Results 91 to 100 of about 975,488 (355)

Mapping health services for adults with cerebral palsy in Ireland: a pilot study [version 2; peer review: 1 approved, 2 approved with reservations]

HRB Open Research, 2022
Background: Cerebral palsy (CP) is a common cause of physical disability in childhood. The majority of children with CP survive to adulthood. Once discharged from children’s services, adults with CP find it challenging to navigate health services.
Fiona Weldon, Shalini Jagdeo, Rory O'Sullivan, Claire Kerr, Sarah Harrington, Jennifer M Ryan, Manjula Manikandan, Jennifer Fortune   +7 more
doaj   +1 more source

Expert patient perspectives on radiotherapy: a phenomenological comparison [PDF]

, 2017
BackgroundPatient involvement in health profession student training is becoming more common and includes clinical case studies, informing curriculum development and active teaching in dedicated patient experience sessions. Despite a growing evidence base
Bridge, P, Carmichael, M
core   +1 more source

The impact of patient and public involvement in the health services: a conceptual review spanning social sciences and health sciences

SSM - Qualitative Research in Health
To understand patient and public involvement (PPI) and its potential impact in the healthcare services more comprehensively, the social science literature on public participation in governing public services must be integrated with the health science ...
M. Fredriksson, Filipa Sampaio, Linda Moberg   +2 more
semanticscholar   +1 more source

Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review

Health Expectations, 2022
Patient and public involvement (PPI) has become increasingly important in the development, delivery and improvement of healthcare. PPI is used in healthcare innovation; yet, how it is used has been under‐reported.
Victoria Cluley, A. Ziemann, Claire Feeley, E. Olander, S. Shamah, C. Stavropoulou   +5 more
semanticscholar   +1 more source

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright, Morgan A. Paul, Selena Murcia Mendez, Emily Jones, Lucille Lokko, Chelsea Heneghan, Nicholas Purol, Morgan Arnold, Rahela Aziz‐Bose, Colleen A. Kelly, Sandi L. Pruitt, Joanne Wolfe, Kira Bona, Puja J. Umaretiya   +13 more
wiley   +1 more source

Incorporation of patient and public involvement in statistical methodology research: development of an animation

Research Involvement and Engagement, 2023
Background Patient and Public Involvement and Engagement (PPIE) is important to all aspects of health research. However, there are few examples of successful PPIE in statistical methodology research.
Hannah M Worboys, Jonathan Broomfield, Aiden Smith, Rachael Stannard, F. Tyrer, Elpida Vounzoulaki, Barbara Czyznikowska, Gurpreet Grewal-Santini, Justin Greenwood, Laura J. Gray   +9 more
semanticscholar   +1 more source

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

Does a Screening Trial for Spinal Cord Stimulation in Patients with Chronic Pain of Neuropathic Origin have Clinical Utility and Cost-Effectiveness? (TRIAL-STIM Study): study protocol for a randomised controlled trial

Trials, 2018
Background The TRIAL-STIM Study aims to assess the diagnostic performance, clinical outcomes and cost-effectiveness of a screening trial prior to full implantation of a spinal cord stimulation (SCS) device.
Sam Eldabe, Ashish Gulve, Simon Thomson, Ganesan Baranidharan, Rui Duarte, Susan Jowett, Harbinder Sandhu, Raymond Chadwick, Morag Brookes, Anisah Tariq, Jenny Earle, Jill Bell, Anu Kansal, Shelley Rhodes, Rod S. Taylor   +14 more
doaj   +1 more source

The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

Research Involvement and Engagement, 2020
As public involvement in the design, conduct and dissemination of health research has become an expected norm and firmly enshrined in policy, interest in measuring its impact has also grown. Despite a drive to assess the impact of public involvement, and
Jill Russell, Nina Fudge, Trish Greenhalgh   +2 more
doaj   +1 more source

Musings about involvement in research… [PDF]

, 2015
Almost every research funding application will now have a section asking about involvement, be it “patient and public involvement”, “public involvement” or “user, carer, practitioner involvement”
Blog Admin, LSE Social Care Research Impact Blog
core