Results 101 to 110 of about 975,488 (355)

Study within a trial (SWAT) protocol. Participants' perspectives and preferences on clinical trial result dissemination: The TRUST Thyroid Trial experience. [PDF]

, 2017
INTRODUCTION: Dissemination of results of randomised controlled trials is traditionally limited to academic and professional groups rather than clinical trial participants.
Cheung, Aoife, Hurley, Caroline, Kearney, Patricia M, Matvienko-Sikar, Karen, Racine, Emmy, Sinnott, Carol, Smithson, William H   +6 more
core   +1 more source

Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles, Greg Russell, Leila H. DeWitt, Kimberly Montez, Callie L. Brown   +4 more
wiley   +1 more source

Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective [PDF]

, 2016
PurposeActive patient engagement is increasingly viewed as essential to ensuring that patient-driven perspectives are considered throughout the research process. However, guidance for patient engagement (PE) in HRQoL research does not exist, the evidence-
Anne Lyddiatt, D Snape, DCD Howitt, F Gradinger, I Chalmers, JE Wilkinson, JID Brown, K Charmaz, K Haywood, Kirstie Haywood, L Frank, L Spencer, M Wit de, MPT Wit de, P Wilson, PP Cheung, S Staniszewska, S Staniszewska, Sam Salek, Samantha J. Brace-McDonnell, Sophie Staniszewska   +20 more
core   +4 more sources

A blueprint for patient and public involvement in the development of a reporting guideline for systematic reviews of outcome measurement instruments: PRISMA-COSMIN for OMIs 2024

Research Involvement and Engagement
In recent years, projects to develop reporting guidelines have attempted to integrate the perspectives of patients and public members. Best practices for patient and public involvement (PPI) in such projects have not yet been established.
E. Elsman, Maureen Smith, Catherine Hofstetter, Frank Gavin, Estelle Jobson, Sarah Markham, Juanna Ricketts, A. Baba, Nancy J. Butcher, Martin Offringa   +9 more
semanticscholar   +1 more source

Correction to: Does a Screening Trial for Spinal Cord Stimulation in Patients with Chronic Pain of Neuropathic Origin have Clinical Utility and Cost-Effectiveness? (TRIAL-STIM Study): study protocol for a randomised controlled trial

Trials, 2019
Following publication of the original article [1], we have been notified that the final specification of randomisation implemented in the study is slightly different to that stated in the protocol and needs to be corrected as follows:
Sam Eldabe, Ashish Gulve, Simon Thomson, Ganesan Baranidharan, Rui Duarte, Susan Jowett, Harbinder Sandhu, Raymond Chadwick, Morag Brookes, Anisah Tariq, Jenny Earle, Jill Bell, Anu Kansal, Shelley Rhodes, Rod S. Taylor   +14 more
doaj   +1 more source

Protocol for a longitudinal qualitative interview study: maintaining psychological well-being in advanced cancer - what can we learn from patients' and carers' own coping strategies? [PDF]

, 2013
IntroductionPeople with advanced cancer and their carers experience stress and uncertainty which affects the quality of life and physical and mental health.
Appleton, L., Calman, L., Grande, G., Large, P., Lloyd-Williams, M., Roberts, D., Walshe, C.   +6 more
core   +1 more source

A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research

Research Involvement and Engagement
There are marked inequalities in palliative care provision. Research is needed to understand how such inequalities can be addressed, so that everyone living with advanced illness can receive the care they need, when they need it.
Sarah Mitchell, Nicola Turner, Kate Fryer, Jude Beng, M. Ogden, M. Watson, Clare Gardiner, Joanne Bayly, K. Sleeman, C. Evans   +9 more
semanticscholar   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee, Holly Evans, Claire E. Wakefield, Antoinette Anazodo, Richard J. Cohn, Brittany C. McGill, Elizabeth A. Lobb, Lori Wiener, Madeleine L. Juhrmann, Ursula M. Sansom‐Daly   +9 more
wiley   +1 more source

Exploring the Impact of Patient and Public Involvement in a Cancer Research Setting [PDF]

, 2014
An enduring theme in the literature exploring patient and public involvement (PPI) in research has been the focus on evaluating impact, defined usually in terms of participants’ practical contribution to enhancing research processes.
Armitage, Chris J., Barber, Rosemary, Bissell, Paul, Cooper, Cindy, Thompson, Jill   +4 more
core   +1 more source

Activity provider-facilitated patient and public involvement with care home residents

Research Involvement and Engagement
In care home research, residents are rarely included in patient and public involvement and engagement (PPIE) despite their lived experiences of day-to-day care.
Kerry Micklewright, A. Killett, G. Akdur, Priti Biswas, Pamela Blades, Lisa Irvine, Liz Jones, J. Meyer, Natalie Ravenscroft, Hilary Woodhead, Claire Goodman   +10 more
semanticscholar   +1 more source