Results 181 to 190 of about 1,321,475 (298)

Developing a core set of patient-reported outcomes and patient-reported experience measures for peritoneal surface malignancies (COMETE). [PDF]

Br J Surg, 2023
Taibi A, Sgarbura O, Villeneuve L, Eveno C, Pocard M, Bakrin N, Economos G, Odin C, Durand Fontanier S, Bardet SM, Goere D, Brigand C, Glehen O, Hübner M.   +13 more
europepmc   +1 more source

Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein, Maximilian Mönch, Meret Herdick, Frauke Stascheit, Sarah Hoffmann, Hannah Preßler, Philipp Mergenthaler, Carla Dusemund, Paolo Doksani, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Lea Gerischer, Sophie Lehnerer   +13 more
wiley   +1 more source

Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol. [PDF]

Health Expect
Harrison R, Newman B, Catlett B, Mimmo L, Wu L, Tokutake M, Phillips K, Hoek MV, Hoek DV, Manias E, Patterson P, Baumgartner DD, Bowen K, Trollor J, Woolfenden S, Strnadova I, Westbrook J, Mitchell R, Dew A, Olivier P, Mumford V, Badgery-Parker T, Ellis L, Rodier S, Szanto T, Small J, Adams C, Templeton M, Evans J, Hackl NA, Churruca K, Hadley AM.   +31 more
europepmc   +1 more source

Project Tooth Fairy: a pan-London initiative from conception to delivery to patient-reported experience measures. [PDF]

Br Dent J, 2023
Patel A, McQuillan J, Johnson J, Sadio H, Dungarwalla M.   +4 more
europepmc   +1 more source

Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley   +1 more source

A Multicentric Study to Validate the Patient-Reported Experience Measures (PREM) Tool for Wound Management and Safety in India. [PDF]

Cureus
Michael JC, Murugesan M, Murthy VBN, Seetharaman S, Sharmil H, Rosy HJ, Manjrekar P, Shanmugam Rajendran S, Gomez T.   +8 more
europepmc   +1 more source

Perception of quality of care using patient reported experience measures (PREMs) in a cohort of adults with HIV: A cross-sectional study. [PDF]

Medicine (Baltimore), 2023
de Lazzari E, Berrocal L, Fernández E, Laguno M, Chivite I, Torres B, González-Cordón A, de la Mora L, Ambrosioni J, Iniciarte A, Blanco JL, Miró JM, Martínez E, Martínez-Rebollar M, Mallolas J.   +14 more
europepmc   +1 more source

Whole‐Body Pattern of Muscle Degeneration and Progression in Sarcoglycanopathies

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To characterize whole‐body intramuscular fat distribution pattern in patients with sarcoglycanopathies and explore correlations with disease severity, duration and age at onset. Methods Retrospective, cross‐sectional, multicentric study enrolling patients with variants in one of the four sarcoglycan genes who underwent whole‐body ...
Laura Costa‐Comellas, Mauro Monforte, Angel Sanchez‐Montañez, Penélope Romero‐Duque, Elena Pegoraro, Jordi Díaz‐Manera, Dmitry Vlodavets, Lorenzo Maggi, Marco Moscatelli, Adele D‘Amico, Montse Olivé, Jorge Alonso‐Pérez, Giacomo Comi, José Miguel Escudero‐Fernández, Gabriela S. Urcuyo, Anna Pichiecchio, Angela Berardinelli, Kristl G. Claeys, Claudio Bruno, Chiara Panicucci, Sara Bortolani, Eleonora Torchia, Enzo Ricci, Soledad Monges, Jorge A. Bevilacqua, Jorge Diaz‐Jara, Maggie C. Walter, Simone Thiele, Nicoline Løkken, John Vissing, Susana Quijano‐Roy, Robert Y. Carlier, Nicol C. Voermans, Chiara Marini‐Bettolo, Michela Guglieri, Volker Straub, Lea Leonardis, Francina Munell, David Gómez‐Andrés, Giorgio Tasca   +39 more
wiley   +1 more source

Development of a Prediction Model for Progression Risk in High‐Grade Gliomas Based on Habitat Radiomics and Pathomics

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To investigate the value of constructing models based on habitat radiomics and pathomics for predicting the risk of progression in high‐grade gliomas. Methods This study conducted a retrospective analysis of preoperative magnetic resonance (MR) images and pathological sections from 72 patients diagnosed with high‐grade gliomas (52 ...
Yuchen Zhu, Yuxi Gong, Weilin Xu, Xingjian Sun, Gefei Jiang, Lei Qiu, Kexin Shi, Mengxing Wu, Yinjiao Fei, Jinling Yuan, Jinyan Luo, Yurong Li, Yuandong Cao, Minhong Pan, Shu Zhou   +14 more
wiley   +1 more source

Unraveling the Molecular Mechanisms of Glioma Recurrence: A Study Integrating Single‐Cell and Spatial Transcriptomics

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Glioma recurrence severely impacts patient prognosis, with current treatments showing limited efficacy. Traditional methods struggle to analyze recurrence mechanisms due to challenges in assessing tumor heterogeneity, spatial dynamics, and gene networks.
Lei Qiu, Yinjiao Fei, Jiaxuan Ding, Kexin Shi, Jinyan Luo, Yuchen Zhu, Xingjian Sun, Gefei Jiang, Yuandong Cao, Weilin Xu, Shu Zhou   +10 more
wiley   +1 more source