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Benefits and challenges of a Patient & Public Involvement (PPI) peer researcher [PDF]

Research Involvement and Engagement
Involving a patient and public involvement (PPI) peer researcher with lived experience in clinical research is a relatively new concept and to our knowledge, has not been described in adult cardiac surgery. The integration of a PPI peer researcher with a
Nigel Westwood, Judith Tanner, Lyn Brierley-Jones, Ann Cheng, Melissa Rochon, Ricky Vaja, Jeremy Dearling, Keith Wilson, Gavin J. Murphy, Luke J. Rogers   +9 more
doaj   +2 more sources

Establishment of a competence office for patient involvement (PPI Office) at a German university hospital [PDF]

Research Involvement and Engagement
Background In recent years, the involvement of patient representatives has become increasingly important in the planning, conduct, and communication of clinical trials.
Bettina C. Thomas, Friederike Dominick, Andrea Seidel-Glätzer, Gregor B. Ottawa, Steffen P. Luntz   +4 more
doaj   +2 more sources

Maternal mental health: a key area for future research among women with congenital heart disease

Open Heart, 2023
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift, Nigel E Drury, Karin Eli, Caroline E Fox, Lucy E Hudsmith, Anna Lavis, James S Castleman, Donna Giles, Laura Grocott, Kirsty Harrison, Katharina Kaplan, Heather McDougall, Charlene Powell   +12 more
doaj   +1 more source

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

BMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin, Edward Meinert, Camille B Carroll, John Whipps, Sue Whipps, Rebecca Chapman, Marie-Louise Zeissler, Kate Hockey, Philip Hockey   +8 more
doaj   +1 more source

Organisation and delivery of supportive services for patients with prostate cancer in the National Health Service in England and Wales: a national cross-sectional hospital survey and latent class analysis

BMJ Open, 2023
Objectives We assessed how often National Health Service (NHS) hospitals reported that they had specific supportive services for patients with prostate cancer available onsite, including nursing support, sexual function and urinary continence services ...
Melanie Morris, Ajay Aggarwal, Jan van der Meulen, Noel Clarke, Adrian Cook, Heather Ann Payne, Joanna Dodkins, Julie Nossiter, Steve Prust, Steve Waller   +9 more
doaj   +1 more source

Adapting Patient and Public Involvement processes in response to the Covid‐19 pandemic

Health Expectations, 2023
Background The COVID‐19 pandemic brought rapid and major changes to research, and those wishing to carry out Patient and Public Involvement (PPI) activities faced challenges, such as restrictions on movement and contact, illness, bereavement and risks to
Claire Snowdon, Elizabeth Silver, Paul Charlton, Brian Devlin, Emma Greenwood, Andrew Hutchings, Susan Moug, Ravinder Vohra, Richard Grieve   +8 more
doaj   +1 more source

Planning and optimising a digital intervention to protect older adults’ cognitive health

Pilot and Feasibility Studies, 2021
Background By 2050, worldwide dementia prevalence is expected to triple. Affordable, scalable interventions are required to support protective behaviours such as physical activity, cognitive training and healthy eating.
Rosie Essery, Sebastien Pollet, Kirsten A. Smith, Fiona Mowbray, Joanna Slodkowska-Barabasz, James Denison-Day, Victoria Hayter, Katherine Bradbury, Elisabeth Grey, Max J. Western, Alexander Milton, Cheryl Hunter, Anne E. Ferrey, Andre Matthias Müller, Beth Stuart, Nanette Mutrie, Simon Griffin, Tony Kendrick, Helen Brooker, Bernard Gudgin, Rosemary Phillips, Tom Stokes, John Niven, Paul Little, Lucy Yardley   +24 more
doaj   +1 more source

Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample: Integrating the person‐based approach and patient and public involvement

Health Expectations, 2021
Background Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP.
Tanvi Rai, Kate Morton, Cristian Roman, Roisin Doogue, Cathy Rice, Marney Williams, Claire Schwartz, Carmelo Velardo, Lionel Tarassenko CBE, Lucy Yardley, Richard J. McManus, Lisa Hinton   +11 more
doaj   +1 more source

Social network participation towards enactment of self‐care in people with chronic obstructive pulmonary disease: A qualitative meta‐ethnography

Health Expectations, 2021
Background How people with chronic obstructive pulmonary disease (COPD) engage with supportive social networks to enhance self‐care is not understood. The personal rationales for participation in socially directed support have not been addressed in the ...
Lindsay Welch, Euan Sadler, Anthony Austin, Anne Rogers   +3 more
doaj   +1 more source

The mutual benefits of patient and public involvement in research: an example from a feasibility study (MoTaStim-Foot)

Research Involvement and Engagement, 2021
Plain English summary This article reports and analyses our public involvement in the research processes for a study funded by the National Institute for Health Research, the MoTaStim-Foot feasibility study. MoTaStim-Foot explored whether it was feasible
Alison M. Aries, Paul Bailey, Susan M. Hunter   +2 more
doaj   +1 more source