Results 51 to 60 of about 726,755 (304)

Decision aids can support cancer clinical trials decisions: Results of a randomized trial [PDF]

, 2016
BACKGROUND. Cancer patients often do not make informed decisions regarding clinical trial participation. This study evaluated whether a web-based decision aid (DA) could support trial decisions compared with our cancer center’s website. METHODS.
Byrne, Margaret M, Kaphingst, Kimberly A, Kuzemchak, Marie D, Liu, Jingxia, Perkins, Hannah, Politi, Mary C   +5 more
core   +2 more sources

Patients’ and Providers’ Needs and Preferences When Considering Fertility Preservation Before Cancer Treatment: Decision-Making Needs Assessment

JMIR Formative Research, 2021
BackgroundAs cancer treatments continue to improve, it is increasingly important that women of reproductive age have an opportunity to decide whether they want to undergo fertility preservation treatments to try to protect their ability to have a child ...
Hoffman, Aubri, Crocker, Laura, Mathur, Aakrati, Holman, Deborah, Weston, June, Campbell, Sukhkamal, Housten, Ashley, Bradford, Andrea, Agrawala, Shilpi, Woodard, Terri L   +9 more
doaj   +1 more source

Development of a web-based insulin decision aid for the elderly: usability barriers and guidelines [PDF]

, 2017
In recent years, researchers have attempted to shift patient decision aids (PDAs) from paper-based to web-based to increase its accessibility. Insulin decision aids help diabetes patients, most of whom are elderly to make an informed decision to start ...
A Yahaya, AL Strauss, Angeline Su Lyn Lum, Chin Hai Teo, Chirk Jenn Ng, CJ Ng, CJ Ng, CJ Ng, CJ Ng, D Feldman-Stewart, D Silverman, G Elwyn, GR Letchuman, M Holmes-Rovner, M Korytkowski, M Zajicek, NA Zainuddin, P Zaharias, Ping Yein Lee, RJ Caserta, RJ Hodes, RN Taylor, S Henninger, SA Becker, SA Westphal, T Hedden, Thiam Kian Chiew, Yew Kong Lee, YK Lee   +28 more
core   +1 more source

The HIT Network for Children and Adolescents With CNS Tumors Facilitates Improvements of Diagnostic Assessments, Multimodal Treatments, Individual Counseling, and Research in Germany, Austria, and Switzerland

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The HIT network was established in 2000 to create a population‐based structure aiming to improve survival rates and reduce late effects for children with central nervous system (CNS) tumors by conducting comprehensive clinical trials.
Stefan Rutkowski, Michael C. Frühwald, Gudrun Fleischhack, Stephan Tippelt, Pablo Hernáiz‐Driever, Olaf Witt, Astrid Gnekow, Christof Kramm, Matthias Eyrich, Johannes E. A. Wolf, Hermann Müller, Carsten Friedrich, Uwe R. Kordes, Denise Obrecht‐Sturm, Petra Ketteler, Barbara von Zezschwitz, Pascal Johann, Dominik Sturm, Karoline Nemes, Stefan Schönberger, Till Milde, Brigitte Bison, Monika Warmuth‐Metz, Torsten Pietsch, Ulrich Schüller, Arend Koch, David Capper, Martin Hasselblatt, Christian Thomas, Christian Hagel, Stefan M. Pfister, Felix Sahm, David T. W. Jones, Martin U. Schuhmann, Jürgen Krauss, Pedram Emami, Ahmed El Damaty, Rolf D. Kortmann, Rudolf Schwarz, Jürgen Debus, Mechthild Krause, Fabian Pohl, Holger Ottensmeier, Lisa Bußenius, Katja Baust, Andreas Faldum, Cecile Ronckers, Desiree Grabow, Martin Benesch, Thomas Perwein, Karin Dieckmann, Irene Slavc, Johannes Gojo, Nicolas U. Gerber, André O. von Bueren, Katrin Scheinemann, Gabriele Calaminus, Beate Timmermann, Ulrich‐Wilhelm Thomale, Martin Mynarek   +59 more
wiley   +1 more source

A review of paper-based advance care planning aids

BMC Palliative Care, 2018
Background Advance care planning (ACP) aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making. We wished to describe the content and approach of paper-based ACP aids in order to characterize existing aids
John F. P. Bridges, Thomas Lynch, Anne L. R. Schuster, Norah L. Crossnohere, Katherine Clegg Smith, Rebecca A. Aslakson   +5 more
doaj   +1 more source

Development and Acceptability of a Kidney Therapy Decision Aid for Patients Aged 75 Years and Older: A Design-Based Research Involving Patients, Caregivers, and a Multidisciplinary TeamPlain Language Summary

Kidney Medicine, 2023
Rationale & Objective: Many older adults prefer quality of life over longevity, and some prefer conservative kidney management (CKM) over dialysis.
Fahad Saeed, Spencer Dahl, Robert K. Horowitz, Paul R. Duberstein, Ronald M. Epstein, Kevin A. Fiscella, Rebecca J. Allen   +6 more
doaj   +1 more source

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware, Colter K. Clayton, Fang Wang, Sedigheh Mirzaei, Kyla Shelton, Tara M. Brinkman, Victoria Willard, Katianne M. Howard Sharp, Kevin Krull, Lindsay F. Schwartz, Melissa M. Hudson, Gregory T. Armstrong, Kirsten K. Ness, Rachel T. Webster   +13 more
wiley   +1 more source

Patient Acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: A Prospective Non-Randomized Comparison Study Across 6 Predialysis Services [PDF]

, 2016
Background: Patients are satisfied with their kidney care but want more support in making dialysis choices. Predialysis leaflets vary across services, with few being sufficient to enable patients’ informed decision making.
Abhyankar P., Bekker H., Bekker H.L., Conner M., Coulter A., Horne R., Janis I.L., Leventhal A., Ley P., Loud F., Légaré F., National Clinical Guideline Centre – CG125., National Clinical Guideline Centre – CG182., O'Connor A., Ormandy P., Stacey D., Stein A., Tabachnick B.G., Trevena L.J., Von Winterfeldt D.   +19 more
core   +2 more sources

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia, Giulia Reggiani, Elizabeth J. Maran, Maria Elisa Delle Fave, Ilaria Baido, Anna Chiara Frigo, Maria Paola Boaro, Raffaella Colombatti   +7 more
wiley   +1 more source

Patient decision aid for trial of labor after cesarean (TOLAC) versus planned repeat cesarean delivery: a quasi-experimental pre-post study

BMC Pregnancy and Childbirth, 2021
Objective To assess the impact of a web-based decision aid on patient-centered decision making outcomes among women considering a trial of labor after cesarean (TOLAC) versus planned repeat cesarean delivery. Methods The Birth Decision Aid Study (B-READY)
Kartik K. Venkatesh, Suzanne Brodney, Michael J. Barry, Jamie Jackson, Kiira M. Lyons, Asha N. Talati, Thomas S. Ivester, Maria C. Munoz, John M. Thorp, Wanda K. Nicholson   +9 more
doaj   +1 more source