Results 31 to 40 of about 7,135 (173)

Health related quality of life assessment in Pakistani paediatric cancer patients using PedsQL^TM 4.0 generic core scale and PedsQL™ cancer module

Health and Quality of Life Outcomes, 2012
Background The purpose of the study was to evaluate and compare the HRQOL of paediatric cancer in comparison to the healthy children across age groups, using PedsQLTM 4.0 Generic Core Scales and the PedsQL™ Cancer Module.
Chaudhry Zainab, Siddiqui Salma
doaj   +1 more source

Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module

Health and Quality of Life Outcomes, 2011
Background The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 ...
Jafari Peyman, Forouzandeh Elham, Bagheri Zahra, Karamizadeh Zohreh, Shalileh Keivan   +4 more
doaj   +1 more source

Ketogenic Diet as an Epigenetic Therapy in SETD1B‐Related Epilepsy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Histone lysine methyltransferases such as SETD1B regulate chromatin structure and gene transcription. Ketone bodies, including butyrate, act as histone deacetylase inhibitors. We report a 4‐year‐old boy with SETD1B‐related absence epilepsy, refractory to conventional medications, who achieved sustained > 90% seizure reduction on the Modified ...
Erica Tsang, Brian S. Gloss, Jessica P. Hayes, Andrew J. A. Holland, Manoj P. Menezes, Joceline A. Branson, Shekeeb S. Mohammad, Jingya J. Yan, Shrujna Patel, Velda X. Han, Russell C. Dale   +10 more
wiley   +1 more source

Cognitive Behavioral Therapy for Youth With Childhood‐Onset Lupus: A Randomized Clinical Trial

Arthritis Care &Research, EarlyView.
Objective Our objective was to determine the feasibility and acceptability of the Treatment and Education Approach for Childhood‐Onset Lupus (TEACH), a six‐session cognitive behavioral intervention addressing depressive, fatigue, and pain symptoms, delivered remotely to individual youth with lupus by a trained interventionist.
Natoshia R. Cunningham, Thea Senger‐Carpenter, Jocelyn Zuckerman, Michelle Adler, Mallet R. Reid, Ashley Danguecan, Luana Flores Pereira, Sarah I. Mossad, Samantha L. Ely, Khalid Abulaban, Elizabeth A. Kessler, Natalie Rosenwasser, Tamar B. Rubinstein, Ekemini A. Ogbu, Emily A. Smitherman, Alaina Miller, Taylor Abounader, Elizabeth Ross, Livie Timmerman, Dhriti Sharma, Jennifer N. Stinson, Stacy Allen, Kabita Nanda, Tala El Tal, Deborah M. Levy, Linda T. Hiraki, Hermine I. Brunner, Mathew Reeves, Steven J. Pierce, Andrea Knight   +29 more
wiley   +1 more source

Measuring health-related quality of life in children with cancer living in mainland China: feasibility, reliability and validity of the Chinese mandarin version of PedsQL 4.0 Generic Core Scales and 3.0 Cancer Module

Health and Quality of Life Outcomes, 2011
Background The Pediatric Quality of Life Inventory (PedsQL) is widely used instrument to measure pediatric health-related quality of life (HRQOL) for children aged 2 to 18 years.
Ji Yi, Chen Siyuan, Li Kai, Xiao Nong, Yang Xue, Zheng Shan, Xiao Xianmin   +6 more
doaj   +1 more source

Psychiatric and Cognitive Features in Italian Women With the FMR1 Premutation: A Comprehensive Assessment Using SCID‐5 and Standardized Cognitive Measures

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.
ABSTRACT Women with the FMR1 premutation (PM) are at increased risk for fragile X‐associated conditions (FXPAC), including cognitive and psychiatric features collectively termed fragile X‐associated neuropsychiatric disorders (FXAND). This study is the first to systematically investigate cognitive and psychiatric features in Italian female premutation ...
Federica Alice Maria Montanaro, Randi J. Hagerman, Giuseppina Spano, Flora Tassone, Giancarlo Logroscino, Andrea Bosco   +5 more
wiley   +1 more source

Reliability and validity of the Chinese version of the PedsQL Multidimensional Fatigue Scale in children with acute leukemia

International Journal of Nursing Sciences, 2016
Background: The PedsQL Multidimensional Fatigue Scale (PedsQL™ MFS) is widely used to rate fatigue in children living in English-speaking countries. However, insufficient instruments are available to conduct parallel assessment on fatigue in parents and ...
Qimeng Ye, Ke Liu, Jun Wang, Xiuqing Bu, Lili Zhao   +4 more
doaj   +1 more source

Adaptation and validation of the PEDSQL™ oral health scale for toddlers in Chilean population

BMC Oral Health, 2020
Background The Pediatric Quality of Life Inventory™ (PedsQL™) Oral Health Scale was developed to measure oral health-related quality of life (OHRQoL). The aim of this study was to cross-culturally adapt the parent-reported version for toddlers of PedsQL™
Claudia Atala-Acevedo, Carlos Zaror, Gerardo Espinoza-Espinoza, Patricia Muñoz-Millán, Sergio Muñoz, María José Martínez-Zapata, Montse Ferrer   +6 more
doaj   +1 more source

PedsQL-4.0 in children with Autism Spectrum Disorder

International Journal of Research in Pharmaceutical Sciences, 2020
Autism Spectrum Disorder (ASD) is a neuro developmental disorder in DSM-5, characterized by social deficits and communication difficulties, stereotyped or repetitive behaviours and interests, sensory issues, and in some cases, cognitive delays. Prevalence of ASD is ever increasing recently throughout the world.
null Lal D V, null Sowmi Sri, null Ambikapathy, null Benjamin S   +3 more
openaire   +1 more source

Executive functions and self‐limited epilepsy with centro‐temporal spikes: A scoping review

Epileptic Disorders, EarlyView.
Abstract Executive functions are a set of high‐level cognitive processes necessary for planning, organization, decision‐making, self‐control, and attention, and are carried out in the anterior frontal lobes. An impairment in executive functioning might present as difficulties in planning and organizing activities, in attention and concentration, in ...
Edoardo Fino, Martina Calì, Sara Senese, Simona Pellacani, Viola Margheri, Chiara Pecini, Carmen Barba   +6 more
wiley   +1 more source