Results 111 to 120 of about 1,336,020 (297)

Patients’ preferences for nutrition-related health outcomes in liver disease : a preliminary study using an electronic questionnaire [PDF]

, 2014
Background: Patients with liver disease frequently have nutritional problems but intervening to improve these is challenging. Healthcare interventions that respond to patients’ needs are associated with better health outcomes but no studies investigating
Adams, Alberino, Anderson, Argyrous, Ashurst I de, Bradley, Carbone, Cook, Corner, Couper, Cullen, Department of Health., Department of Health., Department of Health., Devlin, Duncan, Galdas, Giguère, Hancock, Haywood, Hogg, Jackson, Jahagirdar, Johnson, Kibble, Koretz, Lacey, Mathers, Merli, Nicklin, Nicolucci, Pollard, Pope, Pulman, Richie, UK Government., Wong, Worth, Wright, Zimmermann, Zoellner   +40 more
core   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Venous Thromboembolism in Pediatric Bone Sarcoma Patients: A 10‐Year, Single‐Institution Experience Encompassing the COVID‐19 Pandemic

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Osteosarcoma (OS) and Ewing sarcoma (EWS) are the most common primary bone cancers in children, but acute thrombosis is poorly characterized in this population. Our study evaluated the rates of venous thromboembolism (VTE) and associated risk factors in pediatric patients with bone sarcomas treated over a 10‐year period encompassing
Sarah Kappa, Shou Xu, Mark Zobeck, Sarah E. Sartain, Nino Rainusso, Lisa Wang, Nicole Montgomery, Paige Wheaton, Sarah Whittle   +8 more
wiley   +1 more source

Patient-reported outcome measures and patient-reported experience measures [PDF]

BJA Education, 2017
Charlotte Kingsley, Sanjiv Patel
openaire   +1 more source

Deep Sequencing of FLT3‐ITD Enables Response Evaluation and Post‐Treatment Monitoring in Childhood AML: An Exploratory Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background An internal tandem duplication in the gene encoding Fms‐like tyrosine kinase 3 (FLT3‐ITD) is associated with high relapse risk and poor prognosis in acute myeloid leukemia (AML) and plays a crucial role in treatment decisions. Measurable residual disease (MRD) analysis of FLT3‐ITD during and after treatment has shown prognostic ...
Sofie Johansson Alm, Bea Tornberg, Erik Delsing Malmberg, Henrik Hasle, Kristian Løvvik Juul‐Dam, Lars Palmqvist, Borhan R. Saeed, Giti Shah Barkhordar, Anastasia Soboli, Anna Staffas, Jonas Abrahamsson, Linda Fogelstrand   +11 more
wiley   +1 more source

Patient-reported outcome and experience measures in primary care: a scoping review of systematic collection and use

BMC Health Services Research
Background Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are increasingly recognised as essential instruments for improving quality of care, accountability, and person-centredness.
Candan Kendir, Angel Gonzalez de la Fuente, Dionne Kringos, Michael van den Berg, Jose Maria Valderas, Niek Klazinga   +5 more
doaj   +1 more source

Measuring Quality in Hand Surgery Using Patient Reported Experience Measures

, 2020
Objectives/Interrogation: Patient-reported experience measures are becoming an international standard for measuring quality of healthcare delivery. Studies have shown that satisfied patients are more likely to have a positive outlook on their condition, and believe that their treatment will be [for full text, please go to the a.m. URL]
Tong, PY, Cen, D, Law, R, Rajaratnam, V
openaire   +2 more sources

Claudin‐6 Protein Expression in Atypical Teratoid/Rhabdoid Tumors Is Strongly Enriched in the Molecular Subgroup AT/RT‐TYR

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Claudin‐6 has emerged as a promising immunotherapeutic target, yet protein‐level data in atypical teratoid/rhabdoid tumors (AT/RTs) have been inconsistent. We analyzed 36 well‐characterized AT/RT samples and found membranous claudin‐6 protein expression in 58% of cases, with striking enrichment in the molecular subgroup AT/RT‐TYR (100%) and ...
Victoria E. Fincke, Christian Thomas, Michael C. Frühwald, Pascal D. Johann, Martin Hasselblatt   +4 more
wiley   +1 more source

The Association Between Patient-Reported Experience Measures and Patient-Reported Outcome Measures Among Patients With Diabetes in the Kingdom of Saudi Arabia

Value in Health Regional Issues
This study investigated the association between patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) among patients with diabetes in the Kingdom of Saudi Arabia.This quantitative cross-sectional study was conducted on 594 patients with diabetes from July to August 2023 at all primary healthcare centers affiliated ...
Alsubahi, Nizar, Pavlova, Milena, Alzahrani, Ahmed Ali, Ahmad, Ala'eddin, Groot, Wim   +4 more
openaire   +2 more sources

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source