Results 21 to 30 of about 1,395,199 (355)
Implementation of anaphylaxis management guidelines [PDF]
, 2012 Anaphylaxis management guidelines recommend the use of intramuscular adrenaline in severe reactions, complemented by antihistamines and corticoids; secondary prevention includes allergen avoidance and provision of self-applicable first aid drugs.
Gough, Hannah +12 more
core +1 more source
An assessment of the quality of the I-DSD and the I-CAH registries - international registries for rare conditions affecting sex development [PDF]
, 2017 With the proliferation of rare disease registries, there is a need for registries to undergo an assessment of their quality against agreed standards to ensure their long-term sustainability and acceptability.This study was performed to evaluate the I-DSD
Ahmed, S.F. +5 more
core +1 more source
Age-standardized expected years of life lost: quantification of cancer severity
BMC Public Health, 2019 Background The critical implications of the expected years of life lost (EYLL) index of cancer for health policy assessments have been largely overlooked. We advocate to standardize life lost indices.
Yueh Wang, Chun-Ju Chiang, Wen-Chung Lee
doaj +1 more source
A pressão coronária (às vezes) mente. . . [PDF]
, 2018 Comment on: Comparative analysis of fractional flow reserve and instantaneous wave-free ratio: Results of a five-year registry. [Rev Port Cardiol.
Baptista, SB, Raposo, L
core +1 more source
Psoriatic Arthritis Registries
The Journal of Rheumatology Supplement, 2015 The introduction of new biological drugs for the treatment of rheumatoid arthritis and spondyloarthritis has led to the creation of a number of registries in Europe and the United States. Most of them are sponsored by national rheumatology societies, and provide information that is useful in clinical practice concerning the clinical characteristics ...
Sarzi-Puttini, Piercarlo +4 more
openaire +3 more sources
Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research
Annals of Clinical and Translational Neurology, 2022 Objective This research aims to examine the impact of the National Amyotrophic Lateral Sclerosis (ALS) Registry‐funded research activities. Methods Registry‐funded research and related publications were identified through the National ALS Registry ...
Lindsay Rechtman +9 more
doaj +1 more source
Scotland Registry for Ankylosing Spondylitis (SIRAS) – Protocol [PDF]
, 2016 Funding SIRAS was funded by unrestricted grants from Pfizer and AbbVie. The project was reviewed by both companies, during the award process, for Scientific merit, to ensure that the design did not compromise patient safety, and to assess the global ...
Dean, Linda E +10 more
core +1 more source
Nucleic Acids Research, 2004 The miRNA Registry provides a service for the assignment of miRNA gene names prior to publication. A comprehensive and searchable database of published miRNA sequences is accessible via a web interface (http://www.sanger.ac.uk/Software/Rfam/mirna/), and all sequence and annotation data are freely available for download.
openaire +3 more sources
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR) [PDF]
, 2015 The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for neuromuscular disease patients.
BNMDR Scientific Committee, the +7 more
core +2 more sources
BMC Cancer, 2023 Background Steady evolution of therapies has improved prognosis of patients with multiple myeloma (MM) over the past two decades. Yet, knowledge about survival trends and causes of death in MM might play a crucial role in long-term management of this ...
Christine Eisfeld +5 more
doaj +1 more source