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Challenges for co-morbid chronic illness care and policy in Australia: a qualitative study [PDF]
BACKGROUND: In response to the escalating burden of chronic illness in Australia, recent health policies have emphasised the promotion of patient self-management and better preventive care.
Dugdale, Paul +5 more
core +1 more source
Parent‐to‐Child Information Disclosure in Pediatric Oncology
ABSTRACT Background Despite professional consensus regarding the importance of open communication with pediatric cancer patients about their disease, actual practice patterns of disclosure are understudied. Extant literature suggests a significant proportion of children are not told about their diagnosis/prognosis, which is purported to negatively ...
Rachel A. Kentor +12 more
wiley +1 more source
Factors associated with quality of life for cystic fibrosis family caregivers
Cystic Fibrosis (CF) is a genetic and chronic disease affecting 32,100 people in the United States as of 2021, with a life expectancy of 56 years for people with CF (PwCF) born between 2018 and 2022.
Whitney Nesser +3 more
doaj +1 more source
Estimating the Prevalence of Knee Pain and the Association between Illness Perception Profiles and Self-Management Strategies in the Frederiksberg Cohort of Elderly Individuals with Knee Pain: A Cross-Sectional Study [PDF]
Elisabeth Ginnerup‐Nielsen +7 more
openalex +1 more source
Home haemodialysis : trends in technology [PDF]
Self management and home-based dialysis therapies offer the prospect of improved patient experience and outcomes. To allow more patients to realize these benefits requires changes in technology which focus on maximizing the ease and minimizing the ...
Farrington, Ken, Greenwood, Roger
core +2 more sources
ABSTRACT Objectives To identify predictors of chronic ITP (cITP) and to develop a model based on several machine learning (ML) methods to estimate the individual risk of chronicity at the timepoint of diagnosis. Methods We analyzed a longitudinal cohort of 944 children enrolled in the Intercontinental Cooperative immune thrombocytopenia (ITP) Study ...
Severin Kasser +6 more
wiley +1 more source
Stress and adaptive coping don’t interact in predicting outcomes
In two studies, we tested the combined effects of stress, adaptive coping, and the stress x adaptive coping interaction on outcomes. In Study 1, undergraduates (N = 177) answered questions measuring daily hassles, adaptive coping, and the positive ...
Paul M. Kohn +3 more
doaj +1 more source
Sisyphus & the Labor of Imagination: Autonomy, Cultural Production and the Antinomies of Worker Self-Management [PDF]
Is there any radical potential left in the notion and practices of worker self-management? What I want do in this essay is to try and see if it is possible to distill something of a radical kernel from the many difficulties and complications that ...
Shukaitis, S
core
ABSTRACT Background Despite their increased risk for functional impairment resulting from cancer and its treatments, few adolescents and young adults (AYAs) with a hematological malignancy receive the recommended or therapeutic dose of exercise per week during inpatient hospitalizations.
Jennifer A. Kelleher +8 more
wiley +1 more source
People’s preferences for self‐management support [PDF]
Cynthia P Iglesias-Urrutia +7 more
openalex +1 more source

