Results 41 to 50 of about 82,187 (270)

Persistent identifiers – building trust and supporting openness in digital scholarship [PDF]

open access: yes, 2017
The inevitable ambiguities arising from using names can hamper our ability to reliably and transparently discover, connect, and access resources. If we’re to fully realise the potential of open, digital scholarship then automatic, resolvable connections ...
Brown, Josh, Meadows, Alice
core  

Survival Outcomes and Complications Among Canadian Children With Retinoblastoma: A Population‐Based Report From CYP‐C

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Retinoblastoma (RB) is the most common pediatric ocular cancer, yet population‐based data on survival and risk factors remain limited. This study aimed to describe survival in a large national RB cohort and identify predictors of death and complications.
Samuel Sassine   +14 more
wiley   +1 more source

Scaling Identifiers and their Metadata to Gigascale: An Architecture to Tackle the Challenges of Volume and Variety

open access: yesData Science Journal, 2023
Persistent identifiers are applied to an ever-increasing variety of research objects, including software, samples, models, people, instruments, grants, and projects, and there is a growing need to apply identifiers at a finer and finer granularity ...
Jens Klump   +6 more
doaj   +1 more source

Sirolimus for Extracranial Arteriovenous Malformations: A Scoping Review of the Evidence in Syndromic and Non‐Syndromic Cases

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Arteriovenous malformations (AVMs) are rare, high‐flow, vascular anomalies that can occur either sporadically or as part of a genetic syndrome. AVMs can progress with serious morbidity and even mortality if left unchecked. Sirolimus is an mTOR inhibitor that is effective in low‐flow vascular malformations; however, its role in AVMs is unclear.
Will Swansson   +3 more
wiley   +1 more source

Grey Literature and Persistent Identifiers: GreyNet’s Use Case

open access: yes, 2021
The PID (Persistent Identifier) Project is a follow-up to the AccessGrey Project carried out in 2019 in which an online survey was held among stakeholders in GreyNet’s community of practice. Recipients were asked their opinions about persistent identifiers and grey literature.
Farace, Dominic   +3 more
openaire   +3 more sources

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski   +9 more
wiley   +1 more source

String of PURLs – frugal migration and maintenance of persistent identifiers

open access: yesData Science, 2020
FAIR data requires unique and persistent identifiers. Persistent Uniform Resource Locators (PURLs) are one common solution, introducing a mapping layer from the permanent identifier to a target URL that can change over time.
James A. Overton   +3 more
doaj   +1 more source

From Artifacts to Aggregations: Modeling Scientific Life Cycles on the Semantic Web [PDF]

open access: yes, 2009
In the process of scientific research, many information objects are generated, all of which may remain valuable indefinitely. However, artifacts such as instrument data and associated calibration information may have little value in isolation; their ...
Ahern   +37 more
core   +1 more source

Pediatric Oncology Nursing Competencies in Latin America and the Caribbean: A Scoping Review to Inform Practice, Education, and Research

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Nurses are central to cancer care for children and adolescents, yet no comprehensive synthesis has defined essential core competencies for pediatric oncology nursing (PON) practice internationally, particularly in Latin America and the Caribbean (LAC).
Luís Carlos Lopes‐Júnior   +7 more
wiley   +1 more source

Pulmonary Dysfunction Is Associated With Sleep Study Abnormalities in Children With Sickle Cell Disease: A Multicenter Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Pulmonary dysfunction and sleep abnormalities are common in children with sickle cell disease (SCD) and are associated with worse clinical outcomes. Whether spirometry abnormalities are associated with polysomnography (PSG) findings remains unclear.
Ammar Saadoon Alishlash   +4 more
wiley   +1 more source

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