Results 121 to 130 of about 381 (207)

Progressive Supranuclear Palsy in India: Insights from a Large Multicenter Clinical Cohort (Project PAIR‐PSP)

Movement Disorders Clinical Practice, EarlyView.
Background Progressive supranuclear palsy (PSP) is a rare and devastating tauopathy with limited global data. Given India's large population, genetic diversity, and clinical heterogeneity, large multicenter datasets are crucial to enrich global understanding of PSP. Objective To characterize the demographic, clinical, and phenotypic profiles of a large
Prashanth Lingappa Kukkle, Divyani Garg, Jacky Ganguly, Soaham Desai, Rukmini Mridula Kandadai, Sahil Mehta, Pettarusp Murzban Wadia, Deepika Joshi, Lulup Sahoo, Vijayashankar Paramanandam, Taallapalli Ashok Vardhan Reddy, Adreesh Mukherjee, Syam Krishnan, Kuldeep Shetty, Charulata Sankhla, Pankaj Agarwal, Heli S. Shah, Suvorit Bhowmick, Mitesh Chandarana, Malini Venkata, Thenral S. Geetha, Ramesh Menon, Sandeep Charugulla, Sakthivel Murugan, Ravi Gupta, Niraj Kumar, Atanu Biswas, Hrishikesh Kumar, Rupam Borgohain, Huw Morris, Vedam. L Ramprasad, Parkinson's Research Alliance of India (PRAI) and the Global Parkinson's Genetic Program (GP2)   +31 more
wiley   +1 more source

Teste tuberculínico na estimativa da prevalência de infecção por Mycobacterium tuberculosis em populações indígenas do continente americano: uma revisão da literatura

Cadernos de Saúde Pública
Realizou-se revisão sistemática da literatura sobre trabalhos que utilizaram PPD para estimar a prevalência e o risco de infecção tuberculosa entre os povos indígenas do continente americano.
Paulo Cesar Basta, Luiz Antonio Bastos Camacho   +1 more
doaj  

Sociodemographic and Clinical Profile of Adult Males With Duchenne Muscular Dystrophy

Muscle &Nerve, EarlyView.
ABSTRACT Introduction/Aims Due to improvements in clinical care, individuals with Duchenne muscular dystrophy (DMD) are living into adulthood, but little has been published about adults with DMD. We describe key characteristics of adults with DMD using US population‐based surveillance data.
Manju Jayasimha Pula Jayaram, Hollie A. Clark, Natalie Street, Yining Yang, Shannon Kilburn, Shiny Thomas, Christina Westfield, Katherine D. Mathews, Emma Ciafaloni, Aida Soim, Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)   +12 more
wiley   +1 more source

The Mediating Role of Disengaged Coping in the Relationship Between Adverse Childhood Experiences and Substance Use Among Sexual Minority Adults

Research in Nursing &Health, EarlyView.
ABSTRACT Adverse childhood experiences (ACEs) are strongly linked to negative long‐term health outcomes. Sexual minority (SM) individuals face disproportionate exposure to ACEs and their consequences compared to heterosexual peers. However, the mechanisms connecting ACEs to these outcomes remain poorly understood.
Marvin A. Schilt‐Solberg, Julie J. A. M. J. Kurzer   +1 more
wiley   +1 more source

Mobilizing Presence across Borders: Devotion to Papua New Guinea's Blessed Peter To Rot in Australia

Oceania, EarlyView.
ABSTRACT This article engages with the conjunctures between migration and religion by focusing on the celebration of Papua New Guinea's ‘National Patron Saint’, the Blessed Peter To Rot, in the Australian diaspora. Both in Sydney and Brisbane, Catholic Papua New Guinea (PNG) migrants have been ‘relocating’ PNG shrines, regalia, relics and ritual ...
Anna‐Karina Hermkens
wiley   +1 more source

O sistema médico Yawanáwa e seus especialistas: cura, poder e iniciação xamânica

Cadernos de Saúde Pública
Uma das particularidades do xamanismo Yawanáwa é a multiplicidade de termos existentes para designar seus especialistas, bem como a associação com diversas técnicas de cura e agressão, característica que lhe dá aparência heterogênea e complexa.
Laura Pérez-Gil
doaj  

Characterizing Music Engagement and Reward in Individuals Across a Spectrum of Hearing Loss and Rehabilitation

Otolaryngology–Head and Neck Surgery, EarlyView.
Abstract Objective Hearing aids (HAs) and cochlear implants (CIs) improve speech perception for individuals with hearing loss (HL), yet their impact on music outcomes remains unclear. We examined music perception, engagement, and reward in a large cohort of individuals across various hearing conditions. Study design Cross‐sectional survey.
Emily Gao, Maria Armache, Joon Soo Kim, Celine Arar, Elaine C. Thompson, Claire Wang, Marshall Chasin, Theodore R. McRackan, Alexander Chern   +8 more
wiley   +1 more source

Administrative Traditions of the Majority World: A Commentary and Future Research Agenda

Public Administration and Development, EarlyView.
ABSTRACT Decolonising public administration is an urgent and necessary endeavour. In this short article we argue that we cannot, however, settle for shallow decolonialisations. We argue that the specific iterations of bureaucracy evidenced in post‐colonial states across the majority world can be conceptualised through the lens of administrative ...
Ibrahim Bornoma, Nick Kirsop‐Taylor, David Benson   +2 more
wiley   +1 more source

Who Holds the Strings? Hybrid Governance in Small States

Public Administration and Development, EarlyView.
ABSTRACT This paper examines how governance in Caribbean small island developing states (SIDS) is reshaped by enduring postcolonial legacies, recurrent crises, and deepening global interdependence. It highlights turbulence, understood as a structural, generative condition of fragmented and recombining authority, as its central analytical contribution ...
Dana‐Marie Ramjit
wiley   +1 more source

Attitudes Toward Prenatal Interventions in the Fanconi Anemia Community

Prenatal Diagnosis, EarlyView.
ABSTRACT Objective In‐utero cell and gene therapies may offer prenatal treatment options for inherited diseases. Preclinical data suggests in‐utero (IU) hematopoietic stem cell transplantation (HSCT) could prevent Fanconi anemia (FA) related bone marrow failure without genotoxic conditioning or immune suppression.
Tony Lum, Catherine Lee, Tippi MacKenzie, Billie Lianoglou, Agnieszka Czechowicz   +4 more
wiley   +1 more source