Results 11 to 20 of about 2,875,336 (355)
Patient reported outcome measures in rare diseases: a narrative review
Orphanet Journal of Rare Diseases, 2018 Background Rare diseases can lead to a significant reduction in quality of life for patients and their families. Ensuring the patients voice is central to clinical decision making is key to delivering, evaluating and understanding the efficacy of ...
Anita Slade +7 more
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Breast, 2021 Background: Women undergoing cancer-related mastectomy and reconstruction are facing multiple treatment choices where post-surgical satisfaction with breasts is a key outcome.
André Pfob +5 more
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Properties of patient-reported outcome measures in individuals following acute whiplash injury [PDF]
, 2010 Background: The aim of this study was to assess the acceptability, reliability, validity and responsiveness of the Short-Form Health Survey (SF-12) and its preference-based derivative (SF-6D), the EQ-5D and the Neck Disability Index (NDI) in patients ...
Leikykh, Dmytro Volodymyrovych +5 more
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Integrating Patient-Reported Outcomes
Value in Health, 2004 This paper discusses the relations between different types of patient-reported outcomes that may be collected in clinical studies. Two models are presented that argue that there is a linear relation between the different outcomes. When needs-based quality of life (QoL) is incorporated into the model it is proposed that a two-dimensional relation is ...
McKenna, Stephen P., Doward, Lynda C.
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Journal of Patient-Reported Outcomes, 2018 This paper describes the rationale and goals of the Patient-Reported Outcome (PRO) Consortium’s instrument translation process. The PRO Consortium has developed a number of novel PRO measures which are in the process of qualification by the U.S. Food and
Sonya Eremenco +4 more
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Defining Patient-Reported Outcomes
Value in Health, 2004 This paper considers and defines the different types of patient-reported outcomes that can be collected in clinical studies. In particular, it argues that quality of life (QoL) is a distinctly different type of outcome from Health-Related Quality of Life (HRQL).
Doward, Lynda C., McKenna, Stephen P.
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Journal of Patient-Reported Outcomes, 2018 Background In the development of patient-reported outcome (PRO) instruments, little documentation is provided on the justification of response scale selection.
Katharine Gries +8 more
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Content comparison of patient-reported outcome instruments used to measure burnout [PDF]
, 2015 The aim of this article is to compare the content of patient-reported outcome (PRO) burnout measures and to examine the degree of overlap between them and psychosocial difficulties (PSD) experienced by persons with burnout.
Cieza, A. +2 more
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Patient-reported outcome measurement [PDF]
Journal of the Royal Society of Medicine, 2010 Alan Maynard and Karen Bloor1 raise interesting questions, particularly in relation to breast cancer. One issue is that treatment-related toxicities may not become problematic for several years, particularly when radiotherapy is administered. Research so far seems to indicate that hypofractionation causes more long-term problems than hyperfractionation,
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Xiehe Yixue Zazhi, 2022 Judgment about the outcome of plastic surgery, whether reconstruction or cosmetology, depends on the beautification of body image, which is difficult to be measured with physical parameters. How to exactly understand patients' perception and make correct
HE Leren
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