The development of a Patient Decision Aid and Patient Concerns Inventory for people diagnosed with recurrent head and neck cancer: a mixed-methods study protocol. [PDF]
Georgopoulou S +6 more
europepmc +1 more source
Public and patient involvement in developing a survey on re-consent for pediatric genomic data sharing in Japan: a GRIPP2-LF report. [PDF]
Terui-Kohbata H, Yamamoto M, Takeuchi T.
europepmc +1 more source
Integrating patient and public involvement to strengthen oncology research in sub-Saharan Africa. [PDF]
Hughes JG +6 more
europepmc +1 more source
Patient and Public (PPI) Involvement in Hospice research: an example of co-production in action
Brigden, Charlotte L. +13 more
openaire
Developing and evaluating guidelines for patient and public involvement (PPI) in research [PDF]
© Emerald Group Publishing Limited Purpose – A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed.
Katherine Pollard
exaly +4 more sources
Patient and Public Involvement (PPI) in preclinical research: A scoping review protocol [PDF]
Introduction: Patient and public involvement (PPI) aims to improve the quality, relevance, and appropriateness of research and ensure that it meets the needs and expectations of those affected by particular conditions to the greatest possible degree.
Paul Murphy +2 more
exaly +6 more sources
Purpose: International health and social care policy increasingly draws on stakeholder experiences and opinions. The distinctions between various approaches to researching "insider" perspectives are contentious. This article explores features (e.g. philosophy, ethics, and power dynamics) of qualitative approaches and public and patient involvement (PPI)
Edel Tierney +2 more
exaly +3 more sources
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Patient and public involvement (PPI) in computer-aided diagnostics in digital histopathology
Diagnostic Histopathology, 2023Nicolas Orsi
exaly +2 more sources
A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials – a work in progress [PDF]
Funders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make sure that the design of their research is relevant, that it is participant friendly and ethically sound. Using and sharing PPI resources can benefit those
Bridget Young, Nicola Harman
exaly +3 more sources

