Results 101 to 110 of about 13,682,106 (300)

Literacy levels required to complete routinely used patient-reported outcome measures in rheumatology [PDF]

, 2012
Objective. To assess the reading levels required to complete patient-reported outcome measures (PROs)commonly used in rheumatology clinical and research settings.Methods. Ten PROs written in English were evaluated.
Ryan, Sarah-Jane, Adams, Jo, Adams, J., Bradley, Sarah, Ryan, Sarah Jane, Bradley, S., Ryan, S.J., Chapman, Judith   +7 more
core   +1 more source

“We Cannot Talk as a Family”: Complexities of Survivorship Communication Among Hispanic/Latino Young Adult Survivors of Childhood Cancer, Parents, and Clinicians

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Young adult childhood cancer survivors (YA‐CCS) have an increased risk of treatment‐related health complications throughout their lives. Lifelong survivorship care is recommended, yet many YA‐CCS experience disruptions in care during pediatric‐to‐adult transitions and do not receive recommended survivorship care.
Kevin Shanchen Pu, Nicole Fernández‐Viña, Briana C. Martin‐Villa, Daniela Ramirez, Rebecca M. Lewinsohn, Mary Smith, Heidi Boynton, Lidia Schapira, Stephanie M. Smith   +8 more
wiley   +1 more source

Mit PROM und PREM zu Patient Centered Care

Monitor Versorgungsforschung
In Deutschland ist der aktuelle Stand der Nutzung von Patient-Reported Outcome Measures (PROM) und Patient-Reported Experience Measures (PREM) ausbaufähig. Derzeit erfolgt hierzulande die Anwendung dieser Instrumente eher noch in einem fragmentierten und
Peter Stegmaier
doaj   +1 more source

Identifying Patterns of Hospitalizations Among Childhood Cancer Survivors: A Population‐Based Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Childhood cancer survivors (CCSs) experience more hospitalizations than the general population. We aimed to identify distinct hospitalization patterns among Queensland CCSs and the associated characteristics. Methods Cases (aged ≤14 years) diagnosed between 1995 and 2019 while residents of Queensland were identified through the ...
Hai Pham, Teyl Engstrom, Peter Baade, Natalie Bradford, Sarah Pont, Louise Marquart‐Wilson, Natasha Nassar, Jason D. Pole   +7 more
wiley   +1 more source

Identification of patient-reported outcomes measures (PROMs) and patient-reported experiences measures (PREMs) in Gaucher disease in Spain

Medicina Clínica
Patient-reported outcome measures (PROMs) and patient-reported experiences measures (PREMs) are crucial for understanding the impact of GD on quality of life and patient's perceptions on care, but also to guide decision-making processes. Nevertheless, no specific PREMs in GD have been published, neither PROMs for Spanish GD patients have been developed.
Giraldo P, Camprodón M, Alcolea PC, Gras-Colomer E, Ibarretxe D, Lakhwani S, Mora E, Calderón MPV, Morales-Conejo M   +8 more
openaire   +3 more sources

Evidence‐Based Clinical Practice Guidelines for the Management of Pediatric Febrile Neutropenia: Resource‐Sensitive Recommendations for the Asian Continent

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Febrile neutropenia (FN) is a frequent and serious complication in children receiving cancer therapy. Standardizing FN management across Asia is challenging due to variable healthcare infrastructure, diagnostic capacity, and infection patterns; however, it could improve resource use and patient outcomes.
Joliza Patricia Cañeba, Shweta Bansal, Tea Reljic, Allyne Montecillo‐Aguelo, Hamidah Alias, Farrah Amaranto, Maria Stella Aquino‐Calingasan, Bambang Ardianto, Eggi Arguni, Sally Blair, Thi Tam Dang, Maria Beatriz Gepte, Samanmalee Gunasekara, Andini Handayani, Miriam Kimpo, Catherine G. Lam, Nawachai Lertvivatpong, Sergio Licona, Ana Loseo, Ratha Mlis, Vivian Moreno Berrio, Nguyen Hoai Anh, Anna Lisa Ong‐Lim, Ha Thu Pham, Krishna Sagar Sharma, Bun Sereyleak, Sally Jane G. Velasco‐Aro, Su Yadana, Ambuj Kumar, Sheena Mukkada   +29 more
wiley   +1 more source

Patient Experience Rounds (PER): Real-time feedback to improve the patient experience and quality of care [PDF]

, 2020
While patient feedback is critical to improving the patient experience and clinical care, we are currently limited in our ability to collect feedback in real-time from hospitalized patients.
Amber Moore, Bunker, Lydia, Caroline Moore, Lydia Bunker, Moore, Amber, Moore, Caroline, Barbara Sarnoff, Sarnoff, Barbara   +7 more
core   +1 more source

Abatacept for Prophylaxis of Acute and Chronic Graft‐Versus‐Host‐Disease in Children Undergoing Allogeneic Hematopoietic Stem Cell Transplantation—A Systematic Review and Meta‐Analysis of Cohort Studies

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Graft‐versus‐host disease (GvHD) remains one of the most significant complications of hematopoietic stem cell transplantation (HSCT). Abatacept, a selective T‐cell costimulation modulator, is a relatively novel prophylactic agent, though pediatric data remain limited.
Matthijs D. Kruizinga, Anne B. Verbeek, Caroline A. Lindemans, Emilie P. Buddingh   +3 more
wiley   +1 more source

Use of Patient-Reported Experience Measures in Pediatric Care

Frontiers in pediatrics, 2021
Introduction: Patient-reported Experience Measures (PREMs) are validated questionnaires, that gather patients' and families' views of their experience receiving care and are commonly used to measure the quality of care, with the goal to make care more patient and family-centered.
Bele, Sumedh, Teela, Lorynn, Zhang, Muning, Rabi, Sarah, Ahmed, Sadia, van Oers, Hedy Aline, Gibbons, Elizabeth, Dunnewold, Nicole, Haverman, Lotte, Santana, Maria J.   +9 more
openaire   +1 more source

The perioperative patient experience of hand and wrist surgical patients: An exploratory study using patient journey mapping [PDF]

, 2018
Patient-centred care is becoming more important in healthcare. The success of patient-centred care can be assessed by exploring the patient experience through a patient journey map.
Marijke Melles, Kraan, G.A. (author), Melles, M. (author), Kraan, Gerald, Melles, Marijke, Else F. de Ridder, Porsius, Jarry T, Tessa Dekkers, Gerald Kraan, de Ridder, Else F. (author), Jarry T Porsius, de Ridder, Else F., Jarry Porsius, Else de Ridder, Porsius, J.T. (author), Dekkers, T. (author), Dekkers, Tessa   +16 more
core   +1 more source