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Involving the public in research [PDF]
British Dental Journal, 2014 Patient and public involvement (PPI) in research is a rapidly developing initiative across biomedicine. It recognises that in addition to being the subjects of research, patients, the public and other users have an important contribution to make to the development, quality and relevance of research and to be advocates for oral health research.
openaire +2 more sources
Epistemic justice in public involvement and engagement: Creating conditions for impact
Health Expectations, 2022 Patient and public involvement in research is anchored in moral and epistemological rationales. Moral rationales relate to the public having a right to influence how knowledge about them is generated.
K. Liabo +5 more
semanticscholar +1 more source
Correction to: Abstracts from the NIHR INVOLVE Conference 2017
Research Involvement and Engagement, 2018 Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie +11 more
doaj +1 more source
The public and patient involvement imperative in Ireland: Building on policy drivers
Frontiers in Public Health, 2022 What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle +9 more
doaj +1 more source
Remote working in public involvement: findings from a mixed methods study
Research Involvement and Engagement, 2022 Background This paper considers remote working in patient public involvement and engagement (PPIE) in health and social care research. With the advent of the Covid-19 pandemic and associated lock-down measures in the UK (from March 2020), PPIE activities
Elisa Jones +7 more
semanticscholar +1 more source
Regional working in the East of England: using the UK National Standards for Public Involvement
Research Involvement and Engagement, 2018 Plain English summary Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK).
Elspeth Mathie +6 more
doaj +1 more source
BMJ Open, 2023 Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin +8 more
doaj +1 more source
Research Involvement and Engagement, 2022 Background Smartphones are being increasingly used for research owing to their multifunctionality and flexibility, and crowdsourced research using smartphone applications (apps) is effective in the early detection and management of chronic diseases.
Kenta Fujio +16 more
semanticscholar +1 more source
BMC Health Services Research, 2021 Background Internationally, it is expected that health services will involve the public in health service design. Evaluation of public involvement has typically focused on the process and experiences for participants.
Nicola Lloyd, A. Kenny, Nerida Hyett
semanticscholar +1 more source
Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA
Frontiers in Medical Technology, 2021 The COVID-19 pandemic and lockdown measures in the United Kingdom resulted in significant challenges and created opportunities for innovation to keep patients at the heart of HTA.
Mark Rasburn +6 more
doaj +1 more source