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RDA: Research Data Alliance - 2025 DRI Connect Poster
Poster created for DRI Connect 2025 (English Version). --- The RDA is an international organization providing a neutral space where members come together to:• develop and adopt infrastructure that promotes data-sharing and data-driven research• accelerate the growth of a cohesive data community that integrates contributors across domain, research ...openaire +1 more source
Health Data Research Alliance Data Officer Group Report-January 2024
This data officer group meeting brought together data leads from Alliance memeber organisation to discuss The GA4GH Beacon v2 standard for genomic and clinical data discovery and incoperating a data design group to support the HDRUK Drivers program.openaire +1 more source
Getting to Know the Research Data Alliance (RDA) Knowledge Base
This resource provides a community-friendly overview of the Research Data Alliance (RDA) Knowledge Base, conceived and developed through the Horizon Europe funded RDA TIGER project, specifically through Work Package 4 (details, credits?). This is intended as a sort of “start here” familiarisation resource for RDA groups and RDA members in general.Sharma, Curtis J M +2 more
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UK Health Data Research Alliance Data Officers Group Meeting Report-October 2025
The Alliance Data Officers’ Group (DOG) met on 1 October 2025 to share updates on Alliance activities, review progress on the Data Standards Principles and Recommendations, and hear presentations on NHS England’s National Reusable Code Library and Catalogue, and on assessing the quality of ethnicity data in NHS administrative datasets.openaire +1 more source
UK Health Data Research Alliance Data Officers Group Meeting Report-June 2025
The June 2025 Data Officers Group meeting highlighted updates on the HDR UK Driver's Programme Data Design Authority's revision of the 2021 white paper. Presentations covered the EU-supported QUANTUM project’s data quality label and maturity model, the University of Nottingham’s OMOP mapping toolset “CARROT,” and data curation support from the BHF Dataopenaire +1 more source
UK Health Data Research Alliance Data Officers' Group Meeting Report- May 2024
This data officer group meeting brought together data leads from Alliance memeber organisation to discuss opeEHR: why it matters for health and care data, its potential for clinically led app development and its technical frame work. The presentation also highlighted updates from the Health Data Research(HDR) UK Research Drivers programme Data Design ...openaire +1 more source
An overview of real‐world data sources for oncology and considerations for research
Ca-A Cancer Journal for Clinicians, 2022Lynne Penberthy +2 more
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