Results 31 to 40 of about 760,216 (304)

Patient involvement in guidelines is poor five years after institute of medicine standards: review of guideline methodologies

Research Involvement and Engagement, 2017
Plain English summary The 2011 standards for trustworthy development of healthcare guidelines published by the United States-based Institute of Medicine recommend that guideline developers involve patients and public representatives in the development ...
Melissa J. Armstrong, Joshua A. Bloom
doaj   +1 more source

Patient and Citizen Participation in the Identification of Ethical Considerations Aiming to Address Uncertainty in the Evaluation of Promising Interventions in a Pandemic Context

Frontiers in Medical Technology, 2021
Since the beginning of the COVID-19 pandemic, numerous studies have been conducted to identify interventions that could contribute to alleviating the burden it has caused.
Catherine Olivier, Catherine Olivier, Isabelle Ganache, Isabelle Ganache, Olivier Demers-Payette, Louis Lochhead, Louis Lochhead, Sandra Pelaez, Sandra Pelaez, Michèle de Guise, Marie-Pascale Pomey, Marie-Pascale Pomey, Marie-Pascale Pomey, Marie-Pascale Pomey   +13 more
doaj   +1 more source

Patient participation in medical consultations: the experience of patients from various ethnolinguistic backgrounds

, 2019
Patient participation in health care is a priority. Yet, patients’ perspective with regards to their experiences of participation is not well understood. Moreover, few studies have attempted to explore the perspective of ethnolinguistic minority patients.
Yvan Leanza, Annabel Levesque, Rocque, Rhéa, Leanza, Yvan, Rhéa Rocque, Levesque, Annabel   +5 more
core   +1 more source

Building an Effective Doctor-Patient Relationship: From Patient Satisfaction to Patient Participation

, 1985
Patient satisfaction is rejected as a sufficient measure of the quality and effectiveness of the physician patient relationship. Satisfaction appears to be correlated with passive acquiescence to treatment but not with commitment to health promoting ...
Rose, David N., Speedling, Edward J.
core   +1 more source

Patient participation in transitional care of older patients [PDF]

, 2016
PhD thesis in Health, medicine and welfareBackground: Older patients often have several health challenges, with multiple medications, which leads to a need of treatment and care from diverse healthcare services.
Dyrstad, Dagrunn Nåden
core   +1 more source

Patient satisfaction while enrolled in clinical trials: A literature review

, 2021
Patient satisfaction surveys may not adequately reflect organizations that conduct research in patients who enroll in clinical trials. The purpose of this systematic literature review was to summarize the current state of knowledge of patient ...
D\u27Aquila, Richard T, Richard T D'Aquila, Evan Paelmo, Emily I Moreland, Moreland, Emily I, Ashley N Trost, Charlotta Weaver, Pasquesi, Joan, Ilufredo Y Tantoy, Ilufredo Tantoy, Joan Pasquesi, Tantoy, Ilufredo Y, Emily Moreland, Andrea N Bright, Andrea Bright, Weaver, Charlotta, Ashley Trost, Paelmo, Evan, Richard D'Aquila, Bright, Andrea N, Trost, Ashley N   +20 more
core   +1 more source

Establishment of a competence office for patient involvement (PPI Office) at a German university hospital

Research Involvement and Engagement
Background In recent years, the involvement of patient representatives has become increasingly important in the planning, conduct, and communication of clinical trials.
Bettina C. Thomas, Friederike Dominick, Andrea Seidel-Glätzer, Gregor B. Ottawa, Steffen P. Luntz   +4 more
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

The Patient Navigator: Can a systematically developed online health information tool improve patient participation and outcomes related to the consultation in older patients newly diagnosed with colorectal cancer?

BMC Cancer, 2022
Background Older cancer patients may search for health information online to prepare for their consultations. However, seeking information online can have negative effects, for instance increased anxiety due to finding incorrect or unclear information ...
Melanie de Looper, Ellen M. A. Smets, Barbara C. Schouten, Sifra Bolle, Eric H. J. Belgers, Eric H. Eddes, Jeroen W. A. Leijtens, Julia C. M. van Weert   +7 more
doaj   +1 more source