Results 111 to 120 of about 13,682,106 (300)

Impact of Initial Treatment Setting on Survival in Relapsed Pediatric and AYA Bone Sarcomas: A Secondary Analysis of a Prospective Clinical Trial

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Outcomes in relapsed or refractory pediatric and AYA bone sarcomas remain poor, and the impact of early referral to specialized sarcoma centers on survival is unclear. Early centralization of care may improve local and systemic treatment quality, but evidence in this population is limited.
Justyna Antoniuk‐Majchrzak, Katarzyna Bilska, Tomasz Koziński, Jadwiga Węcławek‐Tompol, Dorota Sega‐Pondel, Radosław Chaber, Wanda Badowska, Katarzyna Rosłan, Hanna Koseła‐Paterczyk, Anna Raciborska   +9 more
wiley   +1 more source

Using patient-reported outcome measures and patient-reported experience measures to elevate the quality of healthcare

International Journal for Quality in Health Care, 2023
Pedro Casaca, Willemijn Schäfer, Ana Beatriz Nunes, Paulo Sousa   +3 more
openaire   +2 more sources

Patient experience of care in a student-faculty collaborative practice [PDF]

, 2014
Student Run Clinics (SRCs) are a popular means of caring for the underserved while providing valuable medical education opportunities. Reports of patient experience surveys are rare in this setting.
Laura Huppert, Knudsen, Janine, Elman, Scott, Powe, Camille, Pratyaksh Kumar Srivastava, Huppert, Laura, Barnett, Michael, Kyle Dempsey, Janine Knudsen, Rebecca Berman, Donelan, Karen, Dempsey, Kyle, Srivastava, Pratyaksh Kumar, Scott Elman, Karen Donelan, Camille Powe, Berman, Rebecca A, Rebecca A Berman, Michael Barnett, Pratyaksh Srivastava   +19 more
core   +1 more source

Neurocognitive, School‐Based, and Quality of Life Outcomes for Youth With Sickle Cell Disease and Thalassemia: A Scoping Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling, Hakim Tokhi, Alexander A. Boucher   +2 more
wiley   +1 more source

A Pragmatic Tele-Nursing Program Improves Satisfaction of Patients with Pulmonary Fibrosis and Their Caregivers—A Pilot Study

Medicina
Background and Objectives: Specialized nurses play an essential role in managing pulmonary fibrosis. While tele-nursing has the potential to optimize disease management, current evidence regarding its impact remains limited.
Mireia Baiges, David Iglesias, Sara Persentili, Marta Jiménez, Pilar Ortega, Jaume Bordas-Martinez   +5 more
doaj   +1 more source

Representation of Sickle Cell Disease Patients in Pediatric and Adult Care: What We Discovered Using Informatics for Integrating Biology and the Bedside (i2b2) Data

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Transitioning from pediatric to adult care is a high‐risk period for individuals with sickle cell disease (SCD). An initial observation at one academic medical center suggested a sex‐based disparity in clinic populations, prompting a national investigation.
Laurie J. Duckworth, Kholod Alhassan, Ada De La Osa, John Stephen, Yue Yao, Diana J. Wilkie   +5 more
wiley   +1 more source

Quality of life in chronic conditions using patient-reported measures and biomarkers: a DEA analysis in type 1 diabetes

Health Economics Review, 2019
Background A chronic disease impacts a patient’s daily life, with the burden of symptoms and managing the condition, and concerns of progression and disease complications.
Sixten Borg, Ulf-G. Gerdtham, Katarina Eeg-Olofsson, Bo Palaszewski, Soffia Gudbjörnsdottir   +4 more
doaj   +1 more source

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres, Cristina Tarango, Ashley Childress, Chunyan Liu, Evan Thomas, Jennifer Pomales, Eric S. Mullins   +6 more
wiley   +1 more source

Patient-reported outcome and experience measures in primary care: a scoping review of systematic collection and use

BMC Health Services Research
Background Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are increasingly recognised as essential instruments for improving quality of care, accountability, and person-centredness.
Candan Kendir, Angel Gonzalez de la Fuente, Dionne Kringos, Michael van den Berg, Jose Maria Valderas, Niek Klazinga   +5 more
doaj   +1 more source

Patient-reported outcome measures and patient-reported experience measures [PDF]

BJA Education, 2017
Charlotte Kingsley, Sanjiv Patel
openaire   +1 more source