Results 61 to 70 of about 2,325,002 (342)

Preferences of Pediatric Patients and Their Caregivers for Chemotherapy‐Induced Nausea and Vomiting Control Endpoints: A Mixed Methods Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Although not always achieved, complete chemotherapy‐induced nausea and vomiting (CINV) control is the conventional goal of CINV prophylaxis. In this two‐center, mixed‐methods study, we sought to understand the preferences of adolescent patients and family caregivers for CINV control endpoints.
Haley Newman, Tadi Hondonga, Alison Berry, Caitlin Elgarten, Jason Freedman, Katelyn Oranges, Sara McDonough, Caroline Diorio, L. Lee Dupuis   +8 more
wiley   +1 more source

Shared Care, Elder and Family Member Skills Used to Manage Burden [PDF]

, 2005
Aim. The aim of this paper is to further develop the construct of Shared Care by comparing and contrasting it to related research, and to show how the construct can be used to guide research and practice. Background.
AhYun K., Aneshensel C.S., Archbold P.G., Archbold P.G., Davey A., Deimling G.T., Feinberg L.F., Gayle B.M., Gayle B.M., Germino B., Grady K.L., Hooker K., Horowitz A., Leventhal H., Lincoln Y.S., Lyons K.S., Poole M.S., Pruchno R.A., Pruchno R.A., Reinardy J.R., Rook K., Schwartz-Barcott D., Schwartz-Barcott D., Smerglia V.L., Stone D., Thomas V., Walker A.J., Wolff J.L., World Health Organization   +28 more
core   +2 more sources

Outcomes of Live Virus Vaccination in Patients With Vascular Anomalies Being Treated With Sirolimus

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Live vaccination in patients with vascular anomalies (VA) receiving sirolimus remains controversial due to immunosuppressive effects and theoretical risks. Procedure This single‐center retrospective study included patients with VA less than 4 years old at the start of sirolimus therapy who were incompletely vaccinated.
Svatava Merkle, Kiersten Ricci, Kelly Blache, Rebecca A. Marsh, Adrienne M. Hammill, Elissa Engel   +5 more
wiley   +1 more source

From shared decision making to patient-centered decision making

Israel Journal of Health Policy Research, 2012
Shared decision making involving patients and physicians has gained adherents in Israel and other countries and has many virtues. This commentary argues that medical decision making should ideally be shaped by the particular needs and preferences of the ...
Fineberg Harvey V
doaj   +1 more source

Pulmonary Dysfunction Is Associated With Sleep Study Abnormalities in Children With Sickle Cell Disease: A Multicenter Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Pulmonary dysfunction and sleep abnormalities are common in children with sickle cell disease (SCD) and are associated with worse clinical outcomes. Whether spirometry abnormalities are associated with polysomnography (PSG) findings remains unclear.
Ammar Saadoon Alishlash, Anis Rabbani Nourani, A. K. M. Fazlur Rahman, Dima Ezmigna, Tarig Ali‐Dinar   +4 more
wiley   +1 more source

Translation and cultural adaption of the control preference scale across various care settings in a Danish hospital

Journal of Patient-Reported Outcomes
Background In recent decades, there has been a growing emphasis on involving patients in healthcare decision-making, driven by political, ethical, and research considerations.
Bettina Mølri Knudsen, Karina Dahl Steffensen   +1 more
doaj   +1 more source

POS1404 SHARED DECISION MAKING AND INTERNET USE FOR GATHERING HEALTH INFORMATION IN PATIENTS WITH SYSTEMIC LUPUS ERYTHEMATOSUS: A MULTICENTER CROSS-SECTIONAL STUDY [PDF]

, 2022
Takanori Ichikawa, Y. Shimojima, D. Kishida, N. Yajima, R. Yoshimi, K. E. Sada, Y. Miyawaki, N. Oguro, N. Sakurai, C. Hidekawa, K. Hayashi, K. Shidahara, Y. Ishikawa, Y. Sekijima, N. Kurita   +14 more
openalex   +1 more source

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

From Paper to Pixels: Digital Transition of a Patient Decision Aid—A Pilot Study

Mayo Clinic Proceedings: Digital Health
Objective: To convert a generic paper-based patient decision aid (PtDA) into digital format and assess its usability through α and β testing, recognizing the growing role of digital health technologies in empowering patients in shared decision-making ...
Bettina Mølri Knudsen, MA, Karina Olling, BSN, Lisbeth Høilund Gamst, BSN, Charlotte Hald Fausbøll, BSN, Karina Dahl Steffensen, MD, PhD   +4 more
doaj   +1 more source

Personalising haemophilia management with shared decision making

The Journal of Haemophilia Practice, 2021
The current standard of care for treating people with haemophilia (PWH) in the developed world is prophylaxis with regular infusions of clotting factor concentrates.
Valentino Leonard A, Blanchette Victor, Negrier Claude, O’Mahony Brian, Bias Val, Sannié Thomas, Skinner Mark W   +6 more
doaj   +1 more source