Strengthening Rare Disease Data Readiness: a semantic approach to cross-registry interoperability. [PDF]
Hentrich CM +10 more
europepmc +1 more source
[Certificate of Registry, Karakul Fur Sheep Registry, Purebred Karakul Ewe]
A Certificate of Registry.Recto: [imprinted] Certificate of Registry, Karakul Fur Sheep Registry, Purebred Section. No. 7775. [descriptive text not transcribed]. Verso: [imprinted] Transfer, Each transfer shown shall cover but one sale. [descriptive text
Karakul Fur Sheep Registry
core
ABSTRACT Objectives Focal cortical dysplasia (FCD) is the most common etiology of drug‐resistant epilepsy in children. Focal to bilateral tonic–clonic seizures (FBTCS) mark a high risk of drug‐resistant epilepsy and involve thalamocortical circuitry in their generation and propagation.
Hua Xie +8 more
wiley +1 more source
Reassessing the public health value of regional cancer registries in the era of Japan's National Cancer Registry: a learning health system perspective. [PDF]
Narimatsu H +3 more
europepmc +1 more source
ABSTRACT Background Ischemic stroke, a major cause of mortality and long‐term disability, results from the abrupt cessation of cerebral blood flow due to vascular occlusion or rupture. Icosapent Ethyl (EPA‐EE), approved for hypertriglyceridemia, has anti‐inflammatory and antithrombotic properties that may lessen ischemic damage.
Mitra Mahmoudi Meymand +5 more
wiley +1 more source
Clinical Vulnerability Refines Rhythm-Related Outcomes in Older Patients Undergoing Pulmonary Vein Isolation for Atrial Fibrillation: An Observational Cohort Study. [PDF]
Mohsen Y +15 more
europepmc +1 more source
ABSTRACT Background Factors associated with relapse course and disability in myelin oligodendrocyte glycoprotein antibody‐associated disease (MOGAD) remain incompletely understood. Objectives To identify clinical and modifiable factors associated with relapse and disability in MOGAD. Methods In this ambispective multicentre cohort study using data from
Yingtao Wang +23 more
wiley +1 more source
Mapping population-based cancer registries in Europe: coverage, data availability, and capacity for real-world data generation. [PDF]
Zadnik V +21 more
europepmc +1 more source
Bi‐ and Mono‐Allelic RFC1 Expansion in a North American Cohort With Idiopathic Axonal Neuropathy
ABSTRACT Objective RFC1 biallelic repeat expansion is increasingly recognized as a cause of chronic idiopathic axonal polyneuropathy (CIAP), but it remains challenging to know who to test. This study aims to determine the prevalence of biallelic and monoallelic RFC1 expansions and their corresponding neuropathy phenotypes in CIAP patients and identify ...
Amro M. Stino +25 more
wiley +1 more source
Cancer prevention and interception studies registered in ClinicalTrials.gov: a landscape analysis of trial characteristics and reporting gaps. [PDF]
Fors M +4 more
europepmc +1 more source

