Results 11 to 20 of about 659,515 (266)

Patient and public involvement [PDF]

Annals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart, R, Wilson, P, Selby, J, Darbyshire   +3 more
openaire   +2 more sources

Involving the public in research [PDF]

British Dental Journal, 2014
Patient and public involvement (PPI) in research is a rapidly developing initiative across biomedicine. It recognises that in addition to being the subjects of research, patients, the public and other users have an important contribution to make to the development, quality and relevance of research and to be advocates for oral health research.
openaire   +2 more sources

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

Research Involvement and Engagement, 2018
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland, Julia Jones   +11 more
doaj   +1 more source

Regional working in the East of England: using the UK National Standards for Public Involvement

Research Involvement and Engagement, 2018
Plain English summary Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK).
Elspeth Mathie, Helena Wythe, Diane Munday, Graham Rhodes, Penny Vicary, Paul Millac, Julia Jones   +6 more
doaj   +1 more source

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

BMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin, Edward Meinert, Camille B Carroll, John Whipps, Sue Whipps, Rebecca Chapman, Marie-Louise Zeissler, Kate Hockey, Philip Hockey   +8 more
doaj   +1 more source

Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA

Frontiers in Medical Technology, 2021
The COVID-19 pandemic and lockdown measures in the United Kingdom resulted in significant challenges and created opportunities for innovation to keep patients at the heart of HTA.
Mark Rasburn, Helen Crosbie, Amanda Tonkinson, David Chandler, Tasneem Dhanji, Stephen Habgood, Stella O'Brien   +6 more
doaj   +1 more source

Co-creation of a complex, multicomponent rehabilitation intervention and feasibility trial protocol for the PostUraL tachycardia Syndrome Exercise (PULSE) study

Pilot and Feasibility Studies, 2023
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce, Nikki Holliday, Harbinder Sandhu, Helen Eftekhari, Julie Bruce, Emma Timms, Laura Ablett, Lesley Kavi, Jane Simmonds, Rebecca Evans, Paul Magee, Richard Powell, Shane Keogh, Gordon McGregor   +13 more
doaj   +1 more source

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

Journal of Patient Experience, 2023
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes, Timothy J. Coats MD, Simon P. Conroy PhD, Jagruti Lalseta, Vivien Richardson, Peter Riley, Jose M. Valderas PhD, Nicola Mackintosh PhD   +7 more
doaj   +1 more source

Ethnicity recording in health and social care data collections in Ireland: where and how is it measured and what is it used for?

International Journal for Equity in Health, 2019
Background In the European Union (EU), discrimination based on racial and ethnic origin is prohibited under the Racial Equality Directive. Ireland is one of only three EU countries where a legal duty of equality data collection is placed on public bodies.
Ailish Hannigan, Nazmy Villarroel, Maria Roura, Joseph LeMaster, Alphonse Basogomba, Colette Bradley, Anne MacFarlane   +6 more
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Public involvement could usefully inform ethical review, but rarely does: what are the implications?

Research Involvement and Engagement, 2017
Plain English summary Researchers carrying out research in the NHS in England have to obtain approval for their study from an NHS Research Ethics Committee (REC).
Kristina Staley, Jim Elliott
doaj   +1 more source