Results 121 to 130 of about 358,401 (266)

An international cross-sectional study of dementia researchers' own perspectives on patient and public involvement. [PDF]

Sci Rep
Fusdahl P, Hernandez DC, Baldera JP, Rongve A, Khachaturian A, Aarsland D, Testad I, Borda MG.   +7 more
europepmc   +1 more source

Involving Patients and the Public [PDF]

Health Expectations, 2001
openaire   +1 more source

Super‐Refractory Status Epilepticus (SRSE) in a Patient With Compound Heterozygous OPA1 Variants: Case Report and Literature Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Super‐Refractory Status Epilepticus (SRSE) is a rare, life‐threatening neurological emergency with unclear etiology in many cases. Mitochondrial dysfunction, often due to disease‐causing genetic variants, is increasingly recognized as a cause, with each gene producing distinct pathophysiological mechanisms.
Pouria Mohammadi, Lara Basovic, Christopher Michael McGraw   +2 more
wiley   +1 more source

Defining Patient and Public Involvement and Engagement Tasks in Health Data Research: A Consensus Study. [PDF]

Health Expect
Evans HG, Robinson OC, von Nerée L, Smith B, Yu R, Bellavia E, Speechley J, Walsh J, Stanworth S, Foy R.   +9 more
europepmc   +1 more source

Neuropsychiatric Symptoms Mimicking Dementia in a Patient Treated With Imatinib

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Tyrosine kinase inhibitors are the cornerstone of chronic myeloid leukemia treatment. Newer agents have more potency and a broader spectrum of action, but also a higher potential for neuropsychiatric side effects. We present a case of a patient on imatinib who developed progressive cognitive, mood, and behavioral alterations.
Ashley Jones, Samuele Bonomi, Keith E. Stockerl‐Goldstein, Randall J. Bateman   +3 more
wiley   +1 more source

Consortium-Based Patient and Public Involvement and Engagement for Long COVID Research: A Pirit-Focused Impact Evaluation of the PHOSP-COVID Study. [PDF]

Health Expect
Houchen-Wolloff L, Bell J, Pritchard R, Poinasamy K, Holmes K, Walker S, Smith N, Hastie C, Rogers N, Adams D, Nathu R, Gill R, Bunker J, Staunton L, Chalmers J, Ho LP, Harris V, Horsley A, Marks M, Raman B, Wain LV, Brightling C, Evans R.   +22 more
europepmc   +1 more source

Shared Genetic Effects and Antagonistic Pleiotropy Between Multiple Sclerosis and Common Cancers

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Epidemiologic studies have reported inconsistent altered cancer risk in individuals with multiple sclerosis (MS). Factors such as immune dysregulation, comorbidities, and disease‐modifying therapies may contribute to this variability.
Asli Buyukkurt, Marius Ygonia, Ali Manouchehrinia, Philippe Lefrançois, Ingrid Kockum, Adil Harroud   +5 more
wiley   +1 more source

Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller, Lauren N. Coffey, Shelley R. H. Mockler, Katie M. Laubscher, Carrie M. Stephan, M. Bridget Zimmerman, Katherine D. Mathews   +6 more
wiley   +1 more source

Patient and Public Involvement and Engagement within a UK blood cancer cohort: a case study. [PDF]

Res Involv Engagem
Howell D, Miller C, Rebane A, Sheridan R, Roman E, Smith A.   +5 more
europepmc   +1 more source

Opportunities and pathways for patient and public involvement [PDF]

Health Expectations, 2019
openaire   +2 more sources