strategy for Personal and Public Involvement for the Public Health Agency and Health and Social Care Board

, 2012
Personal and Public Involvement (PPI) is about involving those who use Health and Social Care (HSC) services, or care for those who use services, with those who plan and deliver services.
Public Health Agency
core   +1 more source

Involvement of patients or their representatives in quality management functions in EU hospitals:implementation and impact on patient-centred care strategies [PDF]

, 2014
OBJECTIVE: The objective of this study was to describe the involvement of patients or their representatives in quality management (QM) functions and to assess associations between levels of involvement and the implementation of patient-centred care ...
Kristensen, S, Ommen, O, Pfaff, H, Bottaro, S., Kringos, D.S., Wang, A., Lívio, A., Shaw, C., Plochg, T, Kristensen, S., Depaigne-Loth, A., Depaigne-Loth, A, Kutaj-Wasikowska, H, Kus, H, Secanell, M., Mannion, Russell, Ozturk, K., Bruneau, Charles, Leite, I, Botje, D, Groene, Oliver, Kutryba, B, Saillour-Glenisson, F, Garel, Pascal, Almeman, F., Lívio, A, Eiras, M, Wang, A, Franca, M, Thompson, Caroline A., Saluvan, M, Hammer, A., Almeman, F, Bartels, Paul, Jones, S., Kringos, DS, Secanell, M, Groene, O., Garel, P, Dersarkissian, Maral, Groene, O, Sunol, R., Kutaj-Wąsikowska, Halina, Leite, I., Lopez, MA, Arah, OA, Botje, Daan, Suñol Sala, Rosa, Thompson, Caroline A, Wagner, C, Kus, H., Vlcek, Frantisek, Klazinga, N. S., Franca, M., Escoval, Ana, Sunol, R, Plochg, T., Jones, S, Thompson, A, Car, M., DUQuE Project Consortium, Klazinga, Niek S, Wang, Aolin, Lombarts, M.J.M.H., Escoval, A, Eiras, M., Wagner, Cordula, Bartels, P, Chow, A., Shaw, C, Arah, Onyebuchi A, DerSarkissian, M, ?, ?, Klazinga, N, Klaus, E, Arah, Onyebuchi A., Bruneau, C, Vallejo, P., Thompson, A., Kutryba, B., Lombarts, MJMH, Car, M, Sunol, Rosa, Vlcek, F, Ommen, O., Saluvan, M., Thompson, CA, Klaus, E., Bottaro, S, Thompson, Andrew, Saillour-Glenisson, F., Vallejo, P, Lopez, M. A., Klazinga, Niek S., Mannion, R, Michel, P, Arah, Onyebuchi A.., Ozturk, K, Pfaff, H., Universitat Autònoma de Barcelona, Hammer, A, Michel, P.   +101 more
core   +1 more source

Dietary Protein Intake and Peritoneal Protein Losses in Peritoneal Dialysis Patients

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Introduction Peritoneal dialysis (PD) patients lose protein in their waste dialysate, potentially increasing their risk for malnutrition. We wished to determine whether there was any association between losses and dietary protein intake (DPI). Methods DPI was assessed from 24‐h dietary recall using Nutrics software.
Haalah Shaaker, Andrew Davenport
wiley   +1 more source

Patient and public involvement and engagement (PPIE) with animal research [PDF]

, 2023
This is the final published version. Available from the Animal Research Nexus Project via the link in this recordInterim report from the Animal Research Nexus Project, January 2019Patient and Public Involvement and Engagement (PPIE) is increasingly ...
Gorman, R, Davies, G
core