Results 201 to 210 of about 383,023 (311)

Real-Time Cardiac Biofeedback Intervention: Experiences of Patient and Public Involvement in a Randomized Controlled Trial. [PDF]

J Particip Med
Bobou M, Tanzer M, Saramandi A, Selai C, Jenkinson PM, Fotopoulou A.   +5 more
europepmc   +1 more source

Screening Routine Clinical Notes for Epilepsy Surgery Candidates Using Large Language Models

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Epilepsy surgery is severely underutilized despite proven efficacy, with substantial under‐referral of eligible patients in routine clinical practice. This study evaluated the potential role of large language models (LLMs) as decision‐support tools for screening unstructured clinical notes to identify epilepsy surgery candidates and ...
Uriel Fennig, Nadav Amir, Maya Schiller, Roni Loebenstein, Johnatan Nissan, Marina Boxer, Shany Guly Gofrit, Gal Goshen, Sándor Beniczky, Nicola Maggio   +9 more
wiley   +1 more source

An international cross-sectional study of dementia researchers' own perspectives on patient and public involvement. [PDF]

Sci Rep
Fusdahl P, Hernandez DC, Baldera JP, Rongve A, Khachaturian A, Aarsland D, Testad I, Borda MG.   +7 more
europepmc   +1 more source

Sex‐Stratified Association of Regional Dopamine Transporter Binding With Disease Progression in Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To clarify the clinical relevance of dopamine transporter single‐photon emission computed tomography (DAT‐SPECT) abnormalities in amyotrophic lateral sclerosis (ALS), with a prespecified focus on sex‐stratified associations with disease progression and short‐term prognosis.
Tomoya Kawazoe, Keizo Sugaya, Kentaro Hayashi, Keiko Hino, Yasuhiro Nakata, Kota Bokuda, Toshio Shimizu, Kazushi Takahashi   +7 more
wiley   +1 more source

Reflections on and recommendations from the OCEANIC study CYP and parent advisory group: a Patient and Public Involvement and Engagement case study. [PDF]

Res Involv Engagem
Popejoy E, Menzies J, Sheikhi A, O'Loughlin S, O'Loughlin F, Barker D, White R, Latour JM, Draper ES, Quinlan P, Coad J, Manning JC.   +11 more
europepmc   +1 more source

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Development of a 4Pi national involvement standards-based questionnaire to evaluate patient and public involvement. [PDF]

Res Involv Engagem
Watson K, Morton R, Milenova M, Chaplin HA, Letbe-Holder E, Hackett F, Khoshaba B, Chua KC, Russo M.   +8 more
europepmc   +1 more source

Prominent Movement Disorders in RNU2‐2‐Related Spliceosomopathy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Pediatric movement disorders often overlap with neurodevelopmental diseases, suggesting shared molecular mechanisms. Variants in small nuclear RNA (snRNA) genes encoding spliceosome components have recently been associated with neurodevelopmental disorders, termed “RNUopathies.” We analyzed genome sequencing data from 14 patients with ...
Magdalena Krygier, Ugo Sorrentino, Matias Wagner, Marta Zawadzka, Anna Lemska, Maria Mazurkiewicz‐Bełdzińska, Michael Zech   +6 more
wiley   +1 more source

Assessing the impact, uptake and use of reporting guidelines for patient and public involvement in research: GRIPP2 - study protocol for a meta-research project. [PDF]

BMJ Open
Catalá-López F, Ganuza E, Alonso-Arroyo A, Perna R, Tricco AC, Hutton B, Colin C, Tejedor-Romero L, Ridao M, Bautista-Puig N, Tabarés-Seisdedos R, Aleixandre-Benavent R, Nafria-Escalera B, Staniszewska S, Moher D.   +14 more
europepmc   +1 more source

Patient and public involvement in research reporting

BMJ
Staniszewska, S, Hopewell, S, Richards, DP, Chidebe, RCW   +3 more
openaire   +2 more sources